Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
GLOBAL MORGELLONS DAY(S) JUNE 1ST, AUGUST 1ST, 2012
Dear Members:
Many months ago, I read a comment under a picture or video on our beloved site here that gained a little notoriety on other Morgellons sites. I wish I would have documented it, but at the time, I just shrugged my shoulders and went on with my business. The comment was a reflection of its creator’s frustration and described how the M sufferer (that belongs to this site) enjoyed or felt vindicated “torturing” the little critters.
The response to the comment on the other site was, people afflicted with Morgellons already have little to no credibility, so when one of us posts comments like this, it destroys our chances of having any credibility.
We are all just trying to get a handle on this thing. We are all guilty of posting less than perfect posts 100% of the time.
Yes, of course, we all have theories. In order to get a handle on any problem, the problem has to first be identified so that a congruent course of action can be taken. I have read all the theories... that M is man-made, of alien descent, a natural mutation, and an evil demonic plague spread to terrorize mankind.
It seems to me that there is no problem with the reality of M; Morgellons is about as real as it gets!
I have O positive blood, chocolate blackish-brown eyes, brown hair, am of Romanian/British/Austrian descent, and I have Morgellons.
I have been sitting back for the last few weeks, reading, researching, and observing.
The number one problem is:
WE FEEL HELPLESS
WE HAVE NO IDEA HOW TO PERSUADE THE POWERS—THAT-BE, TO HELP US.
We are all frustrated and don’t know what to do, so rather than dividing to conquer, why don’t we organize a day or two GLOBALLY where people:
- Congregate at the nearest city-town hall
- Bring a letter in a stamped envelope addressed to the most effective place of their choosing.
- Stage a peaceful march to the city post office and mail the letters.
- Each envelope could have a number on it representing the number of sufferers in that family.
- I’m sure that there would be one or many volunteers who could count the numbers on the letters, so we would have an idea how many of us are out there.
- Make it on 2 summer days…one in June and one in August. The weather would be tolerable, the two days would give more people a chance to participate.
- We could see where it would take us, anyway.
- I would show up on say…June 1st and August 1st….anyone else?
- We could spread this around to all the M sites…there aren’t that many…
What do you think?
Is this do-able?
Why not?
Really…I am asking legitimate questions…
With love, Always with love,,
Margaret
This is how it goes; someone has an idea that peters off into distant memory.
I am going to DO something.
- I am going to go to my town hall at 12:00 noon EST on June 1st and August 1st .
- I am going to bring a letter or maybe 2 or 3.
- I will bring a sign that reads, "Please do not disturb; praying for Morgellons sufferers"
- I am going to sit in a lawnchair and quietly pray for an hour
- At 1:00 P.M. EST, I am going to walk to the city post office and mail my letter(s)
- I am going to do this every year from now on.
- I’m going to post my intention on other sites.
- I am going to see if a single action can make a difference
I hope I am not alone.
Tags: 1, 12:00, August, June, action, day, global, letter, letters, morgellons, More…
Views: 51
Replies to This Discussion
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Permalink Reply by Sherry Taylor on -
you most certainly are not alone..you wonderful child of god.
WE think of you with love..what other greater currency do we really have?
Sherry
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Permalink Reply by Barbara Rodriguez on -
Hello out there, i have not posted in so long because having stayed in a unfested state for 3 years has me really impaired at this point. i would agree to the june 1sat and august 1st dates. I live in sacramento and would like a response from any out there in northern california if they would join me at the state capital on those dates. We must take some action, I have been going to doctors for all of this time, for one horrific symptom after another and would just like to know what is it i really have that i feel is systemic and slowly eating me alive. yhe name morgellons does not mean anything to me, also even though i know the medical community is more informed than they let on, i am tired of being made to feel as though i am a isolated case. cdc does not come to northern ca. to do a year long study on a few people with dop. that diagnosis is not that commoon so we must find a way to show ourselves , be counted and be heard. thjat alone would be a gtreat comfort to me. i got to go wash my hair (post traumatic stress behind hair wwashing, if i don;t go now my husband won;t help and I am too afraid to do it alone. peace and prayers for you all
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Permalink Reply by Margaret B. on
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Dear Barbara:
I'm so glad to hear from you, thank you for your encouragement. This travesty is so debilitating, but here you are showing support and encouragement. And that is the point, isn't it. We can't stay down. Let's stand together, calmly. I have decided to go to Toronto's Nathan Phillips Square/City Hall on the two days. If you have any ideas for flyers, tee-shirts, letters to congress or parliment or what about the Surgeon General. He/She doesn't even agree with smoking; this should get his/her attention. : )
Each of us can go to any city we like, or stay in our home town. I think I am going to remain silent in a prayer-state. If media catches wind of this, they can make us look bad, so my tee-shirt or sign will state that I am praying; do not disturb.
