Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Maybe it is time we take action and take this into our own hands instead of waiting another 3 years for the CDS to share their findings? All over the world people are now rising up agains injustice. Why not us. I want to be able to hug or even visit my friend, who has Morgellons, without being afraid. In my experience it is contaigious. His pet has it and my nose and fae still tickles after visiting him.
I don´t have morgellons. A very dear friend of mine has. We would be getting married probably if it wasnt for his illnes. I am outraged by reading much of the official and non-official information about morgellons I find. It is a disgrace and an outrage how morgellon sufferers are treated by the media and the medical community in particular. My heart goes out to all of you. My friend and I are discussing if it isn´t time to come together in an organized way, not only to support one another, but to take direct action and demand that tests are done, or we do them ourselves. Some of the people here must have medical or bioengineering training? My friend is a biologist and I am an audologist. Together, all of us could contribute something that will actually lead to a real definition of Morgellons that DOES NOT include the word delusional parasitosis! What do you all think?
Åsa from Sweden
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Permalink Reply by Stuart on January 28, 2012 at 10:13pm Renee, for virastop, go to enzymatica.com. I'm on the 2x now, I'm not seeing amazing results but it's cleaning me out of all the debris in my system which is a big plus so my immune system can function better. :)
Renee. Coffey said:
STUART, just read about what you are trying the virastop 2, I think I will have to try it, where did you purchase it? on line? or prescription? I will look it up. I also have a fungus mold problem in my bathroom, and under my house. wouldn't know where to start to clear up that problem..
Renee C
Stuart said:Hi Lucie,
Yes, good nutrition is very important. My diet has improved so much since I got this. I eat very little carbs, mostly poultry/fish and veggies. I try and get 8hrs./night but lately I haven't been sleeping well. My doc. put me on Prednisone, a steroid as I'm having an allergic reaction to a mold problem I found out that's going on in my kitchen. I'm having the problem fixed, but the steroid is making it hard to sleep. I'll be off it soon though and the kitchen will be mold free I hope. I had a mold problem in another apt. when I first came down with M. If this mold doesn't get handled really soon, I'm outta here! I'm experimenting with a strong internal enzyme called Virastop 2x and I think that it may be killing the little bastards. It's designed to be taken on an empty stomach, so it goes straight into the blood. It dissolves virus', bacteria, fungi and dead proteins. I'll let you all know if it is significant. It's made by Enzymatica. ~S.
Permalink Reply by Stuart on January 28, 2012 at 10:28pm Hi Sherry,
If you're up in Canada, then you can get Eco Vie'. It's a topical cleanse that you soak in in the bathtub and spray it around. You have to air dry though as not to rub it off with a towel. It's really good stuff from www.ecochem.com. It's in Alberta. Phone: 403-364-2888. It works. I just don't use it much because the enzyme I use I can put into hot water and this stuff you can't. It's got beneficial bacteria and enzymes in it that eats "m".
I'd like to see the video on the nematodes. Yes, this is all very disturbing. It will continue if we don't band together and get a single voice and speak out! Easier said than done though. I'll get this live blood test done and then maybe others can have an ND do theirs and we'll put all the results together. ~S.
Sherry Taylor said:
hi sent you a friend request..I think "M" is prevalent in Calif, Texas and Florida..because of the agriculture and in the case of Texas poultry and cotton(used to be) industries.
This is highly contagious..so areas have been contaminated..how not exactly sure..but they do know about chicken coups.
I personally think genetic modification accelerated this but it's mostly secret..proprietary info. It's conceivable experimental stuff they thought would die off in normal climate conditions in the area..didn't and mutated.
Some people got this 20 years ago..which would make it around the time,1990 when this experimentation started.
There have bee versions of this in pockets like in France from a long time ago..conditions were just right I guess..but it wasn't spread out like it is now.
There are contaminated geographic areas ..one in Israel for example..this is definitely environmental no matter what the CDC says.
People have gotten it..well documented on the net(I wouldn't write it off because of the net..it's not nearly as flake y as it was several years ago)..from agricultural run on at the Dells dam in Wisconsin,
from Trucks(the drivers were affected) carrying bio-warfare weapons for Iraq to use on Iran,
from water treatment plants..one in Texas using gmo nematodes where the facility was vented out to the employees parking lot..
and farm workers have been told spreading these nematodes is safe..(I saw a sales video on this..unbelievable)....and it certainly is not. They use no protective gear. The bacteria in them is supposed to die outside..but if it gets in your gut..that is the perfect temperature for it to grow.
