Comment

Comment by Pattie on February 10, 2012 at 4:42pm

Hey, Denise. 

Yea, I guess we all knew what the exact outcome of that bogus CDC study would be. 

This disease gets more bizarre by the day, it seems.  And I, too, find that once I start feeling as if I can live with this... it tosses another curve ball. 

I am happy to report, tho, that Renee's suggestion on soaking in pool salt twice a day has given me some pretty amazing relief.  I've had this for eight long years, and I am beyond floored at how the pool salt has healed the lesions on my face.  When I started zapping a few weeks ago, my face broke out.  But hit with the salt soaks, the lesions are almost completely gone!

I don't hold out hope that we'll find a cure in our lifetimes - but I am positive that we will all find ways to cope with whatever symptoms we're faced with.  God is in charge here, so no matter what comes our way - we've got God on our side.  I find peace in knowing that!  I refuse to give this crap my MIND... it's enough that it's taken my body!  Since a lot of ppl. have noticed that fear makes things worse - I'm doing my utmost best to just take the bizarrity of it all in stride.  What more can we do?  Thankfully we've got each other - and to me, that's a LOT!

God bless!  <3 pattie

Comment by Denise "Lint Brush" on February 10, 2012 at 9:14am

I knew that they would do this. They want us to remain to look and sound crazy. We all know the truth oh so well as we live with this nightmare on a daily basis. So as I knew we the people who suffer must find through our own resources and our own studies on our disease where a possible cure lies. I really am sad to say I don't believe there is a cure as this very clever and very evil disease evolves just as you find relief, M finds a way to make us suffer more!!

I know for a fact that when I am in a full blown episode that my body becomes septic and I go to the hospital for IV antibiotics, this S.O.B. of a disease actually calms itself and becomes as if it is in a dormant state. As if it "KNOWS" it is under medical observation. This disease actually thinks people!!! I have also become intune with it. I can feel it in a mental way communicating with me at times. I wonder if any of you have experienced this. Let me know. Denise

Comment by Lucie E. on February 6, 2012 at 12:18am

I do wish people on here would NOT paraphrase my posts but rather QUOTE them PROPERLY. Obviously they misread them completely. Hence, the usefulness of QUOTING instead of paraphrasing or interpreting. I'm sure others who read them can make up their own minds and do not need to have it pre-chewed and twisted for them. To those people you know who you are.

Thank you,

Lucie

Comment by Renee. Coffey on January 29, 2012 at 3:48pm

I am with you patti, i have been alot of research again on the cdc, and other sites. found out alot again, wrote down alot of questions for them to answer. i will type up and figure out what to do with it.

I was thinking exactly what you said on the way to church this morning.  I can bet my life, that they do not want to be in the same area as we without gloves or being covered up from head to toe.

Why shouldn't we all meet at DC, OR ALL THE CDC BUILDINGS??? WHAT IS WRONG WITH US FIGHTING FOR OUR RIGHTS, OUR LIVES.???

 

CAN YOU IMAGINE IF IT IS CONTAGIOUS AND WE ALL DECIDED TO LISTEN TO THEM, AND STARTED GOING OUT AND LIVING OUR LIVES AGAIN. How many people would freak out that they were going to get it from us...

If it isn't contagious how does whole families have it? Where they in the same place that exposed them to it? Eat the same food? Breathe the same air? touch something the same at the same time????

Funny isn't it, that the CDC spent 350k, 30.000.00 on SAUNAS, QUIET ROOMS, MOOD ENHANCERS , for their own employees, but, they were supposely working day and night for yrs on the morgellon's testing. GIVE ME A BREAK..... I have emailied myself all these sites and posts to send to my family and friends that do believe me and have seen things abnormal coming out of my body and me freaking out at the beginning.

I have alot of samples left on lint rollers, in a tupperware container from almost two yrs that i haven't even looked at, been under bed. for the last two days i have been trying to get the courage to open it and see if they changed in appearance or anything for that matter. Scared to even open it.  i remember the first month of intense itching and specs coming out like crazy, i had my boyfriend look at my upper back with magnifying glass, he said it looked like black heads all over my upper back....

Basically, I think we should all type up questions for cdc, and put it out their for public and our own benefits.  maybe uninfected people will start wanting the answers too, and question that maybe this is going to effect them so day down the line. 

Comment by Pattie on January 29, 2012 at 1:19pm

Hey, Renee,

I have sorta been wondering how it would be if we stormed the CDC's main office - or hit the bricks in DC. However, a lot of ppl. feel that we're contageous - and proably wouldn't want to be near other Morgies for fear they'd catch more shit.  Ppl have been sending letters to their Congressmen & the CDC - but I'm willing to bet that our letters are flat disregarded, if read at all.