I will keep you and your husband in my heart. Thank you again; it is good to know we are not alone.
Love
Margaret
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Hi Sherry:
Love is the great currency. When unconditional love is given; anything becomes possible.
Thank you Sherry for your love, and energy, and always your support.
I think I am going to Toronto for the June 1st date. Any ideas for letters, tee shirts, handouts...I'm all ears...
I love you
Margaret
P.S. Toronto isn't far from Windsor...hmmm
Sherry Taylor said:you most certainly are not alone..you wonderful child of god.
WE think of you with love..what other greater currency do we really have?
Sherry
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Permalink Reply by BrooklynMorgy on
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Dear Margaret,
You are not alone.
I really like your courageous idea to declare "Global Morgellons Day June 1 and August 1, 2012 as well. We really do need to raise awareness to our plight but in a smart and controlled manner that won't leave us vulnerable to the naysayers and doubters.
Maybe it's done in concert with an online blitz that takes place where we make Global Morgellons Day trend on twitter by using a #, if there are thousands if not hundreds of thousands of people out there we could all create a twitter handles and then add e.g. @Morgy1, @Morgy2, and if we get to @Morgy100,000 it will also illustrate the # of people affected by this disease.
Not sure how to do it but we could also create a Morgellons “Meme” that we could push out via FB and twitter. Basically we take the same image and put different short phrases with it.
For e.g.
Image 1: would be piece of “Morgellons Lint” captioned with
“I LOOK LIKE I’m JUST A HARMLESS PIECE OF LINT BUT I WILL DESTROY YOUR LIFE AS YOU KNOW IT”
Image 2: would be piece of “Morgellons Lint” captioned with “PLEASURE TO MEET YOU, WELCOME TO YOUR NIGHTMARE”
Meme's are very, very effective in spreading thoughts/opinions topics
I don't know if you are aware of it after the despicable spraying of pepper spray on unarmed students during the Occupy protects across the US by a Cop, a meme was designed and it became the fastest growing meme in history and assisted and having that cop, his superiors and University President accountable and ultimately released from their positions. I really think creating a Meme with several images of M that we could share the M Community and ask them to push out to their networks could be rather effective. Again I'm not a graphics wiz so we would need to enlist someone to help with that.
Here's a link to a google search on the pepper spray cop so you get an idea (if your not already familiar with).
I know Nathan Phillips Square well and I can't think of a better location in Toronto than the heart of Yonge Street to draw attention to M.
In New York I think it could be Union Square at 14th Street.
In London, Trafalgar Square
In France, Eiffel Tower and so on…
I think that in addition to the "Please Do Not Disturb in Prayer" signs we should all adopt a Uniformed Disguise so as not to reveal our identities but at the same amplifying the visual of all these people (hopefully) gathered to raise awareness. Maybe we print up light weight (bamboo fabric) hoodies not cotton (no way jose) with our designated logo and all wear them.
In this day and age of viral content I think we could really make big impact doing something like this and asking people to (in disguise) gather in high pedestrian traffic areas in major cities and even small ones.
Would love to know your thoughts on this? I have read on a lot of boards the caution that needs to be adopted when raising awareness of M and we don’t want to be treated as Lepers and I 1,000% don’t want to be an outcast from society. However this plague needs to be stopped I feel that Mankind is literally at stake here. Its so sad when you see someone with obvious signs of M and they are completely unaware ( I assume) of what is happening to their bodies. All you have to do is look at their skin and hair for the signs, it’s all there.
Right have to go now but wanted to at least register my support and interest for this phenomenal idea!
We cannot sit back and just watch this scourge spread, I for one can't take the guilt that I may be passing this to other individuals, it's doing my head in.
Lots of love and take care,
A Morgellons Grows in Brooklyn
© 2012 Created by Dwayne Coots.
