Replies to This Discussion

Permalink Reply by Pattie on February 6, 2012 at 10:07pm

Hey there, Brooklyn.  Welcome aboard!  I'm sure you'll find a TON of helpful info. and even more support!  This site has become home for me... so many wonderful friends!

I've spent a flat fortune, as have we all, on stuff that doesn't work.  But I've decided after reading your post (and a ton of others) - I'm gonna have to get the DE.  I have the exact same thing you described in your nose... Lord, I don't like to even THINK about weeks of worms streaming out.  But, as everyone agrees - better out than in!

Man, can I ever relate to having NO spousal/boyfriend support.  I can't even talk to anyone in my immediate family about this - thankfully my mom  & dad, brothers and sisters all know I'm not crazy!

Well, time for bed.  Night! <3 Pattie

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Permalink Reply by BrooklynMorgy on February 6, 2012 at 10:41pm

Hi Pattie, 

Thank you for the warm welcome!

I'm very happy to have found MSN, it's been about 6 months of dealing with this all on my own.  The only one who believes me is my best friend and thankfully she lives in another country so I have not infected she or her family.

You really should try the DE for the nose and the gut it has helped tremendously.  You get used to expelling this stuff from the nose and I honestly do feel better knowing it's not all compacted in my nasal passages. I experimented tonight with mixing the DE with neem oil to see if that would help further and boy did it.  Out came the two largest specimens to date, I felt like I was really getting some of the "mother nasal morgies" out.  That said I 'm going to continue my morning and evening DE nasal routine until I no longer see anything come out.

The cost of this disease is overwhelming and its especially tough if you don't have a steady income.  I work for myself and because of the neurological effects of the disease I have been unable to build my client base or even find new ones --also am afraid of infecting them too.

It really chips away at you when your loved ones don't believe you, my BF has it but is in complete denial and makes me feel guilty when I need to vent or discuss M with him. Furthermore because he doesn't take it seriously he is constantly re-infesting me and our home by not taking the proper precautions. That in itself is draining.

Then I have an Ivy-league trained nephew who has worked in the fields of industrial science and I thought he would help and shed some light but again he is in complete denial and sent me a copy of the CDeCeived report that came out and said see its all in your head. The plastic, hair moving, black specks, glitter, creatures escaping from my nasal passages etc. 

After a while it really wears you down.  I have gone from being a vibrant, exhuberant happy with life individual to this self-isolating, self-loathing shell of a human whose only existence now seems to be focused on beating and/or surviving this nasty affliction.

Well Pattie it was lovely hearing from you, your my first official response by the way so thanks for that.

Night night

A Morgellons Grows in Brooklyn

Pattie said:

Hey there, Brooklyn.  Welcome aboard!  I'm sure you'll find a TON of helpful info. and even more support!  This site has become home for me... so many wonderful friends!

I've spent a flat fortune, as have we all, on stuff that doesn't work.  But I've decided after reading your post (and a ton of others) - I'm gonna have to get the DE.  I have the exact same thing you described in your nose... Lord, I don't like to even THINK about weeks of worms streaming out.  But, as everyone agrees - better out than in!

Man, can I ever relate to having NO spousal/boyfriend support.  I can't even talk to anyone in my immediate family about this - thankfully my mom  & dad, brothers and sisters all know I'm not crazy!

Well, time for bed.  Night! <3 Pattie

• ▶ Reply

Permalink Reply by Pattie on February 7, 2012 at 3:00pm

Okay, Brooklyn... I am seriously ON THE FLOOR LAUGHING - the CDeCeived Report!!!  LMAO.  You are too funny!

Wow, what a HUMOUGOUS bummer that you've got a nephew that is actually in a position to possibly shed light on this... save the fact that he thinks you're crazy!  I can't tell you how upset I was when I tried to show my Mother in Law what I was dealing with... and all I got was a frickin' email sent to my husband explaining DOP!  Yea, I really needed THAT! (She had worked as a librarian in a medical library and I mistakinly thought she may want to help me understand this.  Wrong!

Do you do salt soaks?  I can't remember how long you've said you've had this - but one of my friends here started using pool salt (only like 8 or 9 bucks for a 40 lb bag) and Ap. Cider Vin. - and she had hundreds of "eye-lash" worms come out of her skin.  She started after only having M for 6 months and the load gets smaller & smaller all the time. She still soaks 2x/day. 

I've had it for 8 years, and I don't get much of anything coming off.  My guess (I HATE that we have to play doctor!!!) is that I've had it so long that it's living further inside.  Who knows.  I soaked this morning with 1 cup pool salt & 1 cup lavender Epsom Salt along with maybe 1/2 cup of 20 Mule Team Borax.

My face is like a minefield since I started zapping, so I held my breath a ton of times and kept my whole face under for maybe 3 or 4 mins. total.  I got out, showered & put my normal Aloe Vera gel on, then I hate to admit this in type, because I'm SURE it's not a good idea... but I mixed a cap-full of colloidal silver with a little CVS Lice Killing shampoo.  Then I went back to sleep.  When I woke up, I couldn't believe that all my angry red lesions were no longer angy red!  I mean, you seriously can only see 2 of them now - and I had about 20.

Who knows which part of that entire regimine worked so well.  I'll have to experiment.

As for the DE & MSM, I'm gonna order it after I finish this message to you.

Oh, I don't know if my post was approved yet, but I wanted to tell everyone that Dr. Omar Amin, the dude that thinks M comes from dental work (the fillings and/or the sealants they use.)  He's gonna be on at 10:00 on CBS tonight (Tuesday the 7th).  I'm only guessing it's Eastern Standard Time - don't know for sure.

Man, I read somewhere about "The hairbrush test".  Look at your hairbrush and see if the "lint" is this M crap.  Boy oh boy was I surprised!  Here I thought I was pretty much past the red, white, blue & black fibres.  I had a nice nest composed of the white fibres, and one red fibre was probably 2 inches long.  Dang, I just hate to even THINK of the havoc this crap is wreaking where we can't see it!  UGH!

I know how depressing this can be fo sho.  But I believe that if you don't have open lesions then you aren't contageous.  Of course, it's just another thought based on nothing - the story of my life!  I caught this b/c of a compromised immune system after a surgery where I died.  I'm suspicious that I've had this WAY longer than when the lesions kicked in.  WHY?  B/c after I died (I hemmorhaged to death & was resuscitated with 8 units of blood and 6 of platelets) - I felt SOOO SOOO GOOD, better than I'd felt since maybe 9th grade when I started getting migraines.  I wasn't on pain killers, so that wasn't in the mix - the only thing different was that I had gotten a complete blood transfusion!  Unfortunately, I only felt good for a day, two at most - then I was back to being sick.

