Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
New to this network
I just joined this network. I have been suffering from Morgellons for the past two years, first on my head and below my knees. For the past year, just below my knees. I have tried about every cure imaginable but cannot get rid of it.
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Replies to This Discussion
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Permalink Reply by Shellie on -
Welcome Linda!. What products have you used over the last 2 years of this trying ordeal? Are you the only one in your home that is dealing with this?
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Permalink Reply by Linda LeFevre on -
I have tried all of the All Stop Products and the Nutracuetical Products. They help for a while, but it never really goes away.
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Permalink Reply by XUANHU on
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To cure the morgellons diseas by Traditional Chinese medicine
I am a Chinese doctor and I have studied morgellons disease for three years,morgellons disease have no cure till now.
However, Traditional Chinese medicine(TCM) can be used in the dynamic analysis of the overall concept to the treatment, and through the diagnosis and treatment of TCM system. can eliminate symptoms, cure diseases It is a natural therapy.It is the 5000 years of Chinese medical culture of the essence. TCM ,a great treasure-house of culture is an indis pensable part of splendid classic chinese culture.There are many disease which have not been able to diagnose the result by western medicine ,still can diagnose the result with TCM whethe they show clinical symptoms or subclinical.
Although I have never seen the Morgellons disease,but in the treatment of chronic diseades, dermatology, epidemiology, infectious diseases, mental health we produced a good curative effect and in the light of our past experienceI once curedthe symptoms about Morgellons that showing against the symptoms such as fatigue, chronic musculoskeletal pain, recurrent headaches, bowel and bladder discomfort, short-term memory problems and numbness of feet and toes. cognition difficult attention not concentrated, severe mental confusion,joint pain and serious faligue and body aches,neurological disorcters etc...We treat skin suffering severe illness is miraculous, particularly of the skin ache and itches that the virus cause hard to endure. Through the treatment ,the rapid pain-relieving,the inflammation dissipate promptly .For example, singles is also involved nerve damage to the skin disease or infectious diseases, through our treatment, Inflammation anxiety dissipated quickly .It would be recovered after one or three treatment.Furthermore we use our special TCM of many viral diseases, inflammatory their efficacy is superior to the use of antibiotics treatment of .When some mental patients, patients with depression also suffer from pyelonephritis, myocarditis, If we use the special TCM to regulate the hypothalamus, pituitary, adjustment disorder caused by the endocrine abnormalities. and coupled with the treatment of diseases, the condition quickly improved, it's efficacy is far better than antibiotics.
I think that Morgellons disease is unbalanced system including external causes bacteria and viruses, internal immune system, nervous system, endocrine system result in of unblance inside the human body, still have a pollution source ,the nourishment lack etc...
TCM therapy can be termed functional regulation Therapy, and in the treatment of diseases is not simply against the organizational structure of disease, instead of to remove tissue lesions, kill germs as the basic characteristics of the confrontational treatment, but the establishment of a set of human intangible relations function of self-organizing and self-regulating system of treatment, set up a functional dynamic adjustment model. I inherited from the ancestors and family valuable medical experience, through several decades of clinical treatment, a special master of TCM has accumulated a wealth of clinical experience.We have cured many disease which western medicine have treated ineffevtive .For the treatment of inflammation ,pain,the effect is superior to other effects... including bacteria and inflammation aseptic inflammation. Rapidly improve blood circulation obstacles. For mental, nervous system disease high cure rate. For treatment of influenza and virus influenza effect rapidly, 3 -5 days generally cured. For internal disease and surgical disease undiagnosed cases curative effect remarkable . Our special TCM treatment for certain toxic effect of the disease significantly, the kind of therapy, detoxification function better than any other therapy. I sincerely hope to reduce or eliminate pain for Morgellons patients .
E-mail: ti_2573@yahoo.com.cn
xuanhu
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Permalink Reply by Linda LeFevre on
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Lynda Lee Cook said:I too am new here, I have scabs everwhere and little white"sand-like"things that come off of my body at night, I find them in my sheets. I also find these"hairs" that are either white or bluish black and white. I have seen the little white thigs "swim" in the toilet water(They become translucent)as well as the hairs. I kow this sounds crazy, but I've gone through two comforters that the stuffing seems to come out of and spread on the surface.At night I can see the "stuffing hairs" standing on end,they have very life-like movements and appear to be "searching" for something to stick to. when they do, and I pull them off, they begin moving again. I have had lice before but these things DO NOT ever move unless they become wet(Except the "hairs") Both of my cats now have these "white things"on their hairs,as do I.I am sure this is some kind of parasite or mite and now that I have a visual(after a year) I am going to try a doctor once again on Monday! I will keep you posted,but in the meantime has anyone out there seen anything like this? They also get into my clothing and do not come off or out very easily. They are smaller than any lice or mites I have ever seen and I cannot distinguish any features with a magnifying glass other than they appear to be a triangular type shape. If ANYONE can help me PLEASE respond I am on the verge of a nervous breakdown! Thank you!
