Comment

Comment by Sherry Taylor on March 7, 2010 at 4:34pm

What a wonderful blog G Alicea...you have helped a lot of people with this.
do you know anyone with good organizational and computer skills that could help with the resource organization to make it easier for new people like Mel's site has done? I'm so glad you are on the planet. Sincerely, Sherry

Comment by Sherry Taylor on March 7, 2010 at 4:26pm

Dear Evelyn B Elaine,
This story is multipying exponentially. the insidiousness of this syndom is... to outsiders it doesn't look like anything..and they can't fell your pain.
Welcome to this site..i don't run it ..just blog on it..lots have work has been and continues to be done..but it takes many months of research to find out..mostly on the net. Doctors, dermatologists, infectious disease specialists, ER docotrs have all been brainwashed that Morgelons is "Nothing" or delusional parasitosis. Your'e quite right this isn't true...and there is something "mental" going on here. The American Journal of Medicine would be good..but read all the background info first to see why it hasn't happened. GMO are implicated, agrobusiness, scientists experimenting with gene splicing to control pests(that backfired didn't it?) and clean the environment..ie water, as well as reduce chemical pest control..has created the next epidemic which the powers that be that could amkie a difference...are blind to. There is some talk of germ warfare..bioterrorism, nanotransformation, and plots. I personally thing the worm has turned and the insects are attacking us..we messed with them at our peril..see the Lyme community stuff re the genetic structure of the borrelus bergdorfi. You will get a crash course on organic chemisty in the process.
This stuff is transmitted easily through air, water, soil, and on things. I'm freezing(for 3 days..-4 centigrade) the card I'll mail to my daughter for her christening..she's turning Catholic for her new husband. Sincerely, Sherry

Comment by G. Alicea on March 6, 2010 at 5:27pm

E, I hadn't checked online in a few months about M since it was always the same search results...DP, MRF, etc. When I checked two weeks ago, an explosion had occurred and there was plenty to choose from. Mostly I wanted to talk to others experiencing what I was, although I had four different doctors diagnose me with M, including a psychologist (she was the first one).

As far as publishing, there's no shortage of research and findings published online. Since the CDC is so reluctant to admit what they know to be true, (in 2008, they actually had a website devoted to this monster disease, but pulled it when patients began calling them), other medical professionals are jumping on that bandwagon. However, know that most doctors who insist when the CDC recognizes Morgellons as a real disease so will they, they're saying that to appease patients. My rheumatologist of three years said that to me whenever I brought up new symptoms I was experiencing. When the CDC recognized M as "real" in July 2009, I began a conversation at my next visit. He rejected M and CDC findings. I tell you this so you can be prepared to do your own research to find out everything you need to about this monster, i.e. latest research findings, how to deal with it from a practical and medicinal level, talking with other Morgies on this site and others. I've always believed that the more information I have about something affecting my life, the more I know, the less I fear. However, it's a fine line between knowledge and having so much info that it scares you, so know when you have enough of it to sit back and sort it out in your mind, evaluate how you can use it to help yourself and those you'll meet who are ignorant and close-minded.

Morgellons is a scary disease, and you can't ignore this fact. Every day I live, I struggle with continuing the battle or just giving up, so I spend lots of time talking to God. Based on everything I've read so far, (this week I spent over two full days, one without sleep, online learning all I could), the pieces of the puzzle are rapidly being fitted, but we're a long way from helping sufferers with a real cure. You'll find tons of ideas from other Morgies on how to lessen the affects or even cure yourself, but don't let it overwhelm you. Just gather as many options as you can, then make a list of those you think will help from the most to minimal and go from there. Sanitizing your environment is particularly overwhelming, at least for me, since it's a full-time job and I have neither the resources to hire help or the physical strength to do it all myself, but I can only do what I can do and no so I don't beat myself up over missed steps. This disease does enough of that already.

E, I hope I've been some help. I'm grateful for this site since I've made some friends and get to contribute to others in the same boat. I wish you well; remember you're not alone. As for me, I still don't know how my life will turn out but I also make a sincere effort to be grateful for whatever positive comes my way, regardless of how minimal it might be.

God bless you.

g