Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
I am not trying to complain. However; and usually a complaint follows. :) OK, no exception here...
I am just tired of people coming up with different explainations each week...for why we have Morgellons. Does anyone agree that is sounds crazy that one person is saying it's from the Christmas Tree Parasite and has great conviction. Then, another comes on-line and is positive it's an Alien Invasion. Does anyone know how badly this blows our credibility? I am starting to wonder if…
ContinueAdded by Pipster on February 2, 2012 at 4:41am — 7 Comments
Being told I am crazy, for an illness not understood
Feeling tired and hazy, more unsettled than I should
Running in different directions, searching for answers to heel
Feeling like my days are numbered...no this can't be real
Wondering if I am worthy, to be loved, held, excepted
Given all I can for healing...no repayment to be expected
Society cares not, to awaken, confirming this plague is real
Civilization is superficial,…
ContinueAdded by Pipster on February 2, 2012 at 3:44am — No Comments
Hey everyone. I just wanted to give an update since I started bathing in pool salt, and started zapping as well.
I was sorta holding off posting b/c I couldn't believe how much better I feel. I thought it surely had to be all in my head... but it's not!
I have suffered horrendous neck pain, migraines & chronic fatigue for about 8 years. I started zapping & salt-soaking last Friday. I Do wish I wouldn't have started both things at once, as now I don't know which…
ContinueAdded by Pattie on February 1, 2012 at 7:43pm — 2 Comments
bleach all your white laundry with hot water and then use flea and tick shampoo for all your colors and non bleachables it really does get them out of your cloths and sheets.spray your car vents with bleach and cover your furniture and car seats in wipeable heavy plastic or vinyl,( I witnessed myself holes in baggies where I kept a collection of black dots and fibers.) I bought huge rolls of plastic drop cloth sheeting at local hardware store and heavy vinyl fabric to cover the seats in my…
ContinueI was infected by a 2yr old girl in my home prek in May 2005 after her family returned from a vacation in northern california. She presented as scabies and I ordered her parents to remove her until she returned with a dr's note approving her to do so. Of course he prescribed quell she was out for 1 day . The mother in gross denial wanted me to believe her little girl was scratching her own back these were track marks NOT scratches (and between her shoulder blades ) ok lady. 3 weeks later the…
ContinueAdded by audd on January 28, 2012 at 12:25pm — 3 Comments
Dear people,
Thank God someone else has this prolblem. I have had it since 1989, I woke up in hospital after just giving birth. I always thought it might be some kind of reaction to the epidural. The itching gets unberable sometimes feels like your covered in bugs. I am just so glad that mabey I will get help for this in the near future I'm getting older now and the thought of scratching and digging in my 80's is not a pretty thought.
Added by Kathy Clark on January 27, 2012 at 12:15pm — 2 Comments
You Know It's Bad When...OR How About: Here Is Some Good News
Ramona via aweber.com
Hello Pattie,
After years of thorough analysis and research, the CDC has come up with this official statement on the condition we have come to call Morgellons:
(Begin quote.)
"...this condition appears to be uncommon among a population representative of Northern California residents. Skin damage from the sun was the most common skin abnormality…
ContinueAdded by Pattie on January 27, 2012 at 11:58am — No Comments
Hi,
I'm new here but I thought I'd share an article I read. I try to keep up on what is happening with Morgellons because I think Fibromites share a lot of the same symptoms. I always feel terrible when people get told it's all in their heads. It was the same for fibromyalgia sufferers when we started out. Blessings to you all and know that a lot of us out here do not subscribe to the CDC study.
…
ContinueAdded by Sherry Anderson on January 27, 2012 at 11:39am — No Comments
Hello ALL,]
I woke to the new channel FOX NEWS, and low and behold, a CDC SPOKESMAN was telling the test results on us MORGELLON'S PATIENTS. AND HOW 4 OUT OF 100,000.00 PEOPLE HAVE THIS DISEASE. 84% of those people, only 77% reported the disease.
He said the mind is over the matter. we are crazy, they have spent over 600 thousand dollars with testing. Funny though, the testing was of 100 patients in california, kaiser hospitals only.
They did say though most all of them…
ContinueAdded by Renee. Coffey on January 26, 2012 at 3:28pm — No Comments
I'm sure that NONE of us will be surprised to hear that the fine folks at the CDC have come to the conclusion that we're all simply suffering from DOP! Surprise, surprise! Right?? LOL
My brother just sent me a link regarding Google and M. It seems that M is the fifth most researched word on Google these days. Hmmm. I guess our delusional state is spreading. So, so sad, the state of our medical care these days!!!
