Morgellons Support Network

Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers

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Pattie
  • Female
  • Plantation, Florida
  • United States Minor Outlying Islands
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Pattie's Friends

  • jackie
  • lorin ryberg
  • sandra hastings
  • Anita
  • deffam
  • Benjamin William Wyckoff
  • K
  • cookie earhart
  • karen Du   Bois
  • kayty
  • Frank Johnson
  • Pipster
  • Margaret B.
  • mike88
  • onelove

Pattie's Groups

Pattie's Discussions

Nature's Miracle pet cleaner

Has anyone tried using Nature's Miracle Enzymatic Pet Cleaner as a way to clean environment?  I have some on hand, and just read on another site that someone was using it and had good luck with it -…Continue

Started Jan 11

My Story - Hope I'm typing it in the right place!
3 Replies

Hello all.I'm finally getting around to typing my entire story.  I live in Ft. Lauderdale, FL.I tend to write novels every single time my fingers hit the keyboard - it's 'cuz I type about 120 wpm...…Continue

Started this discussion. Last reply by Pattie Jan 10.

The "Sand in the sheets" stage
2 Replies

I'm just starting a new breakout.  I've been putting Aloe & clove oil on the lesions and it seems to seal them right up.  I hate mentioning this here b/c I have absolutely NO idea if clove on…Continue

Started this discussion. Last reply by Pattie Jan 9.

Neem Cream
6 Replies

I just went out to buy some neem oil.  I only found Neem in capsule form - which I've already taken... and in a cream.  Can someone give me a shout-out to let me know if the cream is what I should be…Continue

Started this discussion. Last reply by Renee. Coffey Jan 9.

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Pattie's Page

Latest Activity

Tayler Gilmore and Pattie are now friends
Tuesday
Pattie commented on Pattie's blog post Update on my recovery 5/7/12
"Just wanted to say that I've decided to stop NAET treatments... the fifty bucks a week thing was just too much to continue on with.  She DID help me a lot.  Best of luck to everyone in finding something that works for you! <3 pattie"
Tuesday
Pattie commented on Pattie's blog post Another Free Stanninger Detox Recipe :))
"Pipster, I'm so happy this is helping! Sherry, Thank you very much and I hope all is well with you!  <3 Pattie"
Tuesday
Pipster commented on Pattie's blog post Another Free Stanninger Detox Recipe :))
"Yes, this is a great recipe. My heart frequently hurts and I think this stuff is getting to it. Thank you for your time to post this. :)"
Tuesday
Pattie posted a blog post

Add Flight Attendants to our list!

 I cut/pasted this new post from Morg/ A Mundane Approach.  Always nice to know that it ain't just cotton that we've got to worry about here! Oh brother!  If only these poor flight attendants could have it so easy as to just change thier uniforms and be done with this!I wonder just how long these labs are gonna be able to keep saying they don't see anything when everyone that HAS this can see at least some aspects of it with our cheapy magnifying glasses or Toys-R-Us microscopes?  I'd guess…See More
May 21
Pattie commented on Pattie's blog post FIR pads and bone spurs
"Thanks, Margaret.  Funny, I had JUST written myself a note to find my hubby's yoga cd.  I guess this is a sign that I should get off my butt and actually heed that call, huh?  And I'll take that extra kick with the juice and…"
May 19
Margaret B. commented on Pattie's blog post FIR pads and bone spurs
"Delete Comment Back at'cha honey-bun. The whilte grapefruit are best, but interact with medications. If you take a narcotic pain killer the grapefruit juice acts to potentiate it (makes it stronger). The juice even disolved a bunion on the…"
May 19
Pattie commented on Pattie's blog post FIR pads and bone spurs
"Oh, Margaret.  I wish you didn't live so far away.  I'd come give you huge hugs!!! I asked 3 pain specialists, my neurologist and my Homeopathic and none could offer any hope.  Hurt it over 25 yrs ago and just keeps getting…"
May 19
Margaret B. commented on Pattie's blog post FIR pads and bone spurs
"Hi'ya Pattie: My neck felt like it had darning needles in it and even the sin around it was numb to touch, but sooo painful inside. No idea about the FIR, but 12 day grapefruit juice fast and adding the juice to your diet 2 weeks before and 2…"
May 19
Pattie posted a blog post

