Morgellons Support Network

Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers

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Beverly
  • Female
  • Red Bank, NJ
  • United States
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  • Sherry Taylor

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Latest Activity

Wolfe replied to Beverly's discussion Is it possible she had Morgellons?
"What a terrible story. One big difference between bedbugs and Morgellons...We all seem to have the extreme biting or shocking sensations, especially at night in our beds, at least most of us do at some point. We may think bedbugs but bedbugs inject…"
Sep 23, 2011
Beverly posted a discussion
Sep 23, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"There appears to be many varieties of Morgellons disease with equally as many symptoms and effects.  I read numerous accounts from many sufferers every day.  I think it is important as Morgellon sufferers to maintain our sense of…"
Jul 13, 2011
Nancy J. Levy and Beverly are now friends
Jun 27, 2011
Beverly posted a status
"I do believe there will be a cure for us. Meanwhile, please read: http://www.ted.com/talks/stacey kramer the best gift i ever survived.html"
Jun 27, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"Lisa: I think we are all suffering from a variety on the same theme. I also think with each sufferer it manifests a little differently.  I also think this organism is somewhat adaptable to its environment.  If it can cross over from plant…"
Jun 26, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"Glad to hear you are doing better.  So am I but I take my epsom salt and peroxide baths every day.  I take my bentonite detox every morning etc..  I go for professional colon cleanses on a regular basis and use Grapeseed oil with tea…"
Jun 26, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"Eileen: One of the contributors to our discussion group claimed that her MD told her not to eat protein. He said the organisms feed on protein.  I don't know for a fact but because I am a vegetarian, I can't test his theory. I am…"
Jun 26, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"Eileen: I forgot to add that they not only feed on Sugar, starch & caffeine but they also feed on dairy, oils (nuts, cooking or salad oil) and protein. I live on low starch vegetables and low sugar fruits and life is much more tolerable. Love…"
Jun 25, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
" "
Jun 25, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"Eileen: We may be dealing with a mutation that may have different affects on different people because of the many different strains involved.  I most obviously have either a weaker strain or one that doesn't cause the horrific sores that…"
Jun 25, 2011
Beverly replied to Bugged N. Moore's discussion How contagious is Morgellons?
"I frankly don't think it is contagious.  It is my opinion that when there are several people in the same family getting this disease, then they have all been exposed to it at the same time perhaps with eating the same food or being exposed…"
Jun 23, 2011
Beverly posted a blog post

Cyndi's Post

Mike:Thank you for the heads up.I read most of the posted material you called my attention to.Frankly Mike, I am not a scientist or a doctor but as a past pre med major who has a reasonably decent handle on how an organism functions, I have my opinion on what Morgellons is after much research.  If there is a genetic factor involved or altered chromosomes present in Morgellons sufferers, it is my humble opinion that they may be Morgellons sensitive but did not create Morgellons to occur. There…See More
Jun 20, 2011
Beverly commented on Beverly's blog post Heads Up for New Info...
"It takes one to know one dear Nancy. Thank you for your kind remarks. ooo  Bev"
Jun 19, 2011
Nancy J. Levy commented on Beverly's blog post Heads Up for New Info...
"Bev:  Whudda lady!  I am so impressed not only with your background and the applications, but with the glaring point that you are in our family.  What a wonderful marriage and a strong link.  Thank you for offering your extensive…"
Jun 19, 2011
Beverly commented on Beverly's blog post Heads Up for New Info...
"Bless your sweet precious heart Nancy.  You are so well spoken and so bright it is a pleasure to read what you write. I am not about to take advantage of any more schooling Nancy.  I am 70 years young, very accomplished in my chosen…"
Jun 18, 2011

 


MY MORGELLONS DISEASE HISTORY

1. AFFLICTION-Mid Sept. 2010

    I am a highly functioning and healthy 70 year old female.

    When afflicted I was living in Red Bank, NJ, a shore town.

    In Sept. of 2011 I was besieged with unexpected crawling, burning and stinging sensations all over my body. I felt as though insect dive-bombers were attacking me.

    These sensations were felt all over my body. They were more concentrated on my upper chest arms, back, neck, face, in my eyes, nostrils, in my hair and around my mouth. Also present was the sensation of spider web like filaments on my face, exiting my nose and around my eyes and mouth and face.