Now maybe there is no proof of this as far as the CDC knows about..but a trail of sick people screaming about it has been left behind..and their nurses and some doctors(threatened with expulsion if they even say the word"Morgellons")
What a mess..then you innocently sit where someone sat who has this..and now you've got it. Or you know someone who has it..and doesn't know what it is..and is told it isn't contagious by their doctor. Or you bump into someone who should know all these things but can't handle it emotionally and goes into denial..so spreads it because they don't take precautions.
Mind you you could take precautions and..have a surprise outbreak..anywhere..but you can't sit at home every day..you have to get food and supplies. You certainly can minimize your exposure to groups of people..and dusty environments that you know would be difficult to clean. It's very lonely and isolating though..so to tell people they are wrong for using the internet..well words fail me..the whole insanity thing... ridiculous. Mob mentality can be cruel though..so we should really think this through re how much exposure we want..I've experienced quite a bit of rejection when people actually believe me..they get frightened for themselves.
Also I feel like rejecting situations where I get more infested because the people aren't taking enough care..who know they are infested..ie they don't clean because they don't "like" doing it.
Well here we are..thanks for the tip re the enzyme..in Canada we don't get the same variety of products..on fact it is hard to get some basics and they are twice the cost...so we have to work with what we have.
I'll see if I can find the "safe Solutions"..in Detroit..it costs me a lot of money to go across the border...as I want to pick up as much as I can.
The border guards are simply awful at this crossing to Canadians...bullies only need apply. They will leave you sitting there for hours until the supervisor notices and come in to say..let them go...so you don't really want to do that too often.
Most borders aren't as bad as this one. Which is odd..you'd think we should be more afraid of the Detroit-ers..we just have smoldering rage at being dominated...because they can.
Having said that there are some great things like community gardens and new things springing up that give hope.
And we really aren't that different..the politics maybe...we don't mind a little boredom...we can go see movies for entertainment..even 2-3 months of electioneering is more than enough for most Canadians..and there are money caps on donations..and disclosure required. Too sensible, eh?
well we are in this together..north america's food system has been badly compromised.
See the neem vidoes..at the end of them..you can see what has happened to agriculture with big companies owning genetically modified products.
Sherry
Sherry Taylor said:You would miss it..do it gradually..that's what I'm trying... start with the raw but a couple of times a week allow yourself to have a favorite comfort food. Gradually eat more..I made a guacamole and a salad...and the coleslaw. Next..the juicer..makes a big mess though..worth it once you get into it. Get some ph strips from your pharmacy and test acit levels morning and night..the critters don't like alkaline. I'm looking at water ionizers again.
Also I hear atomonized water(smaller particles cleans better...from the net)..I think that is right and acid water too....hence I'm trying cleaning with vinegar too.
My medicinal tea is particularly bitter today..ugh diluting with water..my body seems to like it though...just not the taste buds. I saw my blood too..the guy said those things skittering around were normal...I know different..but I had mold in my blood..most likely "M" fungus..that is very bad..he said you will have cancer in a year if you don't get rid of that.
Guess I didn't get rid of it. This is so hard. My friend in Vancouver said you have to get rid of every possession and start all over...a few times. This is so expensive.
things/health..choose.
Sherry
Stuart said:Do you ladies know if a raw diet helps alot in getting rid of symptoms of M? I've had an intuition to try it, but I eat so much chicken/fish that I'd miss it so much if it didn't really work like gangbusters! Thanks, Stuart.
hi stuart, i am kind of new to the board but i wanted to say something. "some" dr's know it is real.like mine. he hasnt known me but for 4 months,and when i told him my symptoms he was the one who said MORGELLONS. he tolld me it was a govt conspiracy. he said it twice.i just said ya think? i didnt see dateline so didnt know about it. i came home and found all my info on the net.i am fighting a really bad hair/scalp mess. have been for 11/2 years.aboout the last year it moved all over my body. i have lost big patches of hair and am completely bald in places. the hair follicles are all infected.my body has worms in the pores that i dig out in the one hour soak i do each day.i dont havve a naturapath near me and dont know another soul in my life that has this. my dr. said he has one other patient who has it.dont know where to turn.thanks for listening/karen/angelblu
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Lucie E. said:
Hey Stuart,
I don't disagree with you about the funding research part nor about doing Something. You're right, we do have to do something, but as I've posted many times before we have to be smart about HOW we do it because right now we are passing for crazy. I don't think a panic is what we wan't either. I think you have the right idea about talking to curious or interested scientists or doctors though, that's definitely the right way to go. If we can get enough of right people curious about this we may eventually get results. I was mostly refering to some other folks who had been ranting about going down in the streets with picket signs when I mentionned caution. That sort of display would be usseless and counter-productive. As for a cover-up? I don't know about that. I think doctors are overworked and trust the only tools they have, the books, as inadequate as they may be on this. If you mean the CDC, well I'm Canadian so I don't know but I think these days it seems to be more about saving pennies while saving face. I think they just responded to pressure with a half assed study they weren't ready for and even less ready for the results they probably got. I'm not so thick that I'd believe they saw nothing in so many samples, they had bloods from people too. But I don't think they ever planned to have to spend a dime on this and doubt they will. That said I think you're on the right track...and I am frustrated too believe me.