I started zapping after reading a lot of good feedback from morgies and Lymies.  Interestingly, the head of Education at NASA claims that some 95% of morgies also have Lyme.  I find that interesting b/c the CDC & their minions claim that there IS no M.  What an utterly rediculous attempt at a cover-up. Right? 

Oh, and thanks to the CDC, no one can even get a real Lyme test done except if you pay for it yourself.  The CDC's mandate on testing is that it only includes TWO of the MANY "bands" of Lyme disease.... the only lab that will give a true diagnosis is IGeneX in CA.  And if you get the whole work-up, it's over a thousand bucks. I read on Ginger Savely's site that she recommends you at least get 2 tests done if you think you have Lyme - Western Blot IGG and Western Blot IGM.  That's only a little over a hundred bucks.  My Neurologist gave me an Rx for the tests, then - of course - just to make matters as difficult as possible (it seems) - the Rx isn't good enough for IGeneX.  Nope, I have to print out THEIR form, have my Dr. fill it out (with the exact same info that my prescription contains) - and then pre-pay before getting the blood drawn and sent to them.  I'll get to that some time this week.

I have an hour appt. with an Infectious Disease dr. who also believes in homeopathics.  I don't plan on mentioning M - if you read "My Story" blog, you'll understand why!  But I'm 100% positive that he'll ask me what happened to my skin.  Most ppl. think I've been burned on my arms they are soo scarred up.  If he asks, I'll tell him about the head of derm. at Cedars Med. Ctr. in Miami, doctor #15's, diagnosis of "unidentified parasite".
 

I know I'm long-winded as anything.  Every time I go to type I end up typing a novel.  ADD always kicks in.  But I do want to sing the praises of my zapper as my daily migraines, mizey neck pain and chronic fatigue are sooo much better that I can't even believe it's ME!

I know this is depressing and totally overwhelming, but with the help and support of friends on this site, and my steadfast belief that I'm in God's very good hands - I've managed to break out of my funk.  It's so wierd not to feel wierd! YAY!

Now that I'm feeling better, I've started the task of cleaning.  I'm def. on of the lucky ones with regard to that.  I've been in bed for the better part of 8 years b/c of Chronic fatigue and migraines.  I'm really lucky that I don't see this crap growing everywhere.  And lucky that I'm the only one in the family who has it.  I'm sure it's all over this house, but it doesn't bother me at all anymore.  Nonetheless, I know it's there and multiplying, so I plan to go ninja on the crap and hit it with DE.  (Also know I have a totally infested car - so I'll hit that with DE as well).

Anyway, I'm so happy to be your friend!  You'll find plenty here on this site... it's nice to have a "social life".  My husband just laughs at me for always being on the computer - but hey... a person's got to have SOME contact with the outside world!  I caught this just after moving to FL, so I never had a chance to make friends.  So all I've got are my FB friends and my friends on this site.  I wish I could find someone close, but no such luck.  It's probably best that way anyway, b/c it seems that this crap takes many shapes & forms - and I wouldn't want to give another strain to anyone who's already suffering with M.

Well, thanks for listening to my novel!  You're a total sweetheart and tho I'm sorry we had to meet this way, I'm privlidged to be your friend. :))

Love, Pattie
 BrooklynMorgy said:

Hi Pattie, 

Thank you for the warm welcome!

I'm very happy to have found MSN, it's been about 6 months of dealing with this all on my own.  The only one who believes me is my best friend and thankfully she lives in another country so I have not infected she or her family.

You really should try the DE for the nose and the gut it has helped tremendously.  You get used to expelling this stuff from the nose and I honestly do feel better knowing it's not all compacted in my nasal passages. I experimented tonight with mixing the DE with neem oil to see if that would help further and boy did it.  Out came the two largest specimens to date, I felt like I was really getting some of the "mother nasal morgies" out.  That said I 'm going to continue my morning and evening DE nasal routine until I no longer see anything come out.

The cost of this disease is overwhelming and its especially tough if you don't have a steady income.  I work for myself and because of the neurological effects of the disease I have been unable to build my client base or even find new ones --also am afraid of infecting them too.

It really chips away at you when your loved ones don't believe you, my BF has it but is in complete denial and makes me feel guilty when I need to vent or discuss M with him. Furthermore because he doesn't take it seriously he is constantly re-infesting me and our home by not taking the proper precautions. That in itself is draining.

Then I have an Ivy-league trained nephew who has worked in the fields of industrial science and I thought he would help and shed some light but again he is in complete denial and sent me a copy of the CDeCeived report that came out and said see its all in your head. The plastic, hair moving, black specks, glitter, creatures escaping from my nasal passages etc. 

After a while it really wears you down.  I have gone from being a vibrant, exhuberant happy with life individual to this self-isolating, self-loathing shell of a human whose only existence now seems to be focused on beating and/or surviving this nasty affliction.

Well Pattie it was lovely hearing from you, your my first official response by the way so thanks for that.

Night night

A Morgellons Grows in Brooklyn

Pattie said:

Hey there, Brooklyn.  Welcome aboard!  I'm sure you'll find a TON of helpful info. and even more support!  This site has become home for me... so many wonderful friends!

I've spent a flat fortune, as have we all, on stuff that doesn't work.  But I've decided after reading your post (and a ton of others) - I'm gonna have to get the DE.  I have the exact same thing you described in your nose... Lord, I don't like to even THINK about weeks of worms streaming out.  But, as everyone agrees - better out than in!

Man, can I ever relate to having NO spousal/boyfriend support.  I can't even talk to anyone in my immediate family about this - thankfully my mom  & dad, brothers and sisters all know I'm not crazy!

Well, time for bed.  Night! <3 Pattie

• ▶ Reply

Permalink Reply by BrooklynMorgy on February 7, 2012 at 9:00pm

Evening Patti,

 

So lovely to hear from you again.

 

Glad you like the CDeCeived moniker lol, it’s true though they are brutal, incompetent deceitful organization.

 

It’s a huge blow to your psyche when your loved ones look at you with that pitiful smirk that thinly disguises what they are really thinking that you are “crazy”.  I sat across from my loved ones recently in the midst of an outbreak (they insisted on coming to see me so we met in a public place and I refused to touch them). 

My face was covered in pimples and a few lesions, after a lifetime of luckily being blessed to be “blemish free” anyone who can see me see’s something is up with my skin.  But no they (family) claimed they couldn’t see a thing and blamed it on aging, the cheek of it! I’m 43 but have really looked after myself up until M took me down and the fact that they could say that with a straight face and that they claimed they could see nothing, astonished me.