All we can do is to try to strengthen our immune system &…
ContinueAdded by Pattie on January 26, 2012 at 1:37pm — 8 Comments
Hey everyone,
My brother just sent me a link to a site - Stopskinmites.com. It seems to be pretty thorough in how to clean up your environment for good.
I personally don't have any mites (THANK GOD!!!), but I know a lot of ppl. with M do. Just thought I'd pass it along. Hope it helps!
<3 Pattie
Added by Pattie on January 24, 2012 at 8:28pm — No Comments
Hey everyone. Since I've found such a great home here with no back-biting and arguing :)) - I've decided not to be paranoid to use my real name.
So - I'm not Clara anymore - I'm Pattie.
Thanks for all the encouragement & kind words. You all make this life much easier to endur!
God bless us, one and all!!! <3 Pattie
Added by Pattie on January 24, 2012 at 6:30am — 4 Comments
perusing the internet late last night, or was it early this morning? - anyways I ran across a blog written by some very smart people who have tracked the so called "planet X" as it makes its alleged 3654 year orbit through our solar system. As sometimes happens with internet surfing, one site led me to another, then another, until finally I was at another planet X trackers site.. and it was there that I found something quite interesting. So, without further ado…
ContinueAdded by Terry Adams on January 23, 2012 at 7:56pm — No Comments
Hey guys. I just made an appt. w/an Infectious Disease Dr. His receptionist said he's Lyme Literate. I can only hope this is true. She also said he is an NAETS Alternative Medicine practitioner...
Although I've just about totally lost all confidence in our fine doctors - I have to hold out some hope that this dude will be able to help me get a handle on these lousey migraines and chronic fatigue.
I'd live with the lesions no probbie if I could actually have a…
ContinueAdded by Pattie on January 23, 2012 at 4:10pm — 6 Comments
Okay. I guess i should be really happy that I have NO lesions anymore... but the top of my left index finger is about to drive me absolutely BATTY!!!
I put Neem on it, put clove oil, put cinnamon oil... hell, I'd put a novacaine injection in there just to stop this incessant itch!!! (story of our lives - right??)
I guess I should quit complaining - at least it's not my entire bod itching. :))
I ordered a zapper, Terminator II, yesterday. I seriously can't wait to start…
ContinueAdded by Pattie on January 23, 2012 at 11:29am — No Comments
This video shows an entire family and dog suffering. People are being poisoned including pets
I found this in very poor taste. My heart breaks and this video by another person is a nightmare;
MORGELLONS FAMILY CHRISTMAS
http://www.youtube.com/watch?v=4uHvHUiRGtw
Uploaded by …
ContinueAdded by Anita on January 22, 2012 at 5:30am — No Comments
We need someone that sends a form letter, such as the one Sherry sent me describing a simple overview of what disease we have based on one's symptoms. Some people have only the white fibers for instance.
An introductory letter stating a few prominent names, ideas, research and clean up.
I understand there are a variety of vectors delivering this into our systems. Mites, Springtails, ticks, fleas and maybe mosquitos.
The difficulty many have is finding an organized…
ContinueAdded by Nik the Brick on January 19, 2012 at 7:44pm — No Comments
anyone feel like this other than me?
My tale has a beginning but is missing an end
Listen quite carefully to this message I send
This choice that I made I'll forever regret
That one fateful night I'll never forget
On holiday in Ireland
I chose the wrong bed
Where a cold lifeless body had recently…
Added by gordon m. on January 18, 2012 at 5:28pm — 4 Comments
I am not sure if this is the correct way to blog here...
I am getting worse and worse why would my swet turn to parafin? this is a nightmare .
My husband has been so good, but this has put him over the edge
if I put neem oil on an area, it gets into the blood streamto my eyes-he says I am rubbing them-I am dabbing at the tear-this time it was the neem..must be allergic, but even peppermint candy quickly made my eyes run, and red.Dr appointment ,derm..thursdays…
ContinueAdded by Katie on January 16, 2012 at 11:33pm — No Comments
"For God has not given us the spirit of fear; but of power, and of love, and of a sound mind." - 2 Timothy 1:7
I've chosen to quit looking at the problem, and start looking at my solution. I've started to read the bible every morning, and renew my mind with positive thinking and healing thoughts. It's helping tremendously! God bless us, one and all! <3 Clara
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