Take care of yourself,
L.
Stuart said:Lucie & Asa,
Hey, I'm the guy with morgellons that Asa is talking about. We are extremely angry at the coverup which I think it is. I think you are right Lucie that people would treat us like lepers. But we have to do SOMETHING! I think we need to prove that this is real somehow and get real funding for more research. I had a naturopath look at a sample of my blood under the microscope and there were THOUSANDS of little things swimming in it! That is not normal obviously! If we all had this test done and it showed these things swimming, the medical world would have to say that we have something and it's not in our minds! I'm going to have this test done again and have it recorded onto a DVD to show hematologists and see what they say. ~Stuart.
Permalink Reply by Debra on February 12, 2012 at 11:35pm Google Caroline Carter, she is the naturopath who cured herself and she is in Cyprus.
I think that is whom you are talking about
Sherry Taylor said:
Do you happen through your computer magic skill to know how to find the address in Cyprus..there may be lots of people who would like to take advantage of that offer..we should ask permission again of course. s
Appreciate you much as always.. ovarian cancer symptoms returning..raw diet start up not liking the taste of the the chopped up black radish..which is really white inside, beets, carrot, cabbage.and some lemon squeezed(helps the taste a little) and pumpkin seed oil(for fun). That was my coleslaw dinner from the vitamix. I have to remember all the stuff from when I was really into health....not that i'm not now.but anxiety over "M kind of took over.
Sherry
Margaret B. said:You're welcome Sherry, and you were right. It is in Cyprus... in fact it is based in Sea Caves area of Pathos. It is one of the most beautiful places I have ever seen. Come to think of it; I felt in perfect health the whole time I was there as a tourist.
Sherry Taylor said:
aha..Sweden..well close to Cyprus..lol thanks again as usual..my excellent computer sleuth
YES!! Absolutely especially if you juice veggies along with it.
A good trial would be to go on a veggie juice fast for 3 to 7 days if you could.
If you don't have a good juicer/masticater like greenstar (non-centrifical) you can buy carrot/celery/beet juice..Biota has lactic acid--good stuff when fasting.
Lots of good recipes on the internet. Incorporate home made lemon juice/maple syrup/caynne pepper juice and salt-water bowel cleanse (recipes at Master Cleanser).
I can almost guarantee you will know after 5 days...maybe 3 or 4, if you will get help from raw foods or not.
Hope this helps.
Margaret
Stuart said:
Do you ladies know if a raw diet helps alot in getting rid of symptoms of M? I've had an intuition to try it, but I eat so much chicken/fish that I'd miss it so much if it didn't really work like gangbusters! Thanks, Stuart.
Hello Karen,
Renee C here, You are very lucky to have a Dr who believes you and told you the truth , that you do have Morgellon's. I am one of the lucky ones Also, My dr who I have been seeing for over 14 yrs, believed me also when I started getting these horrific symptoms and critters. She was trying to help me and understand what the hell is going on with me for months, then told me she also has another patient she has that has the same symptoms and sent her to a internal specialist that she heard of that was treating people that had Morgellon's etc. I was sent to him, and he confirmed that it is morgellon's. He treated me for 2 months, but nothing worked, well it did for couple months, but, they were streaming out of me like crazy, it was a nightmare for sure. Due to having no insurance, I stopped seeing him after I paid over 2 thousand in that two months, I got more relief off of this site in helping treating me to calm the symptoms down.
Anyway, you are a very lucky person to have a DR who believes that you are going through this.
Can I ask where you live?