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Permalink Reply by YetteJohnson on
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hello, my name is tammyJonson I'm suffering from Morgellons very bad. For the past year I've been suffering from morgellons disease I've been expiriencing crawling sensations all over my back area, scalp, and lower legs. Also I've been experiencing itching biting burning sensations all over my body. The only thing that i haven't experienced "THANK GOD" is skin lesions. My hair fell out tremendously i suffer from chronic fatigue and i have thyriod promblems which caused me to loose alot of weight. This situation is driving me absolutely crazy, recently i went on youtube for a discussion about morgellons and a guy was talking about how morgellons was a manmade disease. He also talked about "THE RED WINE TEST" he mentioned that if a person is concerned about having morgellons that they should go out and purchase a bottle orf red wine take it home and swish the red wine in your mouth for at least five minutes then spit it out in the toilet bowl. I tried the red wine test myself and i wasn't happy with what i witnessed come out my mouth. I saw small stringy substances that was coated with the red wine moving around in the toilet bowl. Please, I encourage everyone who hasn't tried the "REDWINE TEST" to try it because it's a scary alarming situation. Please contact me A.S.A.P I'm in desperate need of a cure. Thank You!
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Permalink Reply by ann u chang on
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Linda, it is terrible we have these things, and there is no help from health care, or government, i ve'had this thing you describe for about 3 years, and been to many doctors, only to hear that i am crazy, from my dog's vet, dermotologists, urgent care doctors, after i wasted thousands of dollars, still searching for help daily on internet, the only thing give me little relief for me and my dog is use of enzyme cleaner, i use this to wash often,and seems to help temporarily, conventional insecticide does'nt seem to do anything for these parasites, i had pest control contract for years and did my house througly, and it does'nt do anything, you have to remove these parasites manualy by cleaning and dusting with bleached damp cloths, these parasites seems fungal in nature and sticks to everything, it is everywhere like specs of dust, and these parasites developes from dust, i don't think i will ever get rid of all of them, it gets on me the worst when i am in the car, especially when air conditioner is on, these seems to like cooler whether, 70-80 degree, there is thousands of lint, or fiber like dusts floating in the air, and it is coming down and landing on me while i am driving,they are very sticky and you can't dust off you, recentely, i tried rose fungicide from home depot, which is sulfur based, i sprayed it all over my car, it worked good, lot of sticky white fiber cleaned up, and disappeared, then i used diatomacious earth dust on carpet under the floor matts, i saw lot of black specs, which i believe is mites, it might be collembola, dead under the matts, just try to do this at least once a week, they will gradually disappear,
i read article about people taking ivermectin drug, horse dewormer, i know for fact it helps, it did help my dog at the beginning of this infestation, many parasite fell off him, which looked like lints, all sort of fiber fell off him, and i was determined to try it on myself, i went to several doctors but no one will prescribe this med to me, so i ordered on line from offshore company, it did helped me immediately, i took this med twice every 10 days, my feet had thick cracked skin with fungus for last 3 years, i did everything, but could not get rid of them, after about 2 week, the cracks start to disappear, i definitely saw lot less white specs on my clothing, i used to think my body is producing these white fiber like specs, after ivermectin treatment, it seem to less of these specs stuck in the fiber of my clothing, i think ivermectin might killed parasites in and on my body,
then slowly i start to feel these parasites again, i believe it is in my environment, my house, my car, work place, i see them in grocery check out stand, no matter how much i clean the house and the car, they come out of somewhere, it seems airborn, floating in the air, it might be dust mite allergy i am experiencing, but i never had this allergy until 3 years ago, when i got bit by some microscopic insect, which looks like microscopic tick, i had bug crawling all over feeling for about a month in 2006, these bugs might be a collembola, it is so small, almost invisible,i am not sure it is collembola or some sort of micro-filarial nematode i am dealing with, i read about microfilarial worm infection, and it coincide with many symptoms i am experiencing, i have another doctor's appt. next week, and i don't know if it will be a breakthrough for me or same kick in my guts, waste of my money to hear that i am insane again, i like to hear if anybody have better solution to get rid of these parasites from the car, and like to hear what you say about larval worm infection, did anybody with this condition tested for microfilaria, one more thing, i found collembola on my dog's fur, and on my bedcover,
and there is many little tiny knats flying around my house, i don't know the name of these knats, may be it is some sort of fungus knats, it is in my house and all around exterior of my house, i wonder may be these white specs comes out of my body is egg of those fungus knats, morgellon has something to do with collembola, and these fungus knats, or some sort of fly, carring larval worms,if anyone experiencing same sort of things, or knows anything, please let me know
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Permalink Reply by k on
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I am experiencing some of these symptoms, not enough to go to Dr. The little black specs, the acne type of skin problems on face, white sand like things, seeing gnats that never have been around this early in the year, face broke out with oil pulling, moving from mouth across cheeks to scalp. Itching in ears, - when salt and baking soda are applied to face, little white worm looking things emerge. I read that they don't like baking soda or salt. I was brushing teeth with baking soda after oil pulling. Could this have caused them to be irritated and move away from the mouth area?
