Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Time for unified action to get the recognition and medical help you deserve.
Maybe it is time we take action and take this into our own hands instead of waiting another 3 years for the CDS to share their findings? All over the world people are now rising up agains injustice. Why not us. I want to be able to hug or even visit my friend, who has Morgellons, without being afraid. In my experience it is contaigious. His pet has it and my nose and fae still tickles after visiting him.
I don´t have morgellons. A very dear friend of mine has. We would be getting married probably if it wasnt for his illnes. I am outraged by reading much of the official and non-official information about morgellons I find. It is a disgrace and an outrage how morgellon sufferers are treated by the media and the medical community in particular. My heart goes out to all of you. My friend and I are discussing if it isn´t time to come together in an organized way, not only to support one another, but to take direct action and demand that tests are done, or we do them ourselves. Some of the people here must have medical or bioengineering training? My friend is a biologist and I am an audologist. Together, all of us could contribute something that will actually lead to a real definition of Morgellons that DOES NOT include the word delusional parasitosis! What do you all think?
Åsa from Sweden
Views: 227
Replies to This Discussion
-
Permalink Reply by Sherry Taylor on -
Yes!
Step one...
Thank you so very much for your support..we've had the idea..how to put it into action..you mean like wll street king of thing?
sherry
-
Permalink Reply by Asa Fors on -
Hi Sherry,
I dont know what the best thing would be to do. It is hard to understand how wo many, thousands of people all over the world, are reporting the same symptoms, and the medical community still doesnt take it seriously. It is just infuriating.
All the best to you!
Asa
Sherry Taylor said:Yes!
Step one...
Thank you so very much for your support..we've had the idea..how to put it into action..you mean like wll street king of thing?
sherry
-
Permalink Reply by Lucie E. on -
Asa,
You have a point about it being infiuriating for it not to be taken seriously when so many suffer. I don't have the answer as to why though, but I can suspect. Doctors here are overworked and only ever seem to have time for easy prepackaged cases concerning stuff they know, and even then they often make mistakes. They don't have time and aren't very often given the means to investigate something unknown, least not here. There is a lot of arrogance too...easier to say it's in our heads than to admit they don't know and are powerless for now, that's human nature. As for the CDC's reaction we all know about, I can only imagin that they did see something in ALL those samples they took and are not willing to cause a panic by admitting their impotence (this is a hypothesis). Or, they simply did very poor research. Sounded like pretty botched up work to me but they whitheld the results so long after the research was done to "compile data" that seems to me it wouldn't take two years to determine that it's all in our heads! Look, I'm not one for panic or paranoïa, really am not trust me, but I have enough brains to know when I'm being fed a bunch of nonsensical information, contradictions and general inconsistencies in someones speech, heck thats my specialty! I'd rather assume it's with the best intentions that people do things but I don't believe for a second that it makes any logical sense for this to be in ALL our heads, it would be a statistical improbability of astounding magnitude, I'd sooner win the lottery jackpot. That said I'm not one of those folks that believe this is engineered. I'm betting on sumthing natural that we simply havent figured out like a bug or organism of somekind. I read very old reports about something very much like this thing dating back to the 1930's! There was no bio-engineering then, not as we know it at least. About public action and WHY this may be buried by some or passed as delusional. Well here is a little food for thought. What if everyone tommorow started believing in this, really believing, and fearing us as potentially contagious! Does anyone remember how lepers were once treated! Heck, being called a leper is now a common expression for being rejected and shunned! If this came out without a solution being available, you could expect for us all to be treated exactly like lepers and believe me it wouldn't take long before your RIGHTS wen't flying out the window. How many people today get shunned for things like Bed Bugs, of all the simple non life threatening things we DO have answers for, regardless of them being a pain. Imagin the reaction to MORGS now. Don't think an Agency like the CDC dosen't know all about how the public would react to an illness like this being around. Controlling these things is part of their job, I think. That or they're REALLY incompetent! In any case, I know it's like a double edged blade but right now being invisible and people not believing us helps us as much as it hurts us. I know some people ARE researching this out there but most are probably doing it out of the spotlight. If this thing ever gets out in the public (and is taken seriously) don't expect sympathy from most, expect fear!
On a personal note Asa, I respect you for being a friend to one of us sufferers. Contrary to what my words may sound like I DON'T endorse secrecy, it does hinder research. But I know how afraid people are going to be to even come near us when they become aware of this reality. It won't be any different than it is for many other ilnesses in that way.
Good Fortune to you and your friend,
L.
-
Permalink Reply by Lucie E. on
-
Asa,
By the way, the CDC did finally share their "findings". I read they called it delusional. Again.
L.
-
Permalink Reply by Stuart on
-
Lucie & Asa,
Hey, I'm the guy with morgellons that Asa is talking about. We are extremely angry at the coverup which I think it is. I think you are right Lucie that people would treat us like lepers. But we have to do SOMETHING! I think we need to prove that this is real somehow and get real funding for more research. I had a naturopath look at a sample of my blood under the microscope and there were THOUSANDS of little things swimming in it! That is not normal obviously! If we all had this test done and it showed these things swimming, the medical world would have to say that we have something and it's not in our minds! I'm going to have this test done again and have it recorded onto a DVD to show hematologists and see what they say. ~Stuart.
-
Permalink Reply by Sherry Taylor on
-
I did hear of someone who offered to test anyone who sent their samples to them..got to think where I saw it.
