Morgellons Support Network

Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers

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voiceResearchers - We Want to Hear Your VOICE!

Information

voiceResearchers -                                                        We Want to Hear Your VOICE!

University of North Florida researchers are conducting a survey to study ongoing physical symptoms affecting the lives of patients. If you would like to participate or desire further information, please go to:

Website: http://www.unf.edu/~llange/voice
Location: University of North Florida
Members: 32
Latest Activity: May 22

Discussion Forum

What would you do at doctors office ? Should you say Morgellons? 4 Replies

Im going to take my 8 year old back to the Dermatologist because my daughters hair is breaking off in front of her scalp.  Lady was in there 5 minutes took a swab.  No ringworm,Blah Blah.  She said…Continue

Started by denise bailey. Last reply by kelly bartelle Dec 5, 2011.

SEX - Morgellons has no boundries when it invades a body! 10 Replies

I wanted to start this type of survey but was not sure how to go about gathering the data.  I hope everyone with Morgellons, at least those that know they have it, take the survey and populate the…Continue

Started by Mary Jones. Last reply by K Nov 22, 2011.

tips for morgellons 1 Reply

keep a room temperature dry, awoide poiling, steam extra.2. cold shower. as cold you can.3. wash first separatedly most infected part of body, head, intime area, for decrease a iflemation spread…Continue

Started by SK. Last reply by kelly bartelle Oct 26, 2011.

Micro-Myiasis & Morgellons disease

The complete scientific answer to midges, small flies, myasis in humans- complete research of real myasis and how they breed in humans.My only goal here is to help and inform people, I think this…Continue

Started by Cea Blue Jan 30, 2011.

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Comment by nadine tarow on May 22, 2012 at 8:52pm

i hope i am getting out of survival mode so i can experiment more, but what was so surprising when i first started to read about morgellons is everyone is running around looking for a remedy or some sort of artillary.  believe it or not, most of the time i have had morgellons, even aspirin was considered contraband. the mental health system can be very controling.  i usually had something going on anyway.  since i didnt know any scientific data existed, i often tried spirtual. i still think burning sage helps. if anyone tries this can you let me know what you think?

Comment by Joan C. Lawrence on April 11, 2011 at 12:53pm
I have been taking 1000mgs. acetomenephen (Tylenol...I use Walgreens brand) and feel much, much better. I stopped taking it for about a week and many of the symptoms came back. I started again today and immediately feel better again. Today I did some layman's scientific research on the effects of sodium acetate (acetomenephen) polymers on silicon (fibers). It, as much as I can understand, have a beneficial impact on the Morgellons. Try it for yourselves. I suppose they'll take that off the shelves soon if they realize that it works. Love to all. God Bless. In Peace and Light. Joany Lawrence
Comment by Joan C. Lawrence on November 2, 2010 at 12:21pm
SOS!!! IMPORTANT!! If anyone is using liquid enzyme cleaner for claning and body - DO NOT USE NEAR OR ON FACE.!!! Nacy Levy got some in her eye and had to go to doc and get med because she cannot see. She will be OK but I know that we are all looking for a treatment that will work but we also have to be prudent. Oany Lawrence
 

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