I wish we had others in the same city or state to help eachother. I wish I could ask my doctor for information on the other girl she was treating so we can get together and help eachother and go over our information together.
karen Du Bois said:
hi stuart, i am kind of new to the board but i wanted to say something. "some" dr's know it is real.like mine. he hasnt known me but for 4 months,and when i told him my symptoms he was the one who said MORGELLONS. he tolld me it was a govt conspiracy. he said it twice.i just said ya think? i didnt see dateline so didnt know about it. i came home and found all my info on the net.i am fighting a really bad hair/scalp mess. have been for 11/2 years.aboout the last year it moved all over my body. i have lost big patches of hair and am completely bald in places. the hair follicles are all infected.my body has worms in the pores that i dig out in the one hour soak i do each day.i dont havve a naturapath near me and dont know another soul in my life that has this. my dr. said he has one other patient who has it.dont know where to turn.thanks for listening/karen/angelblu
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Lucie E. said:Hey Stuart,
I don't disagree with you about the funding research part nor about doing Something. You're right, we do have to do something, but as I've posted many times before we have to be smart about HOW we do it because right now we are passing for crazy. I don't think a panic is what we wan't either. I think you have the right idea about talking to curious or interested scientists or doctors though, that's definitely the right way to go. If we can get enough of right people curious about this we may eventually get results. I was mostly refering to some other folks who had been ranting about going down in the streets with picket signs when I mentionned caution. That sort of display would be usseless and counter-productive. As for a cover-up? I don't know about that. I think doctors are overworked and trust the only tools they have, the books, as inadequate as they may be on this. If you mean the CDC, well I'm Canadian so I don't know but I think these days it seems to be more about saving pennies while saving face. I think they just responded to pressure with a half assed study they weren't ready for and even less ready for the results they probably got. I'm not so thick that I'd believe they saw nothing in so many samples, they had bloods from people too. But I don't think they ever planned to have to spend a dime on this and doubt they will. That said I think you're on the right track...and I am frustrated too believe me.
Take care of yourself,
L.
Stuart said:Lucie & Asa,
Hey, I'm the guy with morgellons that Asa is talking about. We are extremely angry at the coverup which I think it is. I think you are right Lucie that people would treat us like lepers. But we have to do SOMETHING! I think we need to prove that this is real somehow and get real funding for more research. I had a naturopath look at a sample of my blood under the microscope and there were THOUSANDS of little things swimming in it! That is not normal obviously! If we all had this test done and it showed these things swimming, the medical world would have to say that we have something and it's not in our minds! I'm going to have this test done again and have it recorded onto a DVD to show hematologists and see what they say. ~Stuart.
Permalink Reply by Sherry Taylor on February 13, 2012 at 2:13pm Hi you lovely people,
I had my blood tested to..from an alternative practitioner in Michigan..Detroit..a Canadian who moved there..he said oh they are parasites..that is normal..but then pointed to these fungus blobs and said you will have cancer within a year if you don't get rid of those...i guess I didn't because at least the symptoms of the ovarian cancer are back..can't do my pants up..with some effort and cantron the pains have gone away..but I've no doubt Morgellons accelerated this particular type of ovarian cancer that I have.
Yes we shouldn't stand by and do nothing...but we may just be invalidated no matter what..so I wouldn't set ourselves up ..the moral uplift would be good.
There seems to be a definite black out in this area...despite credible science backing up..these problems..re carnicom's studies for one. How "discrediting" anyone trying to help is working so well is beyond me.
I guess it's true what my ex said..how could I want to live in a world where this is going on..so the collective mind just goes into denial.
Literally you could have stuff coming out of you in full view in front of a specialist in their office...and they would go with some specialists opinion who is not there and didn't see it...that it doesn't exist.
There is seriously something wrong with that. That is why this is spreading.
OK the army is doing research, NASA is, agri companies have proprietary(secret) rights re genetic research..using people from universities in exchange for lab funding. they get to not say what they are doing..this much we know.
Thank goodness we still have the net..so far.
I sure am disappointed in the medical profession's lack of integrity...and they get away with it.
Did I tell you I put the DE into a bowl of water, and a bowl of oil..the water one showed mites..and black bugs and a slime grew on the surface in under a minute. The oil didn't show it. I put some on each arm inside elbow..the water one a mess..the oil not so bad.
When we sweat that is "water"..the salt in water does help though...but not enough to prevent sweat eczema. I then wiped it off and rubbed vicks in.
Meanwhile the night before..while using the stuff DE that was contaminated...still getting over it..using neem oil very liberally..everywhere.
