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Comment by Sherry Taylor on January 29, 2012 at 5:33am

Dear Deffam and Nikki,

If I had to pick one thing that would help re ADD..and other "M" symptoms..I'd say drink as much fluid as you can..find your favorite juice..mine is Cranberry and dilute it..so that you get less sugar(buy the no sugar added one..(We have it in Canada)..Detroit doesn't but maybe your Costco does..it's cheapest there.

Try to keep your head clear..oil on your hair at night..or DE, some kind of cream or vicks on the face., brisk walks or bike rides..something to get the circulation flowing.

Start reading people's posts..and share hear..you are not alone.

Get a handle on the house and laundry..start a plan of attack re getting this stuff out of your body.

Do not eat any GMO stuff or sugar, corn..anything made with it..best to minimize carbs.

There is no "fair" here..anyone could get this and people get it different ways.

My best theory today is that some people are sensitive to fungi and bacteria that are environmentally-altered or new in their present use...or numbers.

Nano(tiny particles) pollution or..sensitivity to the new organisms.. or waste/toxins ...ie our immune system reacts.

It does involve exposure and susceptibility..the dominoes fall and we have to put humpty together again.

The powers that be haven't gone into this DNA kind of damage..and don't think there are enough people sick for it to matter....yet.

So use that speedy energy to learn all you can and start trying things..take breaks to re generate..and go at it again.  It is going to take years.

Try not to be too upset about others not understanding what is happening to you..they can't possibly imagine it in their wildest dreams..so just try to focus on getting better..look ahead..step by step.  I know it is very hard..we all feel that way..but the alternative is worse.

Got to go,

Sherry 

Comment by deffam on January 29, 2012 at 1:48am

Nikki - WOwow Thank u for the time u took out to outline, explain, and most of all understand-- I honestly feel like I am so violated- never caught any STDs, or any of those cases- and now at 46 struggling to get my health and sanity back why, why? why? is this a payback??   I am so scared, cant type long because I have ADHD, my head has 15,000 thoughts about every freakin min and I cant type fast enough- please DEAR GOD_ MAKE THIS INSANITY STOP!!!!!!!!! 

Comment by Nikki Flowers on January 28, 2012 at 1:08am

Dear deffam, I can tell by your comment that you are really struggling.  And what a shame that your husband is not taking you serious.  This disease is HORRIFIC to say the least but if he does not have it, he will not ever truly understand and this is going to be the biggest fight of your life.  Worst part, your on your own when it comes to family support. 

Let me share just a little of what I have done to help with the lesions but you do know, this is not a so called skin problem so please don't just focus on that although it is the WORST SYMPTOM to deal with. 

This disease is coming from the inside of your body and that is what you must focus on.  I have had this and the lesions for over 4yrs now.  LESIONS ALL OVER MY BODY FOR 4yrs.  How I have continued to live is beyond me.  I'm sure you know how painful these lesions are.  I could not wear clothing AT ALL due to the pain. 

I have purchased everything out there trying to heal myself.  People will give you so much advise that your head will swim and confusion will set in.  It got so overwelming to me when people would send me so much info. on what they were doing.  How was I supposed to follow all of that stuff and where was I going to get it.  It just got to be too much for me and I was purchasing things that just didn't seem to work for me like they claimed it did for them.

SO, here is what I am currently doing and WOW, have I seen a huge difference.  It's simple, cheap, but also very painful at times.

1.  I take a huge amount of vit. C daily.  I'm using the chewable tabs, 1,000mg each tab. and I take at least 6-7 a day.

2.  I purchased a juicer machine, not a blender but a juicer.  I juice at least once a day.  I do 2 oranges, 2 apples, and about 20 baby carrots in one LARGE glass.  It's time consuming at first until you get into a routine with it but it's loaded with vitamins.  I also add 1 tbs. of food grade diatamacious earth powder.  I have no idea where to purchase this as it was given to me from a fellow Morg patient friend.  I don't know if this is important, I just do it because I have it.

3.  I order through Logosnutrionalsupplements.com the Morgellons support kit which is vitamins and minerals that I do know for a fact has helped a lot.  It costs about $125.00 for them but you get several bottles of all kinds of great minerals and vitamins that our bodies need to get back into good health.  You can go to their website and read for yourself to see what each one does. 

4.  I soak in a jet tub we just purchased and installed.  I soak for at least 2 hours every other day.  NOW, this is actually what has made a huge difference in my thick gross skin and lesions.  While I'm in there, the water that is, I use my fingernails and scratch my skin, (lift one leg or arm out of the water, what ever area you are going to work on, when doing this) and you would not believe the huge amount of skin that comes off in clumps.  Even on places you don't have lesions.   Also while I'm in the water for awhile, I use my tweezers and I'm able to pick out little white eggs and I also pick out what ever I can from the lesion.  This is very painful but luckily, my doctor gives me pain meds so I can usually handle it.  I just stay in the water as long as I can because it takes that long to soften what ever this thick crap is.  (Be sure to empty tub a few times and than refill or your sitting in all that gross skin).  I can honestly say that this has made a huge difference in my skin and lesions but it takes a little while so hang in there if you do this.  And just seeing all that skin come off will make you feel so much better.

You have to get these things out of your skin.  The ones on your back will take longer becaue you can't reach them but I promise they will scab up and eventually come off in the long tub soaks. 

PLEASE, work on getting nutriton supplements that restore your immune system and especially your PH

Comment by deffam on January 22, 2012 at 10:15pm

how do u get rid of them,

my husband does not understand how serious this sh** is- he dont know computer stuff- Oh God help me- It is so difficult facing this

Comment by Margaret B. on December 9, 2011 at 9:21pm

This might sound silly, but chewing INTENSELY flavoured mint-type chewing gum helps keep my head "mentholated" and keeps the “birthday candles” I pull out of my nose to a minimum. The gum also catches bits of ?, which can then be disposed of along with the gum.

In the summertime, I collect wintergreen leaves which grow in abundance alongside blueberries on the Canadian Shield. The leaves can be rinsed in alkaline water...preferably Kangen Water http://www.kangencanada.com/ for optimal health.

Comment by Heidi Potter on December 8, 2011 at 3:54pm

Hello, Sherry! I'm so glad to have the opportunity to hear your story. How are your symptoms today?

Comment by Sherry Taylor on December 8, 2011 at 1:15am

Yes..try holding neem oil in your mouth and swishing it for..10 minutes..it's pretty intense..let the aroma penetrate you mouth and sinuses..then swallow when it is completely diluted with saliva.  You could swallow it before hand..just a different experience.  Some find it better and smelly but that's it's charm..like golden seal..it seems to help.

Sherry..oh and vicks under the nose..and mint and eucalyptus in a candle diffuser..or dish with a cup warmer under it..in a small room..with the door closed.

Those are just a few ideas..getting out and walking fast..or some type of exercise..biking..helps open up the chest...only dress warmly and drink twice as much liquid as you think you need..warm lemon and a tiny little amount honey..

or your favorite juice diluted half with pure water.

Sherry

Comment by I.am Healthy on December 7, 2011 at 9:32pm

Nikki ~ I have this too.  Have never seen a picture of this, but mine is IDENTICAL.  Just the other day, I rejoiced because I had a normal booger.  Still have the white stringies, but they do seem to be dying down a bit.  I have had trouble breathing though and wonder if my lungs are infected...  -Patricia