Comment

Comment by Ashley Broussard on February 9, 2012 at 11:15am

Couldn't agree more with this post (other than the government spy part). I've been a member of the network for years now and have been trying what some suggest with little relief. I've chosen not to take much part in the network other than to read what others are doing and for possible new developments. I too feel there are too many on here and throughout the web with crazed government conspiracy or alien theories making us all sound nutso. Science is ever evolving and I can't give up hope that just because they can't identify this disease now doesn't mean that someone won't someday soon. Just think of how every sickness used to be treated with "blood lettings" resulting in so many deaths and how far we've come since then. Anyway, glad to read someone else thinks these crazy christmas tree worms and alien theories aren't helping either. Was beginning to think I was the only that felt that way :)

Comment by cookie earhart on February 5, 2012 at 12:14pm

Hi Renee,

I'm not very computer savvy and all I know is I went to photos on my page and then followed the prompts and the pictures actually came here:) The site posted the first 6 pictures of my palm sore in backward order. Look at the 6th as the day it started, and the 1st as 10 days later when it fell off. I was treating it with MonoFoil and I cannot believe what relief I have gotten in just 8 weeks. If anyone out there can help Renee with the specifics of the pic downloads, please do. Looking forward to seeing them Renee.

Comment by Renee. Coffey on February 5, 2012 at 10:43am

I have alot of pictures of my legs, and body lesions on my computer files from months ago, still have all of them and more. I would love to put them on the site, can you tell me how to do this and I will. I also wish I had a picture of myself (without others in it) to do the same, I will try to do that also. Just tell me how to download my pics and change my picture to my blog page.  Thank you.  Renee C

Comment by cookie earhart on February 5, 2012 at 9:48am

Bless the ones that don't have lesions. I agree we are here to help. I have posted pics and info on how quickly MonoFoil is helping me and you would be surprised how many are trying it. We will post our results within a reasonable amount of time. I suggest if anyone is within traveling distance of Marion, Indiana, they make an appointment with Dr. Economan, 765-664-4900. He is a great doctor and wants to help morgellons sufferers. My point is, if those huge samples are coming out of somewhere, there should at least be a spot to show where. But I only know my disease, I don't respond to others posts of what has helped them, who could do that? Who could say what works for someone else? Just research on your own, try different things, and God Bless us all well.

Comment by Lucie E. on February 5, 2012 at 9:05am

Hi,

By the way, not all of us have skin sores! Are we just going to discriminate against the "lucky" ones among us who only have the crawling, biting, itching and bugs in hair sensations? There are alot of us who don't get the sores on here and you would be surprised to know which ones. Some of the most helpful ones among us get no sores at all. That said, our lives are no less a living hell because of this thing. We have rights too in case anyone seems to be forgetting that. We are not here to turn against each other but to "help one another" as Renee pointed out. Again, one sure way to sound like a "bunch of crazies" is to start going paranoid on each other.

Reply to:

I agree it sounds like a bunch of crazies here. I think we should all be required to post pictures of our actual skin, not junk taken from who knows where. What good are samples? we always have more and theres no need to save them. They are toxic my doctor said. So post our pics of our skin, show we really are sufferers, not just someone looking for somewhere to be a star poster, show pics of improvement if someting helps, pics of consequences if something doesn't. I haven't seen a lot of those on this site. Just talk and samples. geez

Thank you,

L.

Comment by Lucie E. on February 5, 2012 at 8:41am

Hi,

As much as I agree that all the wild theories on here blow our credibility to heck, NOTHING blows our credibility as much as statements like the quote that follows. How about some good old government conspiracy paranoia to really make us seem like nutters. People make wild theories because they need to feel like they understand and somehow control what's going on with them. The doctors probably misdiagnose us with Delusional parasitosis for the same reason: a desperate need to understand and not feel powerless. It's human nature, they fall back on any semingly plausible explanation no matter how unlikely sometimes, because it's just more reassuring to think you understand what's going on around you. You may label me a government spy if you wish because I don't agree with you on this but I think it sounds even more insane to think that there are spies planted on our forums to monitor?! That said, I may not agree with you but I do agree that you have a right to free speech as do I.

"I am just tired of people coming up with different explainations each week...for why we have Morgellons. Does anyone agree that is sounds crazy that one person is saying it's from the Christmas Tree Parasite and has great conviction. Then, another comes on-line and is positive it's an Alien Invasion. Does anyone know how badly this blows our credibility? I am starting to wonder if the Government isn't planting people on-line, to confuse everyone."

N.B.: I do, however, agree with Renee that we are here to help each other out and I've lately gotten a few good tips from people who have said they were healed. I will be posting them on my blog once I've tried them out.

Thanks,

L.

Comment by Pattie on February 4, 2012 at 2:34pm

My Renee - I agree with you 100%.  It's funny you would also think that there are ppl. on all these support sites acting like they have this - but are really just monitoring what's going on and trying to toss rediculous things out to make us appear less credible as a whole.

I would LOVE to gather a huge group of us together and storm the CDC or Capital Hill.  I've hit the Hill before doing some lobbying back in the day when I could actually work!  It would be priceless to see the looks on the faces of those ppl. seeing hoards of lesion-filled ppl.!!!  That'd be the most fun I've had in years!  I think hitting the CDC would be the most fun!

However, I just read the other day about the NIH absolutely, positively knowing that this crap is real.  Someone's family member somehow got hold of the 3 genes that are apparently present in the ppl. who get infected with this.  So when the family member of a sufferer googled Morgellons and the Genes, they came up with a letter from the NIH.  It supposedly was NEVER meant for the public's eyes.  It gave phone numbers to call, so they called it and once the receptionist found that it wasn't a doctor on the other end of the line, she immediately said that the site was incorrectly put out there, and within a day it had been deleted, as well as every other place where it was cached.  But the woman's post that I read already had it saved somehow (can't remember) - and she posted it for all to see.  I guess the NIH stopped monitoring since it's been some 3 years.  Whatever.  No surprise, right?

We all KNOW it's a government coverup big time.  If I could have but one wish, it would be that every single solitary person involved in this, from the government agencies to the doctors who have treated us like trash, would be subjected to our pain for just a few hours.  I'd never, ever wish anyone to catch this for real - I would just LOVE for those ppl. to just have a taste of the pain, then go back to their normal healthy lives.  (Obviously, nothing but a dream - but it sure would be nice to see some of those bastards squirm in agony.  Maybe that'd take them off their high horses. LMAO  (I know I'm being evil right now - it'll pass) LOL.

Love you! <3 Pattie

 

Comment by Renee. Coffey on February 3, 2012 at 11:23pm

For sure, I think there are people on this site that probably don't belong and have been hired by goverment to say such things sometimes. They obviously know the things we do to get these things out of our bodies, and how we feel about drs that don't do shit for us and we do everything for ourselves, and take herbs and vitamins etc. The goverment and other people that say that this doesn't exists know everything about us, I wonder where they are getting all there information from.

we need to keep that kind of talk , aliens, etc out of our talks, We need to be creditible.  This is real, and a nightmare for all of us.

Yes, I think this disease is everywhere from water, air, plants, oceans, anything you eat, breath and touch. Some people are immuned to it, some are not, or just don't have the symptoms yet, but, have it.

Who cares how we got it anymore, The focus should be HOW TO GET RID OF IT, AND HOW TO SURVIVE DAILY.

WE ALL NEED TO COME TOGETHER AND HELP ONE ANOTHER, AND FIND DRS TO HELP US.

Renee C