Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Early 2010 to present (finally accepting what this stuff is)
1. Moved into renovated very old brick apartment building. Spring 2010
2. Both of us experience tickles on hair line, we joke about it. Summer
3. We then get some kind of acne, neither of us have had it ever. Summer
4. Sneezing, summer colds, unusual. Fatigue, insomnia, night asthma, lung irritation severe brain fog. Dropping out of school, can't think, don't feel well. End of summer, fall.
5. Feeling horrible, nightly insomnia. Itching, gasping for breath, something in my lungs at night. An hour after getting in bed, something feels like it is crawling all over us, stinging. Rashes getting really bad. Hair falling out. Dermatologist says its not bites, not mites. We frantically search online for types of mites or some other organism. We try to trap them with tape. We think it is bed bugs. We spray, mop, vacuum, use all kinds of things and nothing helps. We throw out furniture, mattress. We live out of boxes full of moth balls. Nothing works.
6. We move out in desperation after taking samples from environment to UAB epidemiologist. He says he sees nothing but black shiny seed like things that are not life forms. These things cover everything. You can see them on the sheets, in the tub, in my pores. They dust the whole place. Are these black mold spores? In bath water we see they change shapes.
7. With a magnifying glass, I see dancing white cotton like fibers. These fibers fly all around us in a light cloud. I feel a light vibration at my hair line, run to the bathroom, and see a perfect round ball of fuzz jump out onto the sink. This is a common site now. My hair has thinned and texture has changed. Doctors are of no use except for treating chronic asthma. My skin looks thinner and more transparent. I've lost weight.
8. I pull hard small plaques out of large pimples in his back with tweezers. I take to the microscope, and see strings and balls of fine threading coming out of the plaques. We diagnose Morgellon's ourselves.
9. We are away from that place now, and many of the symptoms are better. My hair grows in straight, and is thin. His hair changed color to a reddish tint. Our health is in shambles, he quit work, and my school plans are gone; I clean houses for a living.
Please tell me, what next? Will this get worse again? Now that winter is coming back, there is so much more fuzzy lint stuff in my hair. Only the white stuff like Andy Coyle experiences.
I'm thinking; all of what we experience is different since maybe it is vector borne. If you have mites, you get it that way. If you have some kind of mold around proliferating, you may get it that way. Or Lyme's Disease, some get it that way.
Have these labs and GMO companies accidently shot DNA into other organisms and inadverdantly released this stuff trying to make insect resistant food? Did it get carried out into the air by faulty exhaust systems or with poor cleanliness standards? Are we victims of somekind of bigger picture?
All I know are the facts of my own experience. I can see and feel the fibers in my hair, they are there all the time. I know what I experienced, and the doctors could not understand what I was experiencing. I had the sense to stop trying to get help when I finally realized what this stuff was. Not mites, not scabies, not bird mites. Not bed bugs, not hives, not anything but some kind of living fibers.
It has caused UTIs, kidney pain. Stomach pain. Foggy vision. Ear aches, asthma, crawling sensation in sinuses. Hair loss, gastritis. intestinal motility problems. Memory loss. Fatigue, insomnia. All comes and goes and changes; but the hair always contains the fibers.
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Comment
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Comment by Nik the Brick on January 26, 2012 at 5:26pm -
Thank you CDC, for your cover-up work.
MMS herxing
Purchased Zep Clear Shell, it has chitosan in it,
maybe it will work?
Sprayed Clear Shell and Moldstat on my longest moving fiber samples
They are still looking active, but hopeful it will stop
the spores then..........
Moldstat Plus, salt, baking soda, oxyclean plus kitchen sink in wash
Still throwing out books, stuff in shed
Another stuffed chair
The apt neighbors are watching and staring
I'll never live in a condo again
Chased a cat trying to catch it and was scolded by
apt management: they said it was their stray cat
not the lost one on the paper. We were just trying
to help a crabby condo owner, and maybe she would
quit yelling Here kitty kitty kitty outside my window
every morning.
Being pale morg people isn't socially acceptable I guess.
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Comment by Nik the Brick on January 23, 2012 at 6:15pm
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Update:
Cleaned and vacuumed all the walls and ceiling.
Washing clothes with salt, Fels Naptha grated in and soaking
Ivermectin
Colloidal silver
MMS
Grapefruit seed extract in OJ
When first started MMS, the fibers
went absolutely wild
After a week of this, feeling better!
But I know this stuff changes
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Comment by Nik the Brick on January 21, 2012 at 2:53pm
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Sherry,
Good points. It seemed to come back suddenly. I thought it was the time of year since the previous year seems to match up symptom wise. However, his symptoms remained internal and we thought it was due to something else. His never went away; stomache pain/intestinal pain remained.
It is possible and probable that I may have brought some home on my clothes.
Now I am showing signs of internal symptoms and brain fog.