ann u chang said:Linda, it is terrible we have these things, and there is no help from health care, or government, i ve'had this thing you describe for about 3 years, and been to many doctors, only to hear that i am crazy, from my dog's vet, dermotologists, urgent care doctors, after i wasted thousands of dollars, still searching for help daily on internet, the only thing give me little relief for me and my dog is use of enzyme cleaner, i use this to wash often,and seems to help temporarily, conventional insecticide does'nt seem to do anything for these parasites, i had pest control contract for years and did my house througly, and it does'nt do anything, you have to remove these parasites manualy by cleaning and dusting with bleached damp cloths, these parasites seems fungal in nature and sticks to everything, it is everywhere like specs of dust, and these parasites developes from dust, i don't think i will ever get rid of all of them, it gets on me the worst when i am in the car, especially when air conditioner is on, these seems to like cooler whether, 70-80 degree, there is thousands of lint, or fiber like dusts floating in the air, and it is coming down and landing on me while i am driving,they are very sticky and you can't dust off you, recentely, i tried rose fungicide from home depot, which is sulfur based, i sprayed it all over my car, it worked good, lot of sticky white fiber cleaned up, and disappeared, then i used diatomacious earth dust on carpet under the floor matts, i saw lot of black specs, which i believe is mites, it might be collembola, dead under the matts, just try to do this at least once a week, they will gradually disappear,
i read article about people taking ivermectin drug, horse dewormer, i know for fact it helps, it did help my dog at the beginning of this infestation, many parasite fell off him, which looked like lints, all sort of fiber fell off him, and i was determined to try it on myself, i went to several doctors but no one will prescribe this med to me, so i ordered on line from offshore company, it did helped me immediately, i took this med twice every 10 days, my feet had thick cracked skin with fungus for last 3 years, i did everything, but could not get rid of them, after about 2 week, the cracks start to disappear, i definitely saw lot less white specs on my clothing, i used to think my body is producing these white fiber like specs, after ivermectin treatment, it seem to less of these specs stuck in the fiber of my clothing, i think ivermectin might killed parasites in and on my body,
then slowly i start to feel these parasites again, i believe it is in my environment, my house, my car, work place, i see them in grocery check out stand, no matter how much i clean the house and the car, they come out of somewhere, it seems airborn, floating in the air, it might be dust mite allergy i am experiencing, but i never had this allergy until 3 years ago, when i got bit by some microscopic insect, which looks like microscopic tick, i had bug crawling all over feeling for about a month in 2006, these bugs might be a collembola, it is so small, almost invisible,i am not sure it is collembola or some sort of micro-filarial nematode i am dealing with, i read about microfilarial worm infection, and it coincide with many symptoms i am experiencing, i have another doctor's appt. next week, and i don't know if it will be a breakthrough for me or same kick in my guts, waste of my money to hear that i am insane again, i like to hear if anybody have better solution to get rid of these parasites from the car, and like to hear what you say about larval worm infection, did anybody with this condition tested for microfilaria, one more thing, i found collembola on my dog's fur, and on my bedcover,
and there is many little tiny knats flying around my house, i don't know the name of these knats, may be it is some sort of fungus knats, it is in my house and all around exterior of my house, i wonder may be these white specs comes out of my body is egg of those fungus knats, morgellon has something to do with collembola, and these fungus knats, or some sort of fly, carring larval worms,if anyone experiencing same sort of things, or knows anything, please let me know
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Permalink Reply by Linda M. Yard on