 

I know I sound crazy as I list my symptoms but I’m not, none of us are.  Nobody can tell me that is normal for my hair to stand on end with a little hooked end ducking and diving and surveying the landscape of my scalp.  Nobody can me tell it is normal to pluck a hair from your body (any part of your body) and see it writhe around and respond to your finger when you hold it close or if it is dropped into a surface see it knot up and curl into a circle. To tell you the truth of all the myriad of symptoms this is the one that freaks me out the most the hair moving. I feel like I’m a walking medusa with a head full of worms and body for that much.

 

Have never tried the salt soaks Patti, but have read about them while doing my research on how to battle this. I like the sound of the economical pool salt treatment,  I saw Sun Oxi detergent today but was unable to buy it but when I get some cash will definitely go and pick that up too.

 

I like the sound of your soak recipe

 

 “I soaked this morning with 1 cup pool salt & 1 cup lavender Epsom Salt along with maybe 1/2 cup of 20 Mule Team Borax”.

 

I sometimes do Peppermint Soap Borax Soaks too. Knowing that we have to constantly switch up on these things with our treatments,  I’ve just started using Neem Protect Flea & Tick Pet Shampoo with a handful of baking soda to shower and really felt “clean” for the first time in ages.

Have to say that before I got this I was a certified Germaphobe, one might even have called me extreme, didn’t like to wear outdoor clothes on my furniture that sort of stuff… little did I know that my fears would come to bear and I would come down with this – who knew.  My best friend says that me of all people who is so careful when I travel, where I eat publically and so it is cruel that I should have come down with Morgellons but it’s cruel that anyone of us has come down with this.  I hate being a “guinea pig” in this evil “Matrix” like scenario.  I have adopted the stance like all of you that I’m going to do my best to live as best I can, share with others also suffering and protect my friends and loved ones as best I can from getting this.

 

I’ve had Morgellons I believe for at least 10 yrs because I had various symptoms throughout the years that were explained away as other ailments, but it didn’t really go into overdrive until the end of August 2012 when I started experiencing the glitter and black specks for the first time.

 

Your theory about it living “deep inside” us totally resonates with me, I literally feel it in my lungs, reproductive organs, liver throughout my entire being.  I have stuff coming off but its not an overwhelming amount, it’s mainly when I apply things like the DE, Benzonite Clay and Baking Soda that I see things appear out of nowhere.

 

“I started zapping after reading a lot of good feedback from morgies and Lymies.”

 

Patti when you say “zapping” do you mean an Far InfraRed Zapper?  Also which aloe vera gel do you use?  My latest concoction for moisturizing is to mix organic coconut oil, benzonite clay and vicks vapor rub in a jar and apply that liberally after I shower.

 

Have not tried colloidal silver as of yet due to finances but would love to try it.  I am willing to try anything and everything (as long as it’s not toxic) to battle this evil thing.

 

Thanks for sharing that “Dr. Omar Amin” is gonna be on at 10:00 on CBS tonight (Tuesday the 7th)” I’m definitely going to tune in.

 

I also read about "The hairbrush test" and tried it, I have shaved all of my hair off except for a little bit on  top (I call it my Friar Tuck combover) which is awfully dreaded and knotted everytime I wash it and I have to use lots of conditioner to untangle.  Actually do you have any recommendations on shampoo or conditioners to use please.

 

“ Dang, I just hate to even THINK of the havoc this crap is wreaking where we can't see it!  UGH!”

Patti I think this has totally invaded every part of our being’s, I’m just glad that I’m able to recognize (after self-educating via the net) all the little everyday items that others overlook as being the vicious little critters that they are.

 

“Of course, it's just another thought based on nothing - the story of my life!  I caught this b/c of a compromised immune system after a surgery where I died.  I'm suspicious that I've had this WAY longer than when the lesions kicked in.  WHY?  B/c after I died (I hemmorhaged to death & was resuscitated with 8 units of blood and 6 of platelets)”

 

Wow Patti, your story is amazing, that you went through and survived all of that, you truly are a walking miracle.

 

That is an alarmingly high infection rate betwee Lymies and Morgies.  I have never been tested for Lymes but would love to just to see if that is also on my list of chronic illnesses. I think when I have money I will try and get those tests done by IGENIX thanks so much for that information.

 

As I said before CDeCeived Patti, the powers that be know about this but are choosing to stick their heads in the sand because of the fear of the large corporations who can wield their PR machines and distort the truth about their products.  The CDC is beholden to all of these interests, when really they should be beholden to the American taxpayers and their needs.  The whole thing just makes me sick to the stomach, as it’s been stated before only when someone extremely high profile comes down with this will there be any race to find a cure.

 

“ Interestingly, the head of Education at NASA claims that some 95% of morgies also have Lyme.  I find that interesting b/c the CDC & their minions claim that there IS no M.  What an utterly rediculous attempt at a cover-up. Right?”

 

I no longer have health insurance so have not been able to see a Dr. and discuss M, after reading about the treatment of morgellon’s victims by the medical establishment I’m glad I at least have not spent 1,000’s on uninterested, inadequately trained physicians.

 

Sorry to hear that your arms are in such bad shape Patti, I really do hope that you can find at least some comfort at night when you lay your head down.

 

Patty I have had a number of what I call Brooklyn Bridge moments when I really don’t’ feel like I want to live this “death sentence” but then I think about my darling little Mother  (RIP) and know she would be so upset with me if I were to do something stupid like that.  For the record, before the onset of this I have never considered such a drastic thing as taking my life – but Morgellons has literally driven me to “jump”.  Enough of being a DebbieDowner  I’m here now and it just feels so beautiful to be able to freely express myself and not be judged. I’m really glad I took the plunge and joined MSN.

 

“I know this is depressing and totally overwhelming, but with the help and support of friends on this site, and my steadfast belief that I'm in God's very good hands - I've managed to break out of my funk.  It's so wierd not to feel wierd! YAY!”

 

As for the cleaning I’m a beast (when I have the energy) I have drastically reduced my belongings so that makes it so much easier to do a thorough clean everyday.  I’m a big fan of DE, Orange TKO, BacOut, Baking Soda and Bonners peppermint soap for cleaning around the house.  The one thing I have not been able to combat is the flying fibers which seem to multiply by the day. You are lucky that you don’t see it all over your home,  for me it’s everywhere including the freezer. When I get some money I am going to order some MoldStat as I’ve read of several Morgy’s having success with the flying mold/fibers using that.  Will also try the DE in the car as that’s a big problem area for me, although after today (breaking down) I’m seriously considering just dumping it.

