Morgellons Support Network

Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers

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Hello to all,

I too am a sufferer and thank God daily there are support groups and sites available regarding this terrifying monster. As a person working directly in the aesthetic industry, I asked for a voluntary layoff in hopes of getting to the bottom of this mystery that appeared to be changing every aspect of my life. Like so many, I went to several Physicians and experienced similar reactions. My former employer/boss is a Plastic Surgeon and witnessed the bizarre, unexplainable changes in my skin and many other (wonderful) symptoms of Morgellons.

What a relief after my sister discovered, copied and brought home information based on my symptoms at that time.

I immediately forwarded it to my past employer (who wasn't familiar or heard of this disease) and based on his observations, believed I suffered from this. Unfortunately, his office is in Indiana and I reside in Wisconsin!

I have experienced ALL the symptoms and identical debris found on various sites. Honestly, the more info obtained, the more fearful I become due to the seriousness of it.....THANK GOODNESS I have found somewhere to get relief!!

A few days ago while investigating (an almost daily ritual) for up to date information, there was a name and address listed for reference, for those searching Physicians familiar with this and thier locations.

After collecting the information I was after and went back to find this reference, it magically disappeared.

Again today - nothing.

Does anyone know of such a site or have info on this that could help me out?

Thank You,

-Paula

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Andrea Figueroa Comment by Andrea Figueroa on February 28, 2010 at 9:37pm
Hello, I too am searching for a Doctor who could help me. I think the CDC (center for disease control) a very slow orginization, it's better than nothing,the last time I called them I thought they had a list, or they knew where/how to start looking? Good luck I'm in So. California. Let me know if you find out, I will try and do the same. one thing you could try is checking the list of cookies in the internet options tab under the file menue, maybe the site installed a cookie?
diane baker Comment by diane baker on February 24, 2010 at 4:37pm
I know who can help. I suffered with morgellons for over a year. Doctors were useless. I went to a naturopath. She believed me and immediately ran all the right tests, I had round worms, tape worms, trichenella, toxoplasmosis, h pylori, yeast, overgrowth of bacterias, lyme disease and celiac disease. She has treated me for 4 months with only herbal medicines. Today tests showed that parasites and bacteria are GONE. I would like to see everyones suffering end. She can treat you long distance by sending the test kits to you to send to a lab. Alane Palmer,678-372-2913. nutritionallyyours.net. email Alanepnd@aol.com. She is a very nice person here in the Atlanta area and she saved my life.
Sherry Taylor Comment by Sherry Taylor on February 22, 2010 at 10:32pm
i just read that Joni Mitchel missed the Olympic opening because of a flare up of her "M". She said she has had it for 20 years! How is that possible? I have to be one of the people who gets rid of this..I can't imagine living like this..for the rest of my life...OMG. I am committed to us all getting better, how about you?
Most Sincerely, Sherry
Summer Morgan Comment by Summer Morgan on February 22, 2010 at 5:00pm
Paula, I wish you luck in finding the reference you are looking for....when you do, please pass it on! I'll keep my eyes open as well.....
Regards, Summer
Sherry Taylor Comment by Sherry Taylor on February 21, 2010 at 5:42pm
I do hope you find it again Paula..I have noticed sometimes things disappear fast on the internet...keep looking..everyone would like to get all the help they can.
Sincerely, Sherry

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