Replies to This Discussion

Permalink Reply by Linda on January 29, 2011 at 1:05am

Denise:

 

They do shun you if you mention Morgellons, I am someone tired of the physicians denial of this disease when so many are obviously sick.  I take witnesses to keep doctors from verbally abusing me now.  Most of them are still as unhelpful as they always have been.  I did find keeping really good records kind of helpful in getting them to take things more seriously, I also bring Dr. Randy Wymore's letter with me which they usually still don't do anything that is recommended in his letter, but it does get their attention a bit.  Holistic professionals seem to do more for you than actually medical doctors and it's great if you can find someone who uses both since there are parasitic type organisms involved that may need prescription medications.  It's sad, but I keep trying to get involved in informing the medical associations of the harm they bring us when they refuse to look at Morgellons as a real disease that needs answers.  I think their reluctance is due to it being an environmental contamination and that could get costly for those responsible if the truth gets out.  Diatomacious Earth has been my best defense along with a few other natural remedies, however, I am by no means better.  Food grade can be taken orally and you can use it in your wash, bath, mixed in clay masks, as a talc, and around the home (leave when you use it on furniture or carpeting or they will bite you...let it sit for eight hours and then vaccuum it up real good). Also since your hair keeps breaking you may want to take a keratin supplement since these things seem to steal it out of your body.  Horsetail is also good.

Permalink Reply by kelly bartelle on October 26, 2011 at 3:21pm

Dear denise, I sympathize with your delemna. I am the only one affected in my family. If my kids were youunger and had it I don't know how I would handle it.

This is what I have been doing and finally had success. I have been forgetting about normal clinics and concetrating on Medical Universities. But, I never mention the M word; Morgellons. I tell them, and this is not lying, that  believe I have some sort of systemic fungal or bacterial infection. For what we have, I don't think normal clinics even have the capability of running the proper tests. 

I almost made it into Duke University where they have physician-scientists that see patients but they thought it would be easier on me to be seen at a University closer to my area. So they recommended the Universuty of Wisconsin, Madison with a Dr who is an expert on fungus. I have an appt. in Dec.

The one thing which may be hard and that I found out with Duke and UWM is that they required a physician referral. Well thank God I have a Dr. who knows M is a real disease. He faed my referral to Madison and then I got a call from UWM at the Infectious Desease Clinic with theh Dr who was recommended by Duke in Dec.

You may want to tart looking into Universities in your area or surrounding area. But do not mention Morgellons.  This always has a negative affect.

Hope I have helped you some,

kelly bartelle

Permalink Reply by Margaret B. on October 27, 2011 at 2:19am

Hi Denise:

I sure hear you. I divorced my GP today after spending a non-M-related night in the emergency ward. The doctor looked at a huge lesion on my arm and I said, "oh yeah, these things come and go when they choose and look at the white scars that are left in there wake. His eye openned very wide and he left the room.

Did you read this: Surviving your doctor appointments

It's not good news but it is unfortunately good advice.

Take care

Marge

Permalink Reply by kelly bartelle on December 5, 2011 at 6:27am

denise, I would definitely avoid the word Morgellons. I am finding that when I say I believe I have some sort of bacterial or fungal infection I get better response.  Even my Dr. who knows M is real and does referrals for me does not use the word. he knoiw the negative response from 99.9% of Drs. I am going to University of Madison Wisconsin Infectious Disease Clinic this month and Morgellons has never been mentioned while getting me in there. I would say for now to NEVER say M to a Dr.  There are other systemic infections so to get the ballk rolling, even though you know what it is, do not mention it.