Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
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Sherry Taylor left a comment for Karen Gillies
Sherry Taylor left a comment for Karen Gillies
Sherry Taylor said… welcome
Sherry Taylor said… oops I entered something in the wrong box..computer duff-us..please write everything you are feeling..love to hear from you..you are not alone
Sherry Taylor said… Hi Karen,
It's mind boggling isn't it? Hard to comprehend this is really happening.
Don't hold back, I'm here for you..my spelling is particularly bad tonight though..please forgive me.
Holidays can be hard..and this isolating..you feel like your former life is being ripped away and you are under siege. On top of that it's contagious to those susceptible and the "denial" aspect is nothing short of...well mind boggling. a perfect torture scenario.
So we go through not being able to take it any more. And..there is so much to learn..and no medical help to speak of. You can do it though..we can do it.
What a way to live, eh?
Most likely you will find many theories and solutions..and it's a matter of trying various things and simplifying, simplifying, simplifying...which is actually quite challenging.. especially when you fell sick..ya ok..now you have to do "more"..ugh.
the CBC cheers me up..and I can listen while I work.
It came to me the first Christmas having Morgellons..that while I had a lot of feelings of loss and heartache..I determined..to write a list..which cam e out like a poem..of what still made life worth living..what I had left..like the ability to love, let it in, appreciate a breeze on your skin, the moon rising over a lake(Lake St. Claire here near Windsor).
Heart ache..it's hard to take..we've been programmed to love life..and take the assault personally..bacteria,fungus, viruses..with a twist..GMO....in our food, water..everything..plants and a degraded environment..air sprayed with heavy metals.
People who don't have it..just simply can't understand.
It doesn't appear as bad as it actually feels..it penetrates your brain..every aspect of you physically..besides the obvious painful skin...loosing hair...bugs..and weird"dust" spore paritculate all over everything...that bites...well you know.
So you are then labelled as crazy...on top of everything else.
What the......
Consumed by the almost "invisible " creatures..but you can see most of them when you get really observant..and certainly you can feel them.
I'm honored to get o know you..and want to hear your experience..and also who you are..as a person..since we are people first..right?
The great thing is we all want to help each other..that's so cool..very precious.
Sherry
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