This is all good.
I think..since the CDC gave the kaiser stuff over to the army..there is something fishy going on here re people responsible not wanting to have to own up or pay...try to make amends..fix it.
The New Zealand story today on the CBC..scientists merrily made an HiNi strain that could be passed from person to person.. Then went oh, my goodness a terrorist could use this..we'd better stop. I'm left speechless. It's only by chance the scientists haven't killed us off already..through stupidity. They are like children plying with fire..big companies like parents leaving matches around. They said if something like this got out it very well could start a pandemic like the 1918 Spanish flue. There are already serious problems with birds carrying nastier strains..in the front of cold fronts..outbreaks are occurring.
The other consideration re quarantining...that did happen in my meditation group when they realized how contagious this is..you couldn't be around anyone in the group unless you were symptom free for at least 3 months. It stopped the spread..but was very hard..I'm one of the people..and it's been 3 years. That group knows exactly what the ramifications are...everything in ashram rooms affected had to be gutted and burned/thrown out.. especially anything textile..wood can be a problem, gyp-rock, cement and brick, metals...any irregular surface that critters can crawl into and hide..or spores can get into from the air. Water sources can get infected to..big attraction there....and the earth..plants...that just about covers it.
Some people don't get it, and some do get better. Some have it and are carriers but don't show symptoms, and some look it in the face and go into denial..even though the evidence would lead a person to conclude..it is flying off of them(the brain gets compromised). You can see how complex this is.
Not treating anyone is the single most damaging thing the medical and scientific community can do...just plan stupid..and I'm so glad you want to help. There are a number of people
who are with you on this site.I'm thinking that woman who volunteered to do the testing was from Cyprus.
I'm not that skilled at the computer but I'll try to find this.
People are dying and the powers that be are calling it other things because they aren't allowed to say the word "Morgellons". a name just allows people to talk about a group of symptoms..that's all. so no one can talk about it..who is in an official capacity to help.
Some have don't bits actually..but then stopped..or we just haven't heard from them in a long time. Some like Staninger are still working on it.
While some theories sound pretty far out there..the more you get into this the more they start to sound not so.."far out there". Innocence lost..and one can't go back.
I agree re people standing up for what they want..fighting for rights..lets do it. Do we walk into congress with our sores dripping? Just wondering. i don't mean too be mean or dangerous..game plan..1,2,3. Any ideas? If it is a good one people will follow.
Sherry
That's what they do in chicken houses when they get infected if the chemicals, and cleaning don't work.
-
Permalink Reply by Margaret B. on -
Hi Åsa from Sweden
This is Margaret from Ontario, Canada.
Lovely to meet you.
I agree that this is contagious. I have had M since 2000, I met my honey in 05, and now he and his two boys have it along with me and my son, and three friends (that I know of).
It can take years for the symptoms to manifest and be recognised. I believe it only takes one contact because it is so small, so numerous, so diverse, and it get into everything everywhere.
I also believe that there are some that just don't contract it even if in close proximity.
My favourite belief is that maintaining strong spiritual connections, good physical health, and keeping as sane as possible are some of our greatest "medicines".
I wish you and yours health, prosperity, and great love and happiness.
Thank you for your motivational input; it really helps us to have faith and hope.
With love, always with love,
Margaret
-
Permalink Reply by Margaret B. on
-
Hi Sherry and Asa:
Yes, Sherry, I found a site that may contain the info you mentioned:
Read the full article here:
http://www.thetruthdenied.com/news/2011/11/10/healthy-healing-carol...
Live Blood Analysis – ONLY – €40.00
I'll post the full article.
Thanks again and again and again...lol,
Margaret
Sherry Taylor said:I did hear of someone who offered to test anyone who sent their samples to them..got to think where I saw it.
I'm thinking that woman who volunteered to do the testing was from Cyprus.
-
Permalink Reply by Sherry Taylor on
-
aha..Sweden..well close to Cyprus..lol thanks again as usual..my excellent computer sleuth
-
Permalink Reply by Margaret B. on
-
You're welcome Sherry, and you were right. It is in Cyprus... in fact it is based in Sea Caves area of Pathos. It is one of the most beautiful places I have ever seen. Come to think of it; I felt in perfect health the whole time I was there as a tourist.
Sherry Taylor said:
aha..Sweden..well close to Cyprus..lol thanks again as usual..my excellent computer sleuth
-
Permalink Reply by Sherry Taylor on
-
Do you happen through your computer magic skill to know how to find the address in Cyprus..there may be lots of people who would like to take advantage of that offer..we should ask permission again of course. s
Appreciate you much as always.. ovarian cancer symptoms returning..raw diet start up not liking the taste of the the chopped up black radish..which is really white inside, beets, carrot, cabbage.and some lemon squeezed(helps the taste a little) and pumpkin seed oil(for fun). That was my coleslaw dinner from the vitamix. I have to remember all the stuff from when I was really into health....not that i'm not now.but anxiety over "M kind of took over.
Sherry
Margaret B. said:You're welcome Sherry, and you were right. It is in Cyprus... in fact it is based in Sea Caves area of Pathos. It is one of the most beautiful places I have ever seen. Come to think of it; I felt in perfect health the whole time I was there as a tourist.
Sherry Taylor said:
aha..Sweden..well close to Cyprus..lol thanks again as usual..my excellent computer sleuth
© 2012 Created by Dwayne Coots.
