"I AGREE,THEY FEEL AS THEY ARE GETTING IN MY BRAIN TO i HAVE HAD BEEN DIAGNOSED WITH NARCOLEPSY 11.5 YEARS AGO AND HAVE HAD SEIZURES NOW I KNOW IT WAS NOT REAL I HAVE MORGELLONS AND IT CAUSED IT ALL .I KNOW MY BROTHER HAS THE SAME AND ALSO IT IS…"
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Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
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Rene M.
- Female
- Abbeville, LA
- United States
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Linda Marano commented on Rene M.'s blog post Morgellons in the brain"Dear Rene:
They have to get their because I started to start a sentence and out of nowhere I would say ocean when the subject is not even close. As for headache bad."
Eileen Matichuk commented on Rene M.'s blog post Morgellons Doctor"In my situation I am clean but realize that I have to be careful what I eat. I began to have a mild itch so went to my doctor today. It seems that the fungus began to take over slightly as he noticed the white spots on my upper pallet. He gave me a…"
Mary Jones commented on Rene M.'s blog post Morgellons Doctor"Hi Rene,
Ginger Savely, tbd & assoc., san francisco, ca
gingersavely.com"
Sherry Taylor commented on Rene M.'s blog post Morgellons Doctor"Dear Rene,
Go to morgellons focus.com Pmela Mae's site..she's been working on the doctor thing for some time. You can find her on Mel's "how I cured Morgellons too.
She didn't find me one in Vancouver but got Mel's…"
Eileen Matichuk commented on Rene M.'s blog post Morgellons Doctor"There are some doctors now who believe there is such a disease and are working with people but they are rare. In my case I could not find one but kept checking doctors out by dropping in to medi-centres with my skin infestations. As I talked to the…"
Rene M. posted a blog postMorgellons Doctor
A friend of mine thinks now that she may have the bug. I gave her advice and told her what i was doing but she will not believe anything without a diagnosis. Does anyone know of a doctor right now that is treating or even seeing Morgellons patients?See More
Rene M. commented on Rene M.'s blog post Morgellons in the brain"Your welcome and you know we have to stick together. I have found that some days are worse than others but the more positive your outlook the better you are feeling. So I dont know if that helps you but I will keep you in my thoughts."
My husband and I have been dealing with having Morgellons Disease for some time now. It is a difficult battle but we are roughing it out. We have learned a lot over time about how to take care of our bodies and environment. Believe it or not our animals have been affected too. They are getting better now though. Thank God!
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Morgellons Doctor
A friend of mine thinks now that she may have the bug. I gave her advice and told her what i was doing but she will not believe anything without a diagnosis. Does anyone know of a doctor right now that is treating or even seeing Morgellons patients?
Posted on April 27, 2010 at 8:10am — 4 Comments
How is everyone feeling?
I hope that everyone is doing better. I am feeling ok, not too much activity today. But my spring allergies are going nuts which does not help my nose.
Posted on April 15, 2010 at 12:38pm
Morgellons in the brain
I would swear sometimes that these things are getting into my brain. It is so hard to deal with the fogginess. Some days are fine, others it feels like I am totally not there. Severe headaches have been happening to me lately and I hope that it is just allergies due to spring pollen but who knows. Thanks everyone for your support!
Posted on April 6, 2010 at 9:18am — 4 Comments
Check up
I was just checking in today to see how everyone is doing, pretty good I hope.
This week has been pretty good for us, even with all of the cold weather.
This week has been pretty good for us, even with all of the cold weather.
Posted on February 24, 2010 at 8:18am — 3 Comments
Where do the skin lesions and fibers come from?
Here. I certainly don't believe that they are really working on anything with the little progress that I have seen over the years.
But this is what the Morgellons Foundation had to say...
So far, we have no idea whether Morgellons skin lesions and related material such as colored fibers are (1) biological agents, (2) produced by such agents, (3) are products of the body’s attempt to rid itself of pathogens, or (4) an aberrant body system unrelated to any agent. Serious efforts are… Continue
But this is what the Morgellons Foundation had to say...
So far, we have no idea whether Morgellons skin lesions and related material such as colored fibers are (1) biological agents, (2) produced by such agents, (3) are products of the body’s attempt to rid itself of pathogens, or (4) an aberrant body system unrelated to any agent. Serious efforts are… Continue
Posted on February 2, 2010 at 8:00am — 3 Comments
Comment Wall (8 comments)
- At 4:50am on July 15, 2009,
Tonya Rychard said… - I agree I can't believe people could be so dumb. This is no joke for those who have to deal with it every day. When will we get teh help me need!
- At 11:37am on June 15, 2009,
sam said… - Ive been felling ok,, I feel them a lot crawling after 3 o clock..I really hate them when I start feeling them in the ears.. Ijust hope they find a cure real soon because im tired of this disease.
- At 5:29pm on May 28, 2009,
Michael L said… - Hi Rene M. Thanks for the feedback on enzyme cleaners. Funny you should mention Wal-Mart, because I bought some Bio-Green biotechnological all-purpose cleaner. Sound fancy enough for you? It was the "biotechnological" part that got me. I thought it sounded like it might have enzymes (though there is no mention of it on the bottle). It actually seems like it might be a good product, though I wouldn't go as far as saying it kills them. Though they do seem to get annoyed. The surfaces I tried it on stayed clearer than usual.
- At 12:49pm on May 7, 2009, sam said…
- hey rene m can u add me as a friend i cant seem to add u..I just caught the morgellons disease..I really need some help..I found out that there is no cure..I would like 2 know abt the clothes thing..this disease is freakin me out..how long has it been since uve had it..n how does the crawling gets day to day??its starting to spread all over my body..how abt your symptoms?
- At 4:12pm on April 15, 2009,
bobby aback said… - What have you found helpful in treating your environment.
- At 5:57pm on March 30, 2009, bobby aback said…
- how so
- At 5:55pm on March 28, 2009, bobby aback said…
- Well they most likely are deciding how to release the information? The study with Kaiser and research being done at OSU are opening up the doors to this new disease.
- At 11:30am on January 19, 2009,
Dwayne Coots said… - Welcome to the Morgellon Support Network Rene!
Feel free to create a blog, post to the forum, or upload a picture or video. We're here for you!
Dwayne
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