FIR pads and bone spurs

Does anyone have any first-hand knowledge of FIR pads helping relieve pain from or actually DISOLVING bone spurs in neck?  (btw, I also have arthritis & herniated disks there.)  Thanks.See More
May 18
Pattie commented on Pattie's blog post Update on my recovery 5/7/12
"Hello all.    First off, I want to thank everyone for the kind words - messages, emails, phone calls... means a lot to me!  This site really IS a perfectly well-oiled machine.  We ALL have something to give - a piece of the…"
May 17
Pattie commented on Pattie's blog post Amazing video - very long, but well worth watching
"it was sent to me from Healing Grapevine..."
May 17
Sherry Taylor commented on Pattie's blog post Amazing video - very long, but well worth watching
"how do you get to that video?"
May 17
Cea Blue commented on Pattie's blog post Update on my recovery 5/7/12
"This is kinda making me laugh, but just ignore it please "
May 16
Pattie commented on Pattie's blog post Update on my recovery 5/7/12
"Um, Scrap492?  I am sorry that you are experiencing 'much confusion' from my posts and 'narcisstic rants that say nothing about healing or cause or proper treatments'.  If you know about the cause of this or the…"
May 16
Pattie commented on Pattie's blog post Update on my recovery 5/7/12
"Dear Scrap492 - I've had this nightmare for a whopping NINE years as of April 15th.  Yes, i know the exact date.  When I joined this site I wasn't comfy using my real name b/c there was a lot of backbiting on a few other sites…"
May 16

Pattie's Blog

Add Flight Attendants to our list!

 

I cut/pasted this new post from Morg/ A Mundane Approach.  Always nice to know that it ain't just cotton that we've got to worry about here! Oh brother!  If only these poor flight attendants could have it so easy as to just change thier uniforms and be done with this!

I wonder just how long these labs are gonna be able to keep saying they don't see anything when everyone that HAS this can see at least some aspects of it with our cheapy magnifying glasses or Toys-R-Us…

Continue

Posted on May 16, 2012 at 7:07am

FIR pads and bone spurs

Does anyone have any first-hand knowledge of FIR pads helping relieve pain from or actually DISOLVING bone spurs in neck?  (btw, I also have arthritis & herniated disks there.)  Thanks.

Posted on May 15, 2012 at 11:29am — 4 Comments

Amazing video - very long, but well worth watching

Re-posting a video sent from Ramona of Healing Grapevine.  It's two hours twenty minutes... but my oh my - is it ever worth the time.  It's out of sync, so I just listened to it.

First half presented by a biologist talking about how we are not simply a product of our DNA.  (That's a rediculously simplistic version of a phenomenal presentation).

Second half is presented by a PhD psych. who has come up with a method similar to what I'm doing with my NAET treatments.  He uses…

Continue

Posted on May 11, 2012 at 2:15pm — 4 Comments

Another Free Stanninger Detox Recipe :))

Dr. Hildy's Heart Tonic Recipe©

Remember that the ingredients used in any of her recipes should not be substituted. She has formulated this to work with exactly this recipe.

In a large pot combine: 10 sprigs of parsley 1 quart/liter of your favorite cherry wine 1 cup of honey 2 Tblsp of Red Wine Vinegar (Regina brand)

Cook until parsley becomes soft (about 5 minutes). Strain and bottle into glass containers. Drink 1 or 2 ounces a day to increase the…

Continue

Posted on May 9, 2012 at 9:52am — 3 Comments

Comment Wall (7 comments)

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At 2:10pm on February 20, 2012, lorin ryberg said…

By the end of this I am sure the diagnosis of parasatic pycho will ring true and i am sure pharma co. that will have a bandaid. yes.. i am angry

 

At 10:25am on February 20, 2012, cookie earhart said…

Hi Patti, Thank's for the invite! I have had Morgellons since August 2001. Most of my pics are from an outbreak in 2007, which took 2 years to heal. I have 6 posted, but the site posted them in reverse order. I was showing a 10 day sequence of a current lesion that healed in those 10 days by using MonoFoil. I have been using that since Dec. 5th 2011. I think you will really benefit by all the REAL info at the cehf site. I hope your husband will look at some of the data.