 

Funny that you mention your husband laughs at you for being on the computer so does my BF.  He thinks it’s “funny” that I spend hours researching Morgellon’s and combing for information.  I think he’s a twat…sorry for that outburst.

 

I too am so happy to be your friend and look forward to our “socializing”, I too wish I could find someone close I know there are thousands with this in Brooklyn alone.  As you said though, “I wouldn't want to give another strain to anyone who's already suffering with M.”

 

You are an inspiration Patty and I am the privileged one to be given such a warm welcome from you, it is sad that we had to make acquaintance under such circumstances but I’m happy to have found an “allay” in you.

 

Do take care and hope to be in touch again soon.

 

Warm wishes and hugs,

 

A Morgellons Grows in Brooklyn

xxxx


• ▶ Reply

Permalink Reply by Pattie on February 8, 2012 at 10:22am

Good Morning, Brooklyn,

I just LOVE reading your messages.  I'm telling you I coulda written them myself.  (except for the cleaning part.  I've been sooo chronically fatigued that most and sometimes all of the cleaning falls on my hubby.  He just vacuumes sometimes - so the fibres have probably been exponentially growing in number for years.  What's really wierd is that one or two times a year, they seem to go into attack mode.  I end up with debris on the floor that's attatched by fibres, and a bunch of morgie "bundles" and black specs.

I just cleaned the bathroom yesterday - LONG overdue - and found tons and tons of little black specs.  I've had this happen before when this crap goes into attack/overdrive mode - but it still amazes me to no end:  I just use my fingertip to pick up the little black specs and I flick them into the toilet... and I'll always get one or two that SWIRL around in a circle for maybe a full minute.  I was SOO close to showing my son this bizarre sight, but then I decided he's probably better off not seeing it.  I'd have shown it to my husband, but with MY luck, it woulda stopped swirling by the time he showed up.  Pathetic - I'm so done even bothering to try to explain this to anyone, even when the signs are EVERYWHERE, b/c they just think I've lost my mind.  I once tried to video the swirlies, but the camera couldn't pick it up. Figures, right? :)

I know all too well about the "cobra" hair.  That "Medusa Effect" is definitely one freaky symptom.  And again, good luck finding someone (except on this site) that believes it's actually happening, and not just the air moving your hair.  Thankfully, I never went drastic on this and shaved my head like soo many others have.  I've had this for so long that mine doesn't do that at all anymore - so that's something to look forward to. :)) (I'm trying to shed some good cheer - LOL).

As for shampoo & cream rinse, I read on "The Healing Grapevine" that us Morgies are "Hyper Toxic", and they suggested not using shampoo at all.  They're pretty drastic in their ideas - I wish I had the perserverance to do everything they say! Anyway, they suggest using only Pure Castile Soap.  It was like twelve bucks at a health food store nearby.  I got it with Eucalyptis in it.  I'd been using it just on my body and using Head and Shoulders for my hair - but then I accidentally got some in my hair and found that it is just as "sudsy" as regular shampoo - and doesn't have formaldyhyde and other junk in it.  So... now I use Castille from head to toe.  As for cream rinse, I just started using Neem cr. rinse, but I don't love it. Before then, I'd just use whatever I had.  I'll go back to some cheap stuff when the Neem is done.

Re: Zapping - If you're handy (which I'm NOT), you can make one for fifteen bucks.  It's just a little black box with a strong magnet, some crystals, and a 9 volt battery & two copper disks that you put up against your skin (palms or bottoms of your feet). It gives you a very low-voltage shock - supposedly everything alive has a "frequency" that will kill it.  I got the cheapest one I could find online - Oasis something or another.  I don't know how much it is doing for the M, as since I started doing it my face has broken out quite a bit... but my chronic fatigue is drastically reduced, along with my neck pain & near-daily migraines.  So, I'm sure it's helping in some way.  The problem with my cheapy zapper is that it just emits one frequency (so low you can't even feel it zapping you).  And the more expensive ones allow you to choose the frequency - and you can find lists online of the different frequencies of both M, Lyme and pretty much any parasite.  I guess there must be a debate on whether you'd get the same result with low frequency cheapies or if you have to shell out the big bucks for the programmable ones.  I just went for the cheap one... I don't work, and my hubby hasn't found out yet that I just spent 115 bucks on an electrocution device. (LOL :))  But I'm waiting until he asks about the credit card bill to tell him - and hoping he'll have noticed how much more energy I have since I got it.

I think I've been "Herxing" the last few days - that's when all the crap the zapper kills in your body start exuding toxins from their dying bodies - and it makes you sick.  They say to zap 24/7 for a month - and just muddle through the herxing best you can.  I just zap at night mostly, but I don't mind doing it for a year if that is what it takes.  By no means is it a cure-all for M, but ppl. on the Lyme sites claim that it's the best thing they've tried... so maybe I'll just take some of the symptom-load off via electrocution.

And, AMEN to your comment about wishing to just end it all.  This disease is so totally overwhelming.  Not only are we having to deal with the scariest & most bizarre, rediculous-sounding symptoms - but unlike cancer patients who are respected & treated with kid-gloves b/c of their illness.... we're labeled a bunch of crazies and are forced to play "doctor" with a seriously debilitating disease.  Talk about the definition of "adding insult to injury"!!!  All I can say is Satan is having a heyday with us.  All we can do is pray for the strength to get thru every hour of every day.  And if I didn't believe I'd go straight to hell for ending it all - like I would LOVE to do - I'd have offed myself years ago!  And that, even tho I have two kids who need me.  It's just that they all think I've lost my marbles - so really, I wonder how much good I'm doing for them.  But in reality, I KNOW they need their mommy.  And my husband loves me soo much - it would be plain wrong to take the easy way out.

Reading The Healing Grapevine's site really empowered me and got me off my butt and walking.  It's heartening to hear that some ppl. have gotten M so much under control that they can actually have a life.  I don't believe ANYONE can erradicate this stuff entirely.  That said, every single living thing has parasites - so I'm just looking at this as a raw deal that I happened to be plagued by a particularly miserable one.  And if I can feel normal, I'm to the point where I don't even care what the crap is doing to my body inside.  And if at some point, it takes my life - well... I know from experience that dying is a VERY COMFORTING THING!!! 

