Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Hi there:
Thank you for your interest!
The intent of these groups is to try and make content
content easier to access. Please click the"Add a Page"
button (found to the right of the arrow) and add your
content of trials, successions, research, or anything
you would like to share...
Regards,
Marge
This group does not have any discussions yet.
Comment
Comment by nadine tarow on April 30, 2012 at 6:51pm i guess i signed up to? organize a demonstation? i will do what i can but i do not think i am very influential. when i talk to people about morgellons i can tell they are not really hearing it. maybe i need to learn the language better. also how it all connections. the hair we know is not ours dark hair, and blond hair- the light hair i think related to the bhqatright flourecent light. there are things i want to identify what they are and its function. i also see things that people are not talking about at least not right now. it goes of into paranormal type stuff.
Comment by Cea Blue on April 3, 2012 at 6:29am Marge, you have such a way with words to try and help people move forward. The web addresses with sub-titles is an awesome idea. I wonder why no one bothered to do this here. Within our own forum here there some must go to web addresses filled with info that is organized and will put together. Good Job or should I say attempt. I'll get back and see if we can't at least get this one going but not at 4:30 am, can't sleep.
Hi-ya Sherry:
You are the research Lady, and, as you know, I want to help you take your vision of making research (your's and other's) easier to access. Honestly, I am more an ideas kinda gal, but diversifying and experience are ways for me to expand as a person. And, I want to take a pro-active place here.
In an attempt to take this idea of how to organise, re your suggestion, "What do you think of making a list of all the known site's addresses at this time?" . If you or anyone else have an ideas on what would be good headings for the Website Group, please let me know...it will save me work and free me to get the info placed under the best headings. Right now, I am thinking of putting all website addresses under the heading of VALUABLE WEBSITES. However, to have a more defined way to search and access, I think I should make subheadings such as: Internal Nourishment, Topical Treatments, Where to buy (everything? Or make subheadings there, too?), Places of interest/info (Research pages), etc.
If you or anyone has ideas, please let me know and I will be more than happy to set it up, and whatever else helps to make this happen.
Thank you so much for your dedication to sharing the hours you have spent getting some kind of grip on this whole thing, and for the countless hours of support you and others have given of yourselves. This is what inspired me to walk this path along side you guys. I am going to spend as much time as I can reading through the hours of info in this site for my own knowledge, and to help make the information easier to access.
In gratitude,
Marge
© 2012 Created by Dwayne Coots.
You need to be a member of WEBSITES to add comments!