"Hi Summer,
I am so sorry to hear that you are experiencing this disease. I can only imagine how overwhelming this may be. Since I do not personally have the disease…all I can offer are strategies that help me cope with my daily life in…"
"Laurie---I just saw you as a member on the MSN site. I recently became a member. As you may know, this disease can be (IS always for me---as EVERY single thing has changed since infection) extremely overwhelming. As well, it can be isolating,…"
Laurie---I just saw you as a member on the MSN site. I recently became a member. As you may know, this disease can be (IS always for me---as EVERY single thing has changed since infection) extremely overwhelming. As well, it can be isolating, devastating, horrifying, etc. I have done my best at my balancing my desire to continue living my life passionately with my tendency toward isolation that is coming from many things. Of course I feel SO MUCH anger toward family, friends, and the medical community..much more so "in the beginning"....instead of being nurtured and helped...I found with such amazement that I was greeted with skepticism, disbelief, ridiculous suggestions and my medical health questioned! By the very people who have always loved me, adored me, turned to me for help,....these same people simply, in my eyes, abandoned me, as surely they assumed it would all pass and I'd come to my senses. Of course, now, they see and understand, for the most part, that it was NEVER "all in my head"-----and though they say :"sorry"---I find it so unforgivable and unacceptable. This message is already much longer than I anticipated it would be---and to tell you the truth, I had no idea I was going to leave a message. I just was glancing through the photos of those individuals who posted one on the Morgellon's Support Network site---- and I saw yours. Cool picture! Being both a photographer myself and having done quite a bit of print modeling myself--I appreciate it. I see you live in GA--I spent some time in Savannah, Atlanta and Tybee Island 2 years ago. I loved it. I'm in the process of moving from Dallas to Seattle, so although I'm really busy, I really want to reach out and maybe make some "e-friends" who understand, can offer suggestions, share a little bit of how they cope, etc. Who knows----maybe some of my strategies can actually help, too. Take Care, Summer