Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Hey guys. I just made an appt. w/an Infectious Disease Dr. His receptionist said he's Lyme Literate. I can only hope this is true. She also said he is an NAETS Alternative Medicine practitioner...
Although I've just about totally lost all confidence in our fine doctors - I have to hold out some hope that this dude will be able to help me get a handle on these lousey migraines and chronic fatigue.
I'd live with the lesions no probbie if I could actually have a life!!
Well, I'll keep everyone posted.
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I JUST FOUND POST, IT SAYS IT IS WAITING FOR AN APPROVAL FROM THE BOARD TO SEE IF IT IS ALLOWED , I WAS BASICALLY, ASKING PEOPLE WITH MORGELLON'S IF THEY WOULD STAND UP AND FIGHT, AND THINK ABOUT US DOING A PROTEST AND RALLY AGAINST WHAT THE CDC, AND GOVERMENT IS SAYING ABOUT US, AND WHAT THE CDC MADE PUBLIC TODAY THAT IT IS ALL IN OUR HEADS..
I THOUGHT I put it on the blog page, but, it's on my page blog. just go on my wall page I GUESS, I will have to figure out how to put on regular blogging.
It's funny how, when people get morgellon's they don't even know what it is, they go to dr, and dr, hospitals, internal disease specialist, trying to get answers, they tell you scabies, mites , etc. prescription after presciptions etc etc. Then after months, you find out what it is, and OMG, YOUR NUTS....LOL. RENEE C
Comment by Pattie on January 26, 2012 at 8:08pm Hey, Renee.
I'm such a computer DOLT - why can't I find your blog??? Yea, the CDC can kiss our collective butts - right? So can Kaiser, as they are most definitely just as much to blame as the lousey CDC!
Yea, and I think it's pretty funny that, like u said - we all must've just decided that we're infested with, of all things - LINT? Sparkles? self-inflicted wounds (even in places we can't reach?). Utterly rediculous!!!
So let me know how to find your blog. <3 Pattie
speaking of CDC, they were on fox news this morning, and it's on yahoo internet. Saying it is all in our heads, is what there testing is showing. OF COURSE IT IS. WE ALL WOKE UP ONE DAY, AND SAID HEY, LETS PRETEND WE HAVE PARASITES, AND DUMP ALL OUR MONEY, AND LIFE INTO THIS HORRIFIC SCIENCE FICTION LIFESYLE..... anyway, I wrote a blog on my page, please read. I am dead serious about this, I hope everyone else is willing to do something about this goverment cover up. I have had it... Maybe one reason is us morgellon's suffers are treating ourselves now, and with herbs, vitamins etc. that helps, then spending our money on drs that call us crazy, and spending thousands on worthless prescriptions that they prescribe, they must be losing money due to it, now they want us to spend our money on head doctors and drugs. I have so many questions for them to answer, we all do. I alone can rip apart everything he said....
Comment by Pattie on January 26, 2012 at 11:20am Hey, Renee. I read that they only take Medicare, I think. If you have other insurance, they use a different lab that has compromised testing due to the lovely CDC making it nearly impossible to be diagnosed with Lyme. Yet another cover-up in an effort to keep us from long-term expensive treatment. YAY! lol
Good luck, and let us know how it goes. I really need to see if my insurance from the goverment pays for this test. Maybe I can put that on my daily list to do... lol
© 2012 Created by Dwayne Coots.
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