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Hi, I'm not sure to whom I'm writing this to but I need help so very badly that I am having serious mental health problems and am ready to give up on life, if this is what it is to live I'd rather not . I have tried everything that all stop has recommended plus tried other things as well like vinegar, virgin coconut oil, pepperment oil, anything that I could think of that may help but to no avail. as soon as one spot clears another and another pop up. I have sores and scabs in my hair and head, neck, back, legs, just about everywhere there is skin. Plus in my eyes and eyelids, nose, etc so you see why I am at my nerves end. My doctor told me if I could find info on this and if there was some sort of cure he would be more than happy to help me in my search for something to work on, I don't have a printer in order to give him any info so I am still where I started at. He said that he didn't have the time to look up the info, but at least I finally convinced him that there is something going on, and the fact that he is willing to try to help is a plus. When I first mentioned it to him. right away a script for a head Dr. so at least he's listening and maybe has heard of this but has not said anything to me about any findings on his part if any. When I mentioned to him about the center of disease, and the hospital in California working together to see if there are any related findings in the people in the program that is when his ears perked up, I guess he figured if they were looking into this there must be something really going on. If there is any way that I could get some info with whatever findings or tests that have run, I would appreciate it if someone could send them to me. Of course I would reimburse postage. Someone please help me before I just give up. My address is 32084 Glen St. Westland Mi 48186, Any info would be helpful. Thank You, Linda M. Y grandsko@sbcglobal.net I would love to get people together and write letters or whatever else it would take to help us get the news out in the open more so than it is now. Getting the people from the center of disease to open their mouths and to put this in the medical journal that most Dr's get. We need some loud voices and I for one would be willing to do what ever it takes to get the attention this disease`needs!!! Lets try. lets work together, if enough noise is made about this someone will need to listen, one person alone will not work, it needs to be in numbers, as many people we can get the better for us. Let us all try to talk to each other to get something going. Together we will and can get action.
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Permalink Reply by Linda LeFevre on
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Linda M. Yard said:Hi, I'm not sure to whom I'm writing this to but I need help so very badly that I am having serious mental health problems and am ready to give up on life, if this is what it is to live I'd rather not . I have tried everything that all stop has recommended plus tried other things as well like vinegar, virgin coconut oil, pepperment oil, anything that I could think of that may help but to no avail. as soon as one spot clears another and another pop up. I have sores and scabs in my hair and head, neck, back, legs, just about everywhere there is skin. Plus in my eyes and eyelids, nose, etc so you see why I am at my nerves end. My doctor told me if I could find info on this and if there was some sort of cure he would be more than happy to help me in my search for something to work on, I don't have a printer in order to give him any info so I am still where I started at. He said that he didn't have the time to look up the info, but at least I finally convinced him that there is something going on, and the fact that he is willing to try to help is a plus. When I first mentioned it to him. right away a script for a head Dr. so at least he's listening and maybe has heard of this but has not said anything to me about any findings on his part if any. When I mentioned to him about the center of disease, and the hospital in California working together to see if there are any related findings in the people in the program that is when his ears perked up, I guess he figured if they were looking into this there must be something really going on. If there is any way that I could get some info with whatever findings or tests that have run, I would appreciate it if someone could send them to me. Of course I would reimburse postage. Someone please help me before I just give up. My address is 32084 Glen St. Westland Mi 48186, Any info would be helpful. Thank You, Linda M. Y grandsko@sbcglobal.net I would love to get people together and write letters or whatever else it would take to help us get the news out in the open more so than it is now. Getting the people from the center of disease to open their mouths and to put this in the medical journal that most Dr's get. We need some loud voices and I for one would be willing to do what ever it takes to get the attention this disease`needs!!! Lets try. lets work together, if enough noise is made about this someone will need to listen, one person alone will not work, it needs to be in numbers, as many people we can get the better for us. Let us all try to talk to each other to get something going. Together we will and can get action.