    As these eruptions were forming inflamed sores, there was the sensation of fiber- glass splinters emerging from them.

    It was maddening, painful and elusive.

    It appeared to intensify about 3 or 4 in the afternoon every day.

    The reflex to reach for what was causing me this distress produced the retrieval of foreign particles.

    Upon close inspection, I discovered a variety of particles i.e.:

    a.     Black and white sand like granules.

    b.     White soft pulpy material. They had the appearance of larvae.

    c.     White semi soft particles.

     

    2. EARLY ENVIRONMENTAL SOLUTIONS

      Determined to find the source of my problem and discomfort which I initially thought to be an infestation of some type of air borne parasite i.e. lice or black mold borne organism, I attempted to eradicate them in my home over the next few months.

      Nothing had been visible to me.

      I utilized the following methods:

      a.  Bug Fogger placed in each room on 4 different occasions two weeks apart.

      b.  Spraying Insect repellant on and around all the upholstered furniture and beds.

      c.  Steaming all the upholstered furniture and mattresses.

      d.  Covered the mattresses with plastic sheets.

      e.  Continued vacuuming.

      f.  Camphor balls placed everywhere.

      g.  Finally discarded my upholstered furniture.

      h.  Menthol crystals in diffusers placed in several rooms. (dehydrates insects)

      The Problem Persisted…


      3. IDENTIFICATION PROCESS

        I couldn’t believe this was happening to me.

        I had developed sores all over my upper back & upper chest and neck and some on my face.  I am not prone to picking and tearing at myself so the sores did not manifest into wounds.  As some healed, others would appear. I treated them with triple antibiotic.

        Over the course of months I visited my primary physician, an internist and a dermatologist.

         I started collecting samples of the particles I found on my skin & carefully placed them on square patches of clear packaging tape to preserve them. I rolled them inward to protect my samples and kept them in plastic containers.

        I delivered many of these samples over a period of time in the early months of my suffering to the following:

        a.   County Mosquito Control Lab (on four separate occasions): Each time they claimed that they didn’t find anything in spite of the fact that I supplied them with substantial pulpy and granulated matter with each visit and several samples each time.

        b.   Rutgers University Agricultural Laboratory. They claimed they saw nothing.

        c.     My primary physician who saw nothing.  She appeared very sympathetic and compassionate.  She did not dismiss my complaints with disbelief.

        d.     My Dermatologist put me on a regimen of Doxycyline for one month. She took a punch biopsy of one of the recent lesions and had me tested for parasites.  All the tests proved negative.

        Note: As a prior pre med major in possession of a hand microscope, it was fairly clear to me that what I was witnessing was something out of a Sci Fi movie and yet no one was able to identify this organism and/or it’s bi-products, end-products or residue. Perhaps the particles emerging from our skin tissue are waste products of

        the parasites and not identifiable.


        4. RESEARCH

          The Internet provided me with endless information. It helped me to identify my problem.

          There is no doubt that I have Collembola or as it is most commonly called Morgellons Disease.   

          In desperation I turned to a family member for help.  He is a holistic and natural healing expert. 

          I was also communicating on the Internet with an independent researcher who was also afflicted.

          Both have given me advice to keep this disease in check. It doesn’t remove the daily discomfort and sores.  It just modifies it. 

           Until now I had been on a course of trial and error.  I had pursued many avenues

           of treatment on my own to eliminate what I had mistakenly thought to be an

           external parasite.

                      

           Battling an internal, unrecognized & unidentified parasite by the medical

           community is proving to be the most challenging nightmare in my lifetime.


           5. PROBLEM SOLVING TO DATE

             INITIALLY:

            a. Shower with RX anti parasite shampoo in my hair and all over my body

            b. Grape seed and/or almond oil all over my body after a shower.

            c. As a vegetarian, I continued on this course and am now on an Alkali Forming Diet.

            d. Tea tree oil diluted in the various oils I used to cover my entire body.

            e.  Ichthammol ointment coated inside my nose. (childhood family treatment)

            SOME MINOR RELIEF EXPERIENCED…

             

            PRESENTLY:

            a.     Toxic cleanse in the AM. Half hour later b and c.

            b.      Quantum parasite and worm formula in AM. (20 drops) 3x/day with meals.

            c.      Nutra silver  (25 drops) 3x/day with meals (both b & c taken in distilled H2O) increase over time as directed.

            d.      Tea tree oil diluted in Grape seed oil to cover my upper body and face.

            e.      Alkali forming diet.

            f.       Every day I bathe in an Epsom salt (4 cups) and Hydrogen Peroxide (1 quart) bath.  It has a ‘drawing effect’ on the skin and removes toxins.

            g.     When I do not bathe, I shower with T Gel to wash my hair and body.

            h.     I discovered an anti fungal solution that I used to use for athletes feet. I am using this to coat the interior of my nose and dab it on my sores.

