Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Scabdraggr commented on Mary Jones's photo
K replied to Mary Jones's discussion SEX - Morgellons has no boundries when it invades a body! in the group voiceResearchers - We Want to Hear Your VOICE!
K replied to Mary Jones's discussion SEX - Morgellons has no boundries when it invades a body! in the group voiceResearchers - We Want to Hear Your VOICE!
Sherry Taylor commented on Mary Jones's photoAdded by Mary Jones
HI SHERRI - and all my friends on this wonderful, caring network!
Steve and I are almost out of this house, we are slowed by the cleaning of everything before it goes into the POD or trailer. The eggs in evey joint or indentation of our wood furniture and is HELL to get out...I have found that (and don't tell my Steve) Lime Away in a green bottle will desolve the eggs and makes the transparent hairs appear; I can't really tell if it is killing them but it does stop them from…
ContinuePosted on June 11, 2011 at 5:41pm
I was using 90% Alcohol, Purell Hand Sanitizer, Shampoo & water to clean my chin for several days and I touched my chin with a Klenex tissue that had both the alcohol and hand sanitizer and held it on the the bottom of my chin
and this fell out (It flattened after being sealed between 3" tape):…
ContinuePosted on March 28, 2011 at 6:14am — 2 Comments
Those nick knacks picked up over the years that remind us of some moment in the past or the things passed down from our parents, parents, parents etc. that sat in their place for years became the hiding place (or home) for what we call Morgellons. The papers that piled up...they were going to be processed soon but damn it when another pile formed that was more relative to the current situations that WILL be gone thru as soon as my body gives me a break...no REALLY I was going to get through…
ContinuePosted on March 16, 2011 at 4:31pm — 4 Comments
The antibiotic I am suggesting does not prevent damage but it does stop the pain.
The first time my eyes were invaded was THE SCARIEST day I experienced over any other body part's invasion; my second is my brain then my teeth and nose...losing any of these would be devastating and permanently disfiguring. I…
ContinuePosted on November 26, 2010 at 7:52am — 2 Comments
DON'T FREAK OUT - FIGHT! I dont know of any cleaning product that will kill them but I know they can't hide on surfaces and it makes them pop up from tile & wood when I use my torche (Flame Temperature in Air (ºF) 3450-3500) and they do disintegrate. There are good products that help (see my blog on help) but nothing for inside us and our environment; they must be addressed at the same time.
These pictures were…
ContinuePosted on October 15, 2010 at 6:46pm
Denise "Lint Brush" said…
Reese said…
Sherry Taylor said…
Sherry Taylor said… The trip was generally awful..but I did enjoy the western states again. Gordon worked all the time..I packed and unpacked the car most of the time. We found cheaper and cheaper places until he finally said "maybe this is too cheap" ha ha ha.
It was easier than going there though...he said he really liked staying at your place..which surprised me.
He's still really mourning his wife deceased 7 years...and basically dealing with denial about all the changes re income, his health(hip is really bad..needs a hip replacement which of course he won't do. He rejects me every week at least...I'm slowly making some progress re sessions and feeling things..but he quits regularly.,.no commitment..still I won't give up..but I'm not holding my breath either. I'm hugely in debt from paying for the move..7'l thousand..and Gordon's vague offer of "help" was just that..not much in concrete ways..although he seems to like to buy the cheap things like soap, baking soda and apple cider vinegar..which I need. He's generous re his tithing or helping certain people..but I'm too close to him for that. I try not to take it personally..but "cheap bastard" does come up on occasion....I'm so tactful.
I'm starting to get the doctor thing together..now a really good naturpath would be great. I have to organize all the info for the doctor.a big job..it's in the freezer as we speak.
Got to find a new place to live..nicer, quieter, prettier, and cheaper.
Love, Sherry
Sherry Taylor said… Oh well I've been breaking that rule..I'm afraid I would be living in the bathroom...but that is a good idea.
Sherry
Sherry Taylor said…
Sherry Taylor said… Hi Mary..sherry here..I became a grandma yesterday..baby and mom doing well...a girl Celeste, 6lb 9 oz 19inches pictures will be up on face book which I need to learn how to use better.
How are you? Moving is so traumatic.
I think of you often.
My new place is cleaner..than Gordon's. i'm now getting severe reactions to his house and car..oh, dear.
Take care write soon..a whole bunch of people are thinking about you with love, Sherry
mery seya said…
mery seya said… Mary,
I have already moved. We were n the process of buying a new house just when I was in the process of self diagnosing Morgellons. S the new house is now accumulating Morgellons fibers. Mu daughter, who wants to buy my other house, the family home, has been visiting that empty house, monitoring Morgellons stuff. She doesn't see any new stuff (fibers, milky drips on mirrors, black specks). She thinks the house is safe. What do you say?
Also, I was amazed at you instructions with the propane. Does this actually work? I thought the people at Oklahoma State tested the fibers and couldn't get a temperature high enough to destroy them. Are you familiar with their work?
I appreciate your willingness to jump in and help. It makes me crazy to think of my grand childre growing up in a house that is infected with Morgellons.
Blessing on you.
Jan
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