I died once after my hysterectomy 8 years ago - but also was about 10 minutes from death when I had an ovarian cyst blow out my ovary and take out an artery.  Since it didn't hurt as much as my migraines, I tried to tough it out - thinking my abdominal pain was food poisoning since we'd just eaten chinese.  I bled internally for 7 hours and finally went to the ER when I couldn't walk anymore.  I had almost no pulse and they rushed me into surgery.  They said i had "a belly full of blood" and that I needed a transfusion.  I refused b/c I didn't want to catch AIDS.  I said I only wanted my Mom's blood.  The doc said 1) My Mom wasn't even at the hospital (which I just assumed she was, as she's always there when I need her! LOL), and 2) even if she WAS there, there was no time - I needed a transfusion immediately.  and 3) If I didn't hurry up and sign the stupid document, then the surgeon was gonna go home and I would be dead inside of ten minutes.  Obviously, I signed the paper. UGH.

Oh, and about us "living" online - all I can say is... if THEY had what WE have - and THEY were forced to play doctor and treat the most bizarre, sci-fi symptoms one could ever imagine - well, I can guarantee that THEY'D live online as well!  I've matured enough to be able to stay married to someone who won't admit I have this lousey disease.  It's taken a LOT for me to get to this point. 

My Mom & Dad think that he MUST realize that I've got a bizarre disease, but since his hands are tied as to finding anything to help me - he just feels helpless.  But I'm not even asking for his help - Id just appreciate some compassion.  But he's short on that - and I've just learned to live with it.  I can guarantee you that he KNOWS that I'm suffering from some wierd thing.  Just like your family - it's not like we even LOOK normal!  It is painfully obvious that there is something very wrong with us!  It definitely hurts the psyche when your loved-ones won't face the facts. 

I guess the smartest way to live with this shit is to get tough and just suck it up around everyone... and let it all out on this site where ppl. KNOW you're not crazy and will give you heaping helpings of compassion and love!

I'm sorry you don't have health insurance - but you wouldn't get any help from anyone anyway.  I am definitely guilty of doctor-bashing, but in reality, I have to wonder if they even know what to do to help us.  I mean, who learns in med school what to do with dancing cobra hair, colored fibres coming out of the skin, worms coming out? 

I don't know if you read "my story" - I used to go by the name "Clara" (my mommy's name) b/c I didn't want my true identity out there.  But I've come to trust this site, so I ditched the alias.  Anyway, in my blog written by Clara - I told of having what looked exactly like an earth worm come out of my urethra while I was in the bath tub.  It was disgustingly lively and I picked it up with my trusty tweezers (which I used to use to pick out floating crap in the bath tub) - and plopped it in a tub of alcohol.  I just had to laugh that even a damned worm didn't want to live in my morgie bod!  That was probably the most revolting moment of my life.  Thankfully my Neurologist gave me some worm-killer meds.  It didn't do anything for the morgs, but I guess it killed the worms as I've never seen another one.

There's one poor woman here who has her entire head filled with worms.  She actually had a white worm squiggle out of her scalp - it was like an inch long - and she said she cut it in half and it didn't have any guts like a normal worm would.  It was just made of the same stuff inside and out.  It's GOT to be some kind of man-made insect vector M.  She's lost her hair and is totally isolated, and said she can feel another big worm under her scalp.  It's stories like hers that make me feel like I'm one of the lucy ones!

Oh, I was so bummed out that Dr. Omar Amin never showed up on CBS last night.  I watched from 10:00 to 11:30 and he was a no-show.  I don't know what happened.  I got the info off of "Morgellons.  A Mundane Approach" - they email me with new info - and that's where I learned of it.  Oh, well.  I already spent over two thousand bucks getting all my fillings replaced with ceramic.  It didn't make me feel better in any way shape or form.  Now, I think they're saying it's the sealants they use that is causing the problems... a little too late for me, tho.  I'm not shelling out another few grand on this M.

Well, I'll let you go.  thanks for the great email!  Oh, my email is Pattieinthesun@gamil.com.  If you ever want to talk - my phone number is 954-327-2869 (H) and 954-232-5254 (cell).

Hope you're having a good day!

Love, Pattie <3

 
BrooklynMorgy said:

Evening Patti,

 

So lovely to hear from you again.

 

Glad you like the CDeCeived moniker lol, it’s true though they are brutal, incompetent deceitful organization.

 

It’s a huge blow to your psyche when your loved ones look at you with that pitiful smirk that thinly disguises what they are really thinking that you are “crazy”.  I sat across from my loved ones recently in the midst of an outbreak (they insisted on coming to see me so we met in a public place and I refused to touch them). 

My face was covered in pimples and a few lesions, after a lifetime of luckily being blessed to be “blemish free” anyone who can see me see’s something is up with my skin.  But no they (family) claimed they couldn’t see a thing and blamed it on aging, the cheek of it! I’m 43 but have really looked after myself up until M took me down and the fact that they could say that with a straight face and that they claimed they could see nothing, astonished me.

 

I know I sound crazy as I list my symptoms but I’m not, none of us are.  Nobody can tell me that is normal for my hair to stand on end with a little hooked end ducking and diving and surveying the landscape of my scalp.  Nobody can me tell it is normal to pluck a hair from your body (any part of your body) and see it writhe around and respond to your finger when you hold it close or if it is dropped into a surface see it knot up and curl into a circle. To tell you the truth of all the myriad of symptoms this is the one that freaks me out the most the hair moving. I feel like I’m a walking medusa with a head full of worms and body for that much.

 

Have never tried the salt soaks Patti, but have read about them while doing my research on how to battle this. I like the sound of the economical pool salt treatment,  I saw Sun Oxi detergent today but was unable to buy it but when I get some cash will definitely go and pick that up too.

 

I like the sound of your soak recipe

 

 “I soaked this morning with 1 cup pool salt & 1 cup lavender Epsom Salt along with maybe 1/2 cup of 20 Mule Team Borax”.

 

I sometimes do Peppermint Soap Borax Soaks too. Knowing that we have to constantly switch up on these things with our treatments,  I’ve just started using Neem Protect Flea & Tick Pet Shampoo with a handful of baking soda to shower and really felt “clean” for the first time in ages.

Have to say that before I got this I was a certified Germaphobe, one might even have called me extreme, didn’t like to wear outdoor clothes on my furniture that sort of stuff… little did I know that my fears would come to bear and I would come down with this – who knew.  My best friend says that me of all people who is so careful when I travel, where I eat publically and so it is cruel that I should have come down with Morgellons but it’s cruel that anyone of us has come down with this.  I hate being a “guinea pig” in this evil “Matrix” like scenario.  I have adopted the stance like all of you that I’m going to do my best to live as best I can, share with others also suffering and protect my friends and loved ones as best I can from getting this.