It would be pretty funny to have a huge picket line in front of the Capitol or something.  I bet the cops would even be afraid to get too close... same as all the doctors who refused to come close enough to even examine our lesions.

I'm out of decent ideas on where to move from here.

<3 Pattie

 

Comment by Renee. Coffey on January 28, 2012 at 11:31pm

sO VERY true patty. Also, when they said the fibers that are coming out of our skin ( like that's normal, they didn't catch what they were actually saying, lol)were cotton and something.  How funny, i guess everyone has cotton fibers coming out of themselves...haha.They also said they spent 600 thousand on testing, they meant the people with morgellon's insurance company paid for the testing. I can defineatly rip holes through there statement.

And, when it was on fox news, they didn't even ask questions to this cdc guy. It was like they were told before hand that they wouldn't answer any questions, just speak about the results they came up with...

I hope someone out there will do something about this, even my friends say, well yeah, they don't want a mass hesteria going on, so they are going to lie about it.

Also, i don't have any scratch marks, i don't pic at myself. I would feel a bite, pinch, etc, then itch, after something came out and made a lession, Why is it that the same lessions i have had for two years, are still there and don't go away.'

they act like we are tweekers and pick at ourselves.

i would really love to put them in there place. Maybe we can write all the question we have them and send it to news channels.

maybe i will start working on that asap.  Someone has got to help us. Or maybe we can pay for an add in the newspapers. Something" Anyone out there that has some suggestions????

Comment by Pattie on January 28, 2012 at 11:04pm

I'm with you Renee.  tho I havn't read anything here about ppl. thinking we should just slink away into the night.  I think you're right, they're trying to avoid mass hysteria.  However, like you said... it's a little late for that - as ppl. google their symptoms and VIOLA, they see pics and read blogs that fit their symptoms to a "T".

I still find it amusing how anyone with a half of a brain cell would honestly think that every single one of us is "simply" suffering the same delusions.  Even funnier when ppl. post their pics, and even your family thinks it's YOUR pictures that have been posted - when it's not.  I mean, obviously we're all delusional - and we've all picked at our skin in such a way that all of us have similar scarring.  And when ppl. google their symptoms (which OBVIOUSLY CAME FIRST) - that's when they happen on M sites, not the other way around.

I mean, to me - I just don't get how they think we're mimicing the stuff we've read on-line.  You have to type in symptoms first in order to be brought to the conclusion that you have M.  How did we all decide on what symptoms to google if it's all in our heads?

Utterly rediculous!

At least we have each other!

Love you MR!! God bless!  <3 Pattie

 

 

Comment by Renee. Coffey on January 28, 2012 at 10:38pm

I think with all these people getting morgellon's like crazy lately, and surfing the net, and all the reports from drs office, THE GOVERMENT AND CDC are getting quite scared that pretty soon there will be a major panic attack from the world. I think that's why the finally said on air and all news sources that it turns out to be all in our heads. But, they have been saying it, obviously people aren't buying it, because theres alot of people getting this disease and looking it up for themselves or loved ones.... I am sorry it doesn't take 3 yrs or more to do testing on 100 people especially if the goverment was involved. they are full of shit. 

They say what people want to hear, that it's not contagious. So people won't freak out. I think it's alittle to late for that.

 

Someone said on the site, that if we go public that it would probably hurt us more, than help, people would treat us worse.

I DON'T THINK SO, we are already treated like FREAKS, OUTCASTS, LEAPERS, CRAZY LOONEY'S, What's the difference besides getting the truth out for ourselves and others.

why should we just lie down and take it like we have been doing.

HOW ABOUT WHEN THEY TAKE OUR BENEFITS AWAY THAT WE ARE RECIEVING, OR WON'T BE APPROVED FOR BENEFITS DUE TO THE SYMPTOMS ALONE WE HAVE.

HOW ABOUT THEN???? WILL EVERYBODY DO SOMETHING THEN, WHEN WE DON'T HAVE A POT TO PISS. WE ARE ALMOST THERE.

I FOR ONE, WANT TO DO SOMETHING ABOUT IT, NOT JUST LAY DOWN AND GIVE IN AND CRY....

Comment by Pattie on January 27, 2012 at 1:32pm

Yea, I'm with you that it's got to come from a lab.  Whatev... at least we have each other!

Comment by Sheri' Spano on January 27, 2012 at 1:13pm

I believe this will come to a head, and the lil puppets will be told to say that this so-called condition is a multitude of various conditions and diseases caused by other factors including ourselves. This crap didn't just drop from space. I'll always believe that it was mutated together within a lab.

                     Just my opinion,,,,,,,,,,,,,Peace,,,,,