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Permalink Reply by Linda LeFevre on
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I have read all of your replies. I can relate to most all of them. I have the burning sensation on my lower legs and when I rub them with oil or lotion, tiny black specs come out. I also have white things come out that feel like tiny rocks. They are hard and painful when I rub them out of my skin. Thank goodness, I no longer have them on my head and one of my legs has cleared up. I am hoping that the other leg will follow suit. I have been to two dermatologists and one internist and all of them think that it is all in my head and that my "scratching" has caused the problem. One even gave me a drug that is usually prescribed for people who are schizophrenic. I am a well-adjusted professional woman. I do not have a history of mental problems and have a normal happy life now (except for this malady). I have a lot of family support. They are worried and sympathetic and just want me to be well.
I believe that I have something called "black pepper mites" and that it has developed into something more serious like, maybe, crusted scabies. I do not know how I got it, unless it may have been from a kitten that I adopted in 2002. It had something on its head that was crusted and I washed and rubbed it off. My little Yorkie soon developed something similar (the cat got well) and kept the condition for about 3 years, when I finally got rid of it with sulphur baths. I seemed to get invaded by the parasites every time I got a break in my skin (like when I skinned my knee very badly in 2006). From there, it seems that my body was invaded with the varmites and I have been battling them ever since.
I am hoping that this last leg can be cleared up and I can be free....free....free...at last after about 6 years of dealing with these pests.
Has anyone else experienced anything like I have?
Linda
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Permalink Reply by Mary Jones on -
Hi Linda,
I have found that these things that have made us their host LOVE INJURIES. I have put some of my experiences on this web site and when I believe have figgured out something related to the illness I will post a blog. One of the symptoms I have realized is that weight is put on the body in "lumps" until they merge into what looks like fat...and the doctors will make ignorant...ok...STUPID "professional observations" like "you are getting older OR it's just fat OR stress is causing the problem OR you're picking or scratching the holes or scars on your skin." Don't get mad - just tell them ignorance has a cure and I can be too; then leave.
The worms are tranparent therefore the doctors can't see them; most of them won't touch you either so they know there is something. They are given a tool kit when they graduate from medical school and they are doing what they have been taught. Another unfortunate predicament(?) is that they are not supposed to undermine another doctor, especially a "well respected" one, so when a WRONG DIAGNOSIS is placed in your medical record it will follow you at least across America.
There will be a cure but how many of those that were slandered will get it is to be seen.
I will recommend using Eucalyptus products; 1. Shampoo, 2. Body Wash, 3. Oil put on cotton and placed in your vacuums exhaust, 4. Soap, ETC.
Also Oil Of Oregano, I have found the pill version opened with a pin and rubbed on trouble spots.
Amonia sprayed (saturated) on laundry and add bleach in appropriate holder on machine so it will be added while machine is closed. Another good laundry additive is Extreem Clean from Pura Clean.
Avoid recycled payer; i.e., news paper, soft toilet paper (charmen, northern, the best I have found is Scott), paper plates without a coating, etc.
Spray the tiny white flies with amonia. Strong amonia...not from grocery or dollar store.
The eggs can be cleaned up with Kleen Free.
Last - REALLY HOT pads placed over paper towels sprayed with Amonia to protect skin from being burned. If amonia negatively affects your skin use a damp towel.
God Bless you,
Mary Jones
Linda LeFevre said:I have read all of your replies. I can relate to most all of them. I have the burning sensation on my lower legs and when I rub them with oil or lotion, tiny black specs come out. I also have white things come out that feel like tiny rocks. They are hard and painful when I rub them out of my skin. Thank goodness, I no longer have them on my head and one of my legs has cleared up. I am hoping that the other leg will follow suit. I have been to two dermatologists and one internist and all of them think that it is all in my head and that my "scratching" has caused the problem. One even gave me a drug that is usually prescribed for people who are schizophrenic. I am a well-adjusted professional woman. I do not have a history of mental problems and have a normal happy life now (except for this malady). I have a lot of family support. They are worried and sympathetic and just want me to be well.
I believe that I have something called "black pepper mites" and that it has developed into something more serious like, maybe, crusted scabies. I do not know how I got it, unless it may have been from a kitten that I adopted in 2002. It had something on its head that was crusted and I washed and rubbed it off. My little Yorkie soon developed something similar (the cat got well) and kept the condition for about 3 years, when I finally got rid of it with sulphur baths. I seemed to get invaded by the parasites every time I got a break in my skin (like when I skinned my knee very badly in 2006). From there, it seems that my body was invaded with the varmites and I have been battling them ever since.
I am hoping that this last leg can be cleared up and I can be free....free....free...at last after about 6 years of dealing with these pests.
Has anyone else experienced anything like I have?
Linda
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