At 4:49am on February 19, 2012, nev said…

Hi Pattie!  I left my pc on & never checked. Sorry about that!  We could talk some other time ay!

At 2:28am on January 19, 2012, Anita said…

OMG 11 people responded as friends today.  Thank you, Anita

At 11:22am on January 9, 2012, Renee. Coffey said…

My Dr that I have had for over 15 yrs tries to help me, but, Really doesn't know much about Morgellons, she has another patient like me with the same thing. She sent us both to a internal disease dr that works with morgellon patients. But, I only went to him for 2 months in November 2010, the prescriptions he had me on cost me over 1,000, I had no insurance. It helped get them out of me in hundreds at a time, but, it was a loss cause, so I stopped going to him.  I had seen 2 skin doctors in the beginning also a lost cause, hospitals, clinics, etc.  There is a few drs that work with morgellons, and yes there should be more considering, alot more people are coming down with this disease, nurses, drs, etc.  But, it's all just a goverment cover up.  Wow , that's hard to believe hah???? We just have to take care of ourselves and try to beat this on our own.  We know more than they do about what's going on with our bodies anyway, Well at least they wont, or they aren't allowed to help us.  I have alot of beliefs on what is really going on with what the goverment wants to do with all of us.  But, I say screw them, they will get there's someday.

Anyway, I am not married.  I have been with my boyfriend for over 9 yrs this february.  I have been married before for 17 yrs. I got a divorce back in 1999. I have 3 grown children. 29,28, and 23 yrs old. I have 2 grandchildren, 8 yrs old, threee days apart. from my two oldest daughters. I will be 48 yrs old in February.

And, yes, my boyfriend believe's me that I am sick with this disease. Only because he and others had seen me going through the beginning stages and things coming out of me and me freaking out. Now after 2 yrs, he doesn't want to hear about it anymore after a yr after. So, I don't tell him alot of what's going on, only on my bad days.  At least he doesn't think I am nuts.  I had to leave my employment after 14 yrs of being there After I had this for 6 months and wasn't getting better, but, worse. I have always worked since I was 16 yrs old. Raised all three of my kids, pretty much all alone. Now I am raisng one of my grandkids, since she has been 2.  I went from making really good money, to nothing now. I have lost everything in one fatal yr.  It is so hard. But, I have faith in the Lord, and he always provides for my needs. 

I am sorry your husband thinks your nuts. I get that with other family members ( my son in law etc) Maybe you should give him a magnifying glass and he can watch them come out of you. Or when you get something, he can look at it through the magnifying glass after you put it in a ziplock baggie.  That's what happened to me.  I started rolling my body with a lint roller to see what the hell was making me itch that I couldn't see. Then I would look at the lint roller with a magnifying glass.  It helped, My mother, boyfriend , friends in the begging would watch this and look, and then they believed something is really happening to me. I still use a lint roller everyday to get them off of me during the day. Gets expensive , but, it always works. I use to use 2 a day in the beginning when it was really really bad, now I use a roller a week. Just to get them off on bad days between baths. I still have a container from over a yr ago, with these things on the lint paper and in ziplock baggies. Haven't looked at them for over a yr, I should check and see if they changed in appearance.  Hope there dead. lol.   Well nice talking to you.  Renee

At 12:16pm on January 8, 2012, Renee. Coffey said…

That is funny, we were doing the friend request at the same time.  God works in mysterious ways, and brings people together.  If you need anything, just let me know.  I am there for you, and anyone else who needs something. Renee

At 8:23am on January 6, 2012, Jan ShermN said…

I appreciate your positive attitude and your grit.

 
 
 

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