Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
maybe i do need my head examined, has anyone used an online doctor, i have an offer for only 1198 dollars gets me some lab work,not blood and an evaluation and a dietwhat do you reccommendthe…Continue
Started this discussion. Last reply by Scabdraggr May 17.
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hellonearth replied to Sherry Taylor's discussion this is what we are doing this for
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Sherry Taylor said… Hi ..hey that's a really good name..that's how I feel a lot re the amount of skin care and housework I have to do now.
I'm not that good with the camera..but I appreciate those who are so thanks so much.
I wish I had a good fix for this. Things seem to get really bad right before bed when I'm tired. These white things come out of my skin..sometimes like threads..worms. My eyes really hurt. The best I can get is "what do you want from me" from My doctor..so I have to come up with the ideas and argue for them.
To top it all off they absolutely don't believe you. It's the source of this that needs to be gotten to and eradicated..not a panacea for the symptoms.
I feel like a voice in the wilderness..here it's hell on earth...over there in doctor land
It doesn't exist.
How can there be such a big gap?
More questions than answers.
I will not loose faith in the good of mankind however..
Despite lack of evidence in this case of any caring or compassion.
I remember being treated with a lot more caring when I had allergies in my early 20's.
What happened?
I'm glad some people documented this in the Gulf States.
This has something to do with a bacteria and oil based soot particles. Ammonia will dissolve it..it just seemingly shows up everywhere..how does it travel? Black mold? Slime mold?
How did it penetrate our bodies..I feel like a colander punched with holes from little worms and white mealy bugs..popping out of my skin..and black particles too. How did I get so polluted..plastic? Is a super- man- made bacteria designed to eat up oil eating up my lipids? Why after 10 years of high cholesterol..do I all of the sudden have low cholesterol..I tried the diet thing to no avail for years.
Meanwhile my bones are getting thinner.. despite vigorous exercise most of my life..and my skin has aged so much..this is not a happy disease...you feel so miserable..you can't sleep.
DE in the bed helps a bit..the hardest thing is the isolation..or even harder knowing you have given this to someone..someone you love...any human being really doesn't deserve this.
Just a tribute to the apt name.
Thank you
I try to be positive..but sometimes I'm just not there..please forgive me..I will get back up.
Sherry
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