 

I’ve had Morgellons I believe for at least 10 yrs because I had various symptoms throughout the years that were explained away as other ailments, but it didn’t really go into overdrive until the end of August 2012 when I started experiencing the glitter and black specks for the first time.

 

Your theory about it living “deep inside” us totally resonates with me, I literally feel it in my lungs, reproductive organs, liver throughout my entire being.  I have stuff coming off but its not an overwhelming amount, it’s mainly when I apply things like the DE, Benzonite Clay and Baking Soda that I see things appear out of nowhere.

 

“I started zapping after reading a lot of good feedback from morgies and Lymies.”

 

Patti when you say “zapping” do you mean an Far InfraRed Zapper?  Also which aloe vera gel do you use?  My latest concoction for moisturizing is to mix organic coconut oil, benzonite clay and vicks vapor rub in a jar and apply that liberally after I shower.

 

Have not tried colloidal silver as of yet due to finances but would love to try it.  I am willing to try anything and everything (as long as it’s not toxic) to battle this evil thing.

 

Thanks for sharing that “Dr. Omar Amin” is gonna be on at 10:00 on CBS tonight (Tuesday the 7th)” I’m definitely going to tune in.

 

I also read about "The hairbrush test" and tried it, I have shaved all of my hair off except for a little bit on  top (I call it my Friar Tuck combover) which is awfully dreaded and knotted everytime I wash it and I have to use lots of conditioner to untangle.  Actually do you have any recommendations on shampoo or conditioners to use please.

 

“ Dang, I just hate to even THINK of the havoc this crap is wreaking where we can't see it!  UGH!”

Patti I think this has totally invaded every part of our being’s, I’m just glad that I’m able to recognize (after self-educating via the net) all the little everyday items that others overlook as being the vicious little critters that they are.

 

“Of course, it's just another thought based on nothing - the story of my life!  I caught this b/c of a compromised immune system after a surgery where I died.  I'm suspicious that I've had this WAY longer than when the lesions kicked in.  WHY?  B/c after I died (I hemmorhaged to death & was resuscitated with 8 units of blood and 6 of platelets)”

 

Wow Patti, your story is amazing, that you went through and survived all of that, you truly are a walking miracle.

 

That is an alarmingly high infection rate betwee Lymies and Morgies.  I have never been tested for Lymes but would love to just to see if that is also on my list of chronic illnesses. I think when I have money I will try and get those tests done by IGENIX thanks so much for that information.

 

As I said before CDeCeived Patti, the powers that be know about this but are choosing to stick their heads in the sand because of the fear of the large corporations who can wield their PR machines and distort the truth about their products.  The CDC is beholden to all of these interests, when really they should be beholden to the American taxpayers and their needs.  The whole thing just makes me sick to the stomach, as it’s been stated before only when someone extremely high profile comes down with this will there be any race to find a cure.

 

“ Interestingly, the head of Education at NASA claims that some 95% of morgies also have Lyme.  I find that interesting b/c the CDC & their minions claim that there IS no M.  What an utterly rediculous attempt at a cover-up. Right?”

 

I no longer have health insurance so have not been able to see a Dr. and discuss M, after reading about the treatment of morgellon’s victims by the medical establishment I’m glad I at least have not spent 1,000’s on uninterested, inadequately trained physicians.

 

Sorry to hear that your arms are in such bad shape Patti, I really do hope that you can find at least some comfort at night when you lay your head down.

 

Patty I have had a number of what I call Brooklyn Bridge moments when I really don’t’ feel like I want to live this “death sentence” but then I think about my darling little Mother  (RIP) and know she would be so upset with me if I were to do something stupid like that.  For the record, before the onset of this I have never considered such a drastic thing as taking my life – but Morgellons has literally driven me to “jump”.  Enough of being a DebbieDowner  I’m here now and it just feels so beautiful to be able to freely express myself and not be judged. I’m really glad I took the plunge and joined MSN.

 

“I know this is depressing and totally overwhelming, but with the help and support of friends on this site, and my steadfast belief that I'm in God's very good hands - I've managed to break out of my funk.  It's so wierd not to feel wierd! YAY!”

 

As for the cleaning I’m a beast (when I have the energy) I have drastically reduced my belongings so that makes it so much easier to do a thorough clean everyday.  I’m a big fan of DE, Orange TKO, BacOut, Baking Soda and Bonners peppermint soap for cleaning around the house.  The one thing I have not been able to combat is the flying fibers which seem to multiply by the day. You are lucky that you don’t see it all over your home,  for me it’s everywhere including the freezer. When I get some money I am going to order some MoldStat as I’ve read of several Morgy’s having success with the flying mold/fibers using that.  Will also try the DE in the car as that’s a big problem area for me, although after today (breaking down) I’m seriously considering just dumping it.

 

Funny that you mention your husband laughs at you for being on the computer so does my BF.  He thinks it’s “funny” that I spend hours researching Morgellon’s and combing for information.  I think he’s a twat…sorry for that outburst.

 

I too am so happy to be your friend and look forward to our “socializing”, I too wish I could find someone close I know there are thousands with this in Brooklyn alone.  As you said though, “I wouldn't want to give another strain to anyone who's already suffering with M.”

 

You are an inspiration Patty and I am the privileged one to be given such a warm welcome from you, it is sad that we had to make acquaintance under such circumstances but I’m happy to have found an “allay” in you.

 

Do take care and hope to be in touch again soon.

 

Warm wishes and hugs,

 

A Morgellons Grows in Brooklyn

xxxx


• ▶ Reply

Permalink Reply by Margaret B. on February 8, 2012 at 1:30pm

Dear BrooklynMorgie:

Hi there. Sorry to see you on a Morgellons site, but I’m glad to meet you, and we are all stronger to have you here.

You’re “Freudian slip” made me smile, “I love in Brooklyn NY and have to say …” It’s important to love where you live…lol

Mr Common Sense’s site is wonderful…informative, supportive, interesting…all the good stuff.

Do you use sea salt in your nasal rinse?

Sounds like you are well on the road to where ever this road may take us, I guess. But where ever that is, we will arrive together.

I was just thinking of what MORGELLONS could be an acronym for. Have you any ideas?

M	Man-made	Mutant	Microscopic
O	Organism	Organization
R
G
E
L	Lesion
L
O
N
S	Schistosoma

Welcome,

Margaret

• ▶ Reply

Permalink Reply by Pattie on February 8, 2012 at 4:06pm

Hey, Margaret.  Pattie here... with obviously too much time on my hands. :))

Here's what I came up with... anyone who wants to improve upon this & join in the game is certainly welcomed!!  I don't have the computer skills to show off like you did with that nice graph - but here goes:

M - Mortifying

O - Organism

R - Rediculously

G - Given

E - Empty

L - Logic

L - Labelled

O - Offically

N - Neurotic

S - Syndrome

 

If you can't laugh about it - you'll end up crying.

