"I have a regimine I have been trying and I am virtually symptom free I feel great and have NOOO!!! skin leasions I still have sme paticles that come out of the skin but only when is use essenial oils to elicite them out of my skin after a shower…"
Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
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Ty
- 39, Male
- Duncans Mills, CA
- United States
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Ty's Page
Latest Activity
Ty posted a blog postChecking In With Everyone
I know that I have not posted in a while, but my wife and I are doing ok. Of course are still plagued by this god awful disease but all in all doing a little better still. I see some of you guys have been doing better and some worse. I am sorry to hear from you guys that are suffering more. Hang in there, it gets better!I have found that we seem to feel better in the summer than in the winter so hopefully things will be picking up soon. See More
patricia sanborn left a comment for Ty"sometimes I think I will go crazy, today is one. sorry for not being positive, bad day, but Hi hope you are doing ok
Love all you sufferers"
Ty commented on Kelly Kohler's blog post White granules and lots of head scabs..."I have trouble with head scabs too. We all have trouble with people not believing us. I know that you are not insane or dilusional."
Ty commented on Michael L's blog post Hello, new here. I'm glad to meet you, but I'm sorry about the circumstances!"I started having those itchy spells a lot too."
Nanny commented on Ty's blog post In the eyes"A few of my friends stated that any eye drop contains Sulfacetamide will stop activities in your eyes."
Joanne C commented on Ty's blog post In the eyes"I use eye drops that contain borax. I use to have them in my eye but they have moved on. Optrex for sore eyes has borax in it."
Rene M. commented on Ty's blog post In the eyes"We use saline drops in the eyes. They help with the movement"
Ty posted a blog postIn the eyes
I am freaking out a little because this morning I started feeling them in my eyes and this has not happened to me before. What do you guys suggest for in the eye?
Mary Jones left a comment for Ty"Hey Ty, did you find time to add any pics yet? I have added several - the hair from 2007 needs to be seen at full size or the worms can't be seen. Those pics were taken with a hand held microscope from Sharper Image (out of business) and I have…"
sam left a comment for Ty"hey can u add me..I just caught morgellons disease and it sucks man..I remember my life being normal full of hapiness..i miss those days, I just want to feel better..anywayz send me a friend request..n do u have aim or yahoo so we can share a…"
Ty's Blog
Checking In With Everyone
I know that I have not posted in a while, but my wife and I are doing ok. Of course are still plagued by this god awful disease but all in all doing a little better still.
I see some of you guys have been doing better and some worse. I am sorry to hear from you guys that are suffering more. Hang in there, it gets better!
I have found that we seem to feel better in the summer than in the winter so hopefully things will be picking up soon.
I see some of you guys have been doing better and some worse. I am sorry to hear from you guys that are suffering more. Hang in there, it gets better!
I have found that we seem to feel better in the summer than in the winter so hopefully things will be picking up soon.
Posted on March 24, 2010 at 12:57pm
In the eyes
I am freaking out a little because this morning I started feeling them in my eyes and this has not happened to me before. What do you guys suggest for in the eye?
Posted on May 12, 2009 at 8:02am — 3 Comments
Thanks
Thanks to all of you for helping give me suggestions on what I could use in the nose. They all helped and it was really good to know that people cared.
Posted on May 6, 2009 at 9:08am
Bad Day
I had a pretty bad day today. I was feeling things all day. Especially in my nose.
Posted on April 25, 2009 at 11:15am — 6 Comments
Morgellons Research Foundation is asking for help.
I received a monthly newsletter from the Morgellons Research Foundation this weekend. Seems they have a new person on the board of directors. I hope this person is able to make a difference. They are also asking that everyone contact the Office of President Obama to let him know that research needs to be done on this disease. Here is a copy of the newsletter that I received.
Topics:
1. Louise Mandrell
2. Website
3. Contacting President Obama
April 2009… Continue
Topics:
1. Louise Mandrell
2. Website
3. Contacting President Obama
April 2009… Continue
Posted on April 11, 2009 at 11:15am
Comment Wall (4 comments)
- At 1:55am on September 28, 2011, entrprznwmn said…
- I have a regimine I have been trying and I am virtually symptom free I feel great and have NOOO!!! skin leasions I still have sme paticles that come out of the skin but only when is use essenial oils to elicite them out of my skin after a shower Anyone interested let me know and I will feel you in
- At 1:04am on August 12, 2009, patricia sanborn said…
- sometimes I think I will go crazy, today is one. sorry for not being positive, bad day, but Hi hope you are doing ok
Love all you sufferers
- At 5:35pm on May 9, 2009, Mary Jones said…
- Hey Ty, did you find time to add any pics yet? I have added several - the hair from 2007 needs to be seen at full size or the worms can't be seen. Those pics were taken with a hand held microscope from Sharper Image (out of business) and I have videos of the little circles being created and added to the line of others.
I slept 14 hours last night and I'm feeling pretty good today! I found some wrist bands "Lentek Bite Shield" that may be detering the parasites. They are Deet free and I have them on my wrist, ankle, in my hair, on my waist & shoulder. This morning when I woke up my belly was lower than my boobs, something I haven't seen in months! My waist of my pants have about 3 inches of space and I can pull the legs out about an inch. I hope it keeps getting them out of OR off of me. I'll pot a blog if they stayb away. I wish others would try them too so the results could be verified.
- At 1:13pm on May 7, 2009, sam said…
- hey can u add me..I just caught morgellons disease and it sucks man..I remember my life being normal full of hapiness..i miss those days, I just want to feel better..anywayz send me a friend request..n do u have aim or yahoo so we can share a discussion abt this thing..I will really appreciate it..thx.
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