                   It appears to have some positive effects and quiets the organisms activity.

             

            6. RESULTS

              The stinging and crawling sensations are at a low but not gone.

              Some days are worse than others.

              The episodes of these sensations happen mostly in the afternoon and can continue through and into the evening.

              I have discovered that whatever sensations I am feeling in a particular spot yields a residue of a granular, sand like particles, mostly white or translucent in color.  The larger the particle the more painful the exit and sores and inflammations erupt from the pre exits and post exits of these particles.

               

              Most of the particles continue to appear on my upper chest, upper back, neck & face, particularly in my nose and in my eyes. I am troubled by a sand sensation in my eyes and experience stinging and burning in my nose.

              I also feel the sensations of movement in my nose, eyes and around my mouth.

              There isn’t much activity in my hair of late or as many white flakes observed.  I am

              loosing hair but do not know whether to associate this with Morgellons or aging.  The problem had been worse during the onset of Morgellons however and is now more manageable.

               

               7.  SPECULATED SOURCE OF ORIGINAL CONTAMINATION

                 a. I am a vegetarian.  (In my food?)

                 b. Petting and scratching a Parrot (pet store) in Sept just prior to being afflicted(?)  I remember scratching an itch just inside my nose when I walked out of the pet shop and thinking, “what could be on my fingers.” I am very conscientious about cleanliness and sanitizing my hands.

                  c. Black mold was prolific in my apartment and in my downstairs neighbors apartment several months prior to being afflicted with Morgellons. The landlord took months before any attempt to clean it up.

                  d. Eating in restaurants.

                  e. I found mouse droppings in one of my kitchen closets prior to being afflicted. 

                I AM DETERMINED TO PERMANENTLY RID MYSELF OF THESE PARASITES IN MY

                     BODY.

                     I am now on a protocol of Doxycycline and continue with a fungicide wash inside my nose and on my face.

                     I bathe in 4 cups of epsom salts with one quart of peroxide (drawing effect to remove toxins) every day.

                     I take my toxic cleanse drink in the morning, take the nutra silver, the parasite formula three times a day in distilled water and I am feeling amazingly better than I have in a long time.

                     THERE IS HOPE FOR A SOLUTION...

                     IF ALL THE DOCTORS & THE MEDICAL COMMUNITY UNITE AND GIVE CREDANCE TO THE EXISTANCE OF MORGELLONS, CONSTRUCTIVE RESEARCH WILL BE  CONDUCTED & A TREATMENT FOUND TO RID US OF THIS MONSTER.

                      I HAVE TO BELIEVE THIS WILL BE ACCOMPLISHED.

                 

                Good Luck and God Bless...

                 

                 

                 

                 

                 

                 

                 

                 

                Beverly's Blog

                Cyndi's Post

                Mike:

                Thank you for the heads up.

                I read most of the posted material you called my attention to.

                Frankly Mike, I am not a scientist or a doctor but as a past pre med major who has a reasonably decent handle on how an organism functions, I have my opinion on what Morgellons is after much research.  

                If there is a genetic factor involved or altered chromosomes present in Morgellons sufferers, it is my humble opinion that they may be Morgellons sensitive but did not…

                Continue

                Posted on June 20, 2011 at 1:17pm

                Heads Up for New Info...

                CONTACT 

                Dale Kemery (News Media Only) 

                kemery.dale@epa.gov 

                202-564-7839 

                202-564-4355

                FOR IMMEDIATE RELEASE 

                June 9, 2011

                 

                EPA Proposes Policy on Nanoscale Materials in Pesticide Products

                WASHINGTON – The U.S. Environmental Protection Agency announced today it plans to obtain information on nanoscale materials in pesticide products.…

                Continue

                Posted on June 9, 2011 at 1:49pm — 13 Comments

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