Love you all! <3 Pattie
 
Margaret B. said:

Dear BrooklynMorgie:

Hi there. Sorry to see you on a Morgellons site, but I’m glad to meet you, and we are all stronger to have you here.

You’re “Freudian slip” made me smile, “I love in Brooklyn NY and have to say …” It’s important to love where you live…lol

Mr Common Sense’s site is wonderful…informative, supportive, interesting…all the good stuff.

Do you use sea salt in your nasal rinse?

Sounds like you are well on the road to where ever this road may take us, I guess. But where ever that is, we will arrive together.

I was just thinking of what MORGELLONS could be an acronym for. Have you any ideas?

M	Man-made	Mutant	Microscopic
O	Organism	Organization
R
G
E
L	Lesion
L
O
N
S	Schistosoma

Welcome,

Margaret

• ▶ Reply

Permalink Reply by Margaret B. on February 8, 2012 at 10:29pm

Hi Pattie & BrooklynMorgy:

I love your energy; it radiates from your writting.

I just made the table in MSWord and copied & pasted it. Your words are great. I'm really thinking about this "Global Morgellons Day June 1 and August 1, 2012. I'm thinking of making a few t-shirts, maybe some informaitonal flyers, and I think I am going to do it in Toronto..right downtown in Nathan Phillips Square...go big or go home, right?

I've been out of touch the last few weeks, but I'm looking forward to reading all these great posts I've missed. Here's a few more words including yours and oops and a couple of ours are the same...great minds...lol. Thanks for playing. The game is not over, yet.

 

M	Man-made	Mutant	Microscopic	microparticles		Mortifying
O	Organism	Organization				Organism
R						Rediculously
G						Given
E	exogenous					Empty
L	Lesion	Iatrogenesis OH SHOOT it's spelled "I"atrogeneses not "L"atr...too bad it was perfect		lymphatic		Logic
L	Langerhans cells	Liposomes	Langerhans			Labelled
O	Organic					Offically
N	Nano-technology	nanoparticles				Neurotic
S	Schistosoma	syndrome	Silicone Dioxide	Skin	submicron	Syndrome

and I agree...you gotta laugh XD
Pattie said:

Hey, Margaret.  Pattie here... with obviously too much time on my hands. :))

Here's what I came up with... anyone who wants to improve upon this & join in the game is certainly welcomed!!  I don't have the computer skills to show off like you did with that nice graph - but here goes:

M - Mortifying

O - Organism

R - Rediculously

G - Given

E - Empty

L - Logic

L - Labelled

O - Offically

N - Neurotic

S - Syndrome

 

If you can't laugh about it - you'll end up crying.

Love you all! <3 Pattie
 

• ▶ Reply

Permalink Reply by Pattie on February 9, 2012 at 10:41am

Hey, Margaret.  I was wondering - are you the guru that reigns over this website?  If you are - you are SUCH a God-Send, and truly are very much appreciated!!!  (If you're not - you're still very much appreciated... but do you know who IS in charge here?)

I am more than willing to do a letter campaign.  If money weren't an issue - which of course it totally IS... but if it weren't - I would pay everyone's airfare to Dulles or Reagan airport and we could have a nice visit with our fine govt. officials, in person - lesions, scars and all.  I hold out NO hope whatsoever that the CDC (central deception criminals - LOL) will ever help us, no matter what we do. You KNOW that they already know that we're actually sick, and they probably know where this crap came from... but it wouldn't serve their purposes in any way to lift a finger to help us. 

But maybe, just maybe, some of our senators and congressmen or media will step up. 

Maybe if we send pics of our skin it'd help?  I mean, my kids and my friend saw a pic of morgie legs on the computer screen - and both thought that I'd posted a pic of MY legs.  I know we all have somewhat differing symptoms, but I've seen enough to know that we're similar enough to show that there's NO possible way every single solitary one of us plotted out how to pick our skin so that it'd match every other Morgie's skin.  And if your a lesion-less Morgie, similar symptoms between hundreds of sufferers would speak for itself.

Oh, and I would do this myself, except I'm a total computer DOLT.  But, I was thinking of making some kind of symptom chart, and another chart listing everything we've tried and if it worked or not.  Also, how long we've been sick, how we got sick, and our line of work.

If everyone on all the support sites were to do this organized list... it would really be a great tool to plot our illness, and all the stuff we've tried to get better.  And it would be an eye-opener if everyone would take the time to fill out these lists, and send them, along with a picture or two, to everyone under the sun we can think of that could possibly be sympathetic to our plight and lend a hand.

The Healing Grapevine has a symptom list of about 97 items.  That'd be a good place to start.  If we could flood Cap. Hill, and the media - not with long letters that would take a lot of time to read - but with these charts which would be very easy to grasp the reality of just how many ppl. are suffering... maybe, just maybe someone will help us.

I know Pipster has been gathering some info - except I only know enough to answer one or two of her questions.  I don't know my blood type, I have no idea about certain genes, I've never done checks into my family tree - all I know is my dad's family is Czech and my Mom's family is Cajun.  Oh, and I have hazel eyes and brown hair.

Anyone else have a suggestion as to how we can finally get this disease recognized - we're all open to everyone's ideas!!!

God Bless.  <3 Pattie

 
Margaret B. said:

Hi Pattie & BrooklynMorgy:

I love your energy; it radiates from your writting.

I just made the table in MSWord and copied & pasted it. Your words are great. I'm really thinking about this "Global Morgellons Day June 1 and August 1, 2012. I'm thinking of making a few t-shirts, maybe some informaitonal flyers, and I think I am going to do it in Toronto..right downtown in Nathan Phillips Square...go big or go home, right?

I've been out of touch the last few weeks, but I'm looking forward to reading all these great posts I've missed. Here's a few more words including yours and oops and a couple of ours are the same...great minds...lol. Thanks for playing. The game is not over, yet.