So store the stuff in a sealed large plastic container(like the kind for dog food)..use a scoop..to take out weekly supply..put it in a smaller sealed container..when you mix it with baking soda. Use rubber gloves or sprinkle from a smaller daily use..(I use a plastic yogurt one) container..if you stick your hands in it it will become contaminated.
Nice to hear from you..hi Lucie..you guys are a breath of fresh air...we mustn't give up.
I had a doctor in Vancouver who believed me but had no idea what to do, a naturpath..same deal..and walk in consult in Finlandia natural pharmacy..who said there was another client with this..they wanted help from me.
Here..its worse..the doctor..which took months to get..and she thinks I'm crazy and the CDC is God..so I ready to try the chines herbalist down the street.
I know by how things are flying off the shelves that lots of people have this. The walmart in Warren even has a section called "itch" now on it's aisle in the pharmacy/medical section. I find opened bottles of that gold bond stuff emptied in the aisle..gee wizz.
Also the mop's and brooms, pails are changing fast..go check it out.
WE just have to help because we can...without hurting ourselves of course.
Sherry
Permalink Reply by Nik the Brick on February 13, 2012 at 9:03pm Alkalizing foods and for the skin as well, like baking soda.
Permalink Reply by Sherry Taylor on February 14, 2012 at 12:52am Good one, Nik I'm making some progress..it's slow though..raised the ph a few notches..close to 7 now
Permalink Reply by Sherry Taylor on April 12, 2012 at 12:07am I meant the wall street protesters
Sherry Taylor said:
Yes!
Step one...
Thank you so very much for your support..we've had the idea..how to put it into action..you mean like wll street king of thing?
sherry
she rry, hi, i just wanted to tell you that i think jan smith that works with c. carnicom ia the one who mentioned the lady in cyprus
in one of her papers. truth denied or something.just read it the other day/karen
Sherry Taylo risaid:
I did hear of someone who offered to test anyone who sent their samples to them..got to think where I saw it.
This is all good.
I think..since the CDC gave the kaiser stuff over to the army..there is something fishy going on here re people responsible not wanting to have to own up or pay...try to make amends..fix it.
The New Zealand story today on the CBC..scientists merrily made an HiNi strain that could be passed from person to person.. Then went oh, my goodness a terrorist could use this..we'd better stop. I'm left speechless. It's only by chance the scientists haven't killed us off already..through stupidity. They are like children plying with fire..big companies like parents leaving matches around. They said if something like this got out it very well could start a pandemic like the 1918 Spanish flue. There are already serious problems with birds carrying nastier strains..in the front of cold fronts..outbreaks are occurring.
The other consideration re quarantining...that did happen in my meditation group when they realized how contagious this is..you couldn't be around anyone in the group unless you were symptom free for at least 3 months. It stopped the spread..but was very hard..I'm one of the people..and it's been 3 years. That group knows exactly what the ramifications are...everything in ashram rooms affected had to be gutted and burned/thrown out.. especially anything textile..wood can be a problem, gyp-rock, cement and brick, metals...any irregular surface that critters can crawl into and hide..or spores can get into from the air. Water sources can get infected to..big attraction there....and the earth..plants...that just about covers it.
Some people don't get it, and some do get better. Some have it and are carriers but don't show symptoms, and some look it in the face and go into denial..even though the evidence would lead a person to conclude..it is flying off of them(the brain gets compromised). You can see how complex this is.
Not treating anyone is the single most damaging thing the medical and scientific community can do...just plan stupid..and I'm so glad you want to help. There are a number of people
who are with you on this site.I'm thinking that woman who volunteered to do the testing was from Cyprus.
I'm not that skilled at the computer but I'll try to find this.
People are dying and the powers that be are calling it other things because they aren't allowed to say the word "Morgellons". a name just allows people to talk about a group of symptoms..that's all. so no one can talk about it..who is in an official capacity to help.
Some have don't bits actually..but then stopped..or we just haven't heard from them in a long time. Some like Staninger are still working on it.
While some theories sound pretty far out there..the more you get into this the more they start to sound not so.."far out there". Innocence lost..and one can't go back.
I agree re people standing up for what they want..fighting for rights..lets do it. Do we walk into congress with our sores dripping? Just wondering. i don't mean too be mean or dangerous..game plan..1,2,3. Any ideas? If it is a good one people will follow.
Sherry
That's what they do in chicken houses when they get infected if the chemicals, and cleaning don't work.
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