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Comment by Anita on January 21, 2012 at 2:16am -
When you understand that this Christmas Tree Water Worm, water parasite, is running thru your veins, then you can feel at peace your home environments are not trying to destroy your lives. Your environment is exactly the same as before you got Morgellons. This parasite inside your body is reeking havoc in your body making life in your home environment extremely difficult.
The first 3-4 seconds shows the parasite hiding in holes, if that is our veins we have a monster on our hands. The term machine (cell) in the nano world just means the genes of the organism works to form or perform like a car machine designed to perform. Men will greatly understand machine imagery. The colors, the strains, and active in WATER are right before your eyes in this video.
God Bless,
Anita
P.S. We are in the fight of our life. It is an aquatic organism (machine).
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Comment by Sherry Taylor on January 21, 2012 at 1:57am -
Hi Nik..it's late..and for some bizarre reason the neighbor is using his snow blower in the middle of the night..what is with that???
I'm up..but still..maybe it's a guy thing..like the lawn mower stuff on the nicest days.
Can't talk..nice to re read some of your posts..we have to become detectives..you say you get over it..and it came back...very interesting sleuth NIK..what was different between when you didn't have it and when it came back...think...this is vital.
I hope you are not getting re-infected cleaning those places.
I got reinfected at my daughter's..and always fight something after I visit Gordon's place..or he comes over here. I think they mutate to slightly different types in different environments too. Lets solve this mystery.
I'd be happy if anyone solved it..doesn't have to be us.
Sherry
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Comment by Nik the Brick on January 20, 2012 at 4:33pm
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When I am out cleaning homes, I can identify the homes with the morg. One man has cystic fibrosis, and his bedroom was loaded with fibers and fuzz. It was everywhere and covered the walls and ceiling. The rest of the house was pretty clear of even dust.
Another home was a man that works at the VA downtown. The wife's hairbrush had white fuzz/fibers. The "dust" in this home was hard to remove, it floated around rather quickly like it was alive, and looked just like the morg fibers.
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Comment by Nik the Brick on January 19, 2012 at 6:48pm
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Sherry,
Thanks, we have to warn eachother about toxic stuff... the ingredient in Fels Naptha is methyl ether I think and it is not good for us either
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Comment by Sherry Taylor on January 18, 2012 at 3:45pm
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there are cedar oil "moth balls" from home hardware in Canada..don't use the naptha stuff..very poisonous..to us..remember "M" has been bread to be resistant to temperature and chemical changes..so we have to keep at it ..a war of attrition.
Sherry
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Comment by Nik the Brick on January 17, 2012 at 9:59pm
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Update Jan 2012.
Getting worse. Joint pain in hands and elbows.
Crawling and stinging coming back more and more as days pass.
Heavy drugged sagging feeling, esp after eating.
Makes me feel like staring into space.
Pressure behind nose, but not sinus infection.
Long fine fibers in all my clothing now.
These fibers move constantly.
White dots shoot out or fall everywhere.
Light white fiber that looks like lint flies around me.
Inner ear pain.
So dragged down but can't sleep.
Want orange juice and red meat.
Spicy foods and beer.
Habeneros raw garlic butter sandwich.
Vacuumed the entire place down, washed clothes
in Pine-sol, washed me with Fels Naptha.
Nothing seems to be working.
Everything I try makes the crawling so much worse.
Why?
I'm reading about Serratia and other GMO superbugs.
You people that can get treatment with
combo attack: antibiotic-Bactrim or such
Antiparasitics and antifungals all at once
are fortunate.
Not only that but Pine Oil or Cedarcide
may dissolve your woes if your friends
are HDPE
Or if you are so fortunate to find a friendly
Dr PhD at a University to examine what your
fiber friends are made of so you can at least dissolve
them out of your clothing and off your self.
If they are protein, you can try meat tenderizer.
What if you could get help to find out what kind of
bacterium you are harboring?
Did your immune
system silently shut down from
Quorum Sensing bacterium.
Lucky folks
With nice doctors and helpful family
I'm happy for you.
Did you travel to a Lyme doctor
And maybe get some help that way.
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Comment by Nik the Brick on January 11, 2012 at 7:09pm
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Sherry, you have a good list of useful suggestions that help. I hope someone can fill us in on Andy Coyle; does someone know?
We are getting up the courage to put all nik naks away and streamline the little apt. Accepting the situation and dealing with it. I guess this is stage two and I hope it doesn't get worse.
I see that it is self generating as well. It does not seem to die. It waits for the host to come home or go to bed. The white specks are spores aren't they?
I was wondering about the GMO foods and if they contributed to the problem. We are eating only organic now, except for the occassional pizza or hamburger. We have noticed how we only want to eat beef. So I get grass fed.
Gluten free used to be my way, but fell off that diet. It really helps thyroid for me.
My plants are outside, I don't want them in here.
Gordon Dye? I will look him up. I have watched Dr. Huber on youtube.
© 2012 Created by Dwayne Coots.
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