 

M	Man-made	Mutant	Microscopic	microparticles		Mortifying
O	Organism	Organization				Organism
R						Rediculously
G						Given
E	exogenous					Empty
L	Lesion	Iatrogenesis OH SHOOT it's spelled "I"atrogeneses not "L"atr...too bad it was perfect		lymphatic		Logic
L	Langerhans cells	Liposomes	Langerhans			Labelled
O	Organic					Offically
N	Nano-technology	nanoparticles				Neurotic
S	Schistosoma	syndrome	Silicone Dioxide	Skin	submicron	Syndrome

and I agree...you gotta laugh XD
Pattie said:

Hey, Margaret.  Pattie here... with obviously too much time on my hands. :))

Here's what I came up with... anyone who wants to improve upon this & join in the game is certainly welcomed!!  I don't have the computer skills to show off like you did with that nice graph - but here goes:

M - Mortifying

O - Organism

R - Rediculously

G - Given

E - Empty

L - Logic

L - Labelled

O - Offically

N - Neurotic

S - Syndrome

 

If you can't laugh about it - you'll end up crying.

Love you all! <3 Pattie
 

• ▶ Reply

Permalink Reply by BrooklynMorgy on February 9, 2012 at 11:59am

Hi Margaret,

Thank you so much for your message, I appreciate your warm welcome.

Apologies for the Freudian slip must use my spellchecker but your so right it is important to LOVE where you live.  I used to love my area until I realized the whole place was infested with M.

I know Nathan Phillips Square well and I can't think of a better location in Toronto than the heart of Yonge Street to draw attention to M.

In New York I think it could be Union Square at 14th Street. 

I think that we should all adopt a Uniformed Disguise so as not to reveal our identities but at the same amplifying the visual of all these people (hopefully) gathered to raise awareness.

Would love to know your thoughts on this?

Love your table and here's my attempt of Playing the game. :)

M	Man-made	Mutant	Microscopic	microparticles	Multiplying	Mortifying
O	Organism	Organization				Organism
R	Redesigned	Regenerating	Reclaiming	Repulsive		Rediculously
G	Ghastly	Grave	Gruesome			Given
E	exogenous	Experiences	Eyelash Worms	Endocrine	Evil	Empty
L	Lesion	Iatrogenesis OH SHOOT it's spelled "I"atrogeneses not "L"atr...too bad it was perfect	Laceration	lymphatic	Larva	Logic
L	Langerhans cells	Liposomes	Langerhans			Labelled
O	Organic					Offically
N	Nano-technology	nanoparticles	Nematodes	Neurological		Neurotic
S	Schistosoma	syndrome	Silicone Dioxide	Skin	submicron	Syndrome

Mr Commonsense's blog was a lighthouse for me and I'm so grateful I came upon it only a week or two into this nightmare.  His insights and tips are invaluable and his explaining the importance of attacking this at a "bio terrain" level really adjusted my stance on thinking this was something I could just "wash off."

I really like your courageous idea to declare "Global Morgellons Day June 1 and August 1, 2012 as well.  We really do need to awareness to our plight but in a smart and controlled manner that won't leave us vulnerable to the naysayers and doubters. Maybe it's also an online blitz that takes place where we make Global Morgellons Day trend by using a #, if there are thousands if not hundreds of thousands of people out there we could all create a twitter handles and then add e.g. @Morgy1, @Morgy2,  and if we get to @Morgy100,000 it will also illustrate the # of people affected by this disease.

Re. Nasal Salt,  I haven't used that yet but have seen it recently on Dr. Oz and wanted to get some (when I can).  In fact his whole special on the importance of salt in maintaining the health of your body was excellent.  Here is the link to the article I can't find the actual video link on there I'm afraid http://www.doctoroz.com/videos/scoop-salt-therapy

Pattie I like your additions to the table, I'm a "scrabble freak" so this sort of thing is right up my alley.

Well I must go for now, do take care of yourself and hope to be in touch again soon.

Warm wishes,

A Morgellons Grows in Brooklyn

Margaret B. said:

Dear BrooklynMorgie:

Hi there. Sorry to see you on a Morgellons site, but I’m glad to meet you, and we are all stronger to have you here.

You’re “Freudian slip” made me smile, “I love in Brooklyn NY and have to say …” It’s important to love where you live…lol

Mr Common Sense’s site is wonderful…informative, supportive, interesting…all the good stuff.

Do you use sea salt in your nasal rinse?

Sounds like you are well on the road to where ever this road may take us, I guess. But where ever that is, we will arrive together.

I was just thinking of what MORGELLONS could be an acronym for. Have you any ideas?

M	Man-made	Mutant	Microscopic
O	Organism	Organization
R
G
E
L	Lesion
L
O
N
S	Schistosoma

Welcome,

Margaret

• ▶ Reply

Permalink Reply by BrooklynMorgy on February 9, 2012 at 12:16pm

Hi Margaret,

 

Thank you so much for your message, I appreciate your warm welcome.

Apologies for the Freudian slip must use my spellchecker but your so right it is important to LOVE where you live.  I used to love my area until I realized the whole place was infested with M.

Re. Nasal Salt,  I haven't used that yet but have seen it recently on Dr. Oz and wanted to get some (when I can).  In fact his whole special on the importance of salt in maintaining the health of your body was excellent.  Here is the link to the article I can't find the actual video link on there I'm afraid http://www.doctoroz.com/videos/scoop-salt-therapy

 

Love your table and here's my attempt at Playing the game. :)  Pattie I like your additions to the table, I'm a "scrabble freak" so this sort of thing is right up my alley.

 

 

M	Man-made	Mutant	Microscopic	microparticles	Multiplying	Mortifying
O	Organism	Organization				Organism
R	Redesigned	Regenerating	Reclaiming	Repulsive		Rediculously
G	Ghastly	Grave	Gruesome			Given
E	exogenous	Experiences	Eyelash Worms	Endocrine	Evil	Empty
L	Lesion	Iatrogenesis OH SHOOT it's spelled "I"atrogeneses not "L"atr...too bad it was perfect	Laceration	lymphatic	Larva	Logic
L	Langerhans cells	Liposomes	Langerhans			Labelled
O	Organic					Offically
N	Nano-technology	nanoparticles	Nematodes	Neurological		Neurotic
S	Schistosoma	syndrome	Silicone Dioxide	Skin	submicron	Syndrome

Mr Commonsense's blog was a lighthouse for me and I'm so grateful I came upon it only a week or two into this nightmare.  His insights and tips are invaluable and his explaining the importance of attacking this at a "bio terrain" level really adjusted my stance on thinking this was something I could just "wash off."

I really like your courageous idea to declare "Global Morgellons Day June 1 and August 1, 2012 as well.  We really do need to raise awareness to our plight but in a smart and controlled manner that won't leave us vulnerable to the naysayers and doubters.

Maybe it's done in concert with an online blitz that takes place where we make Global Morgellons Day trend on twitter by using a #, if there are thousands if not hundreds of thousands of people out there we could all create a twitter handles and then add e.g. @Morgy1, @Morgy2,  and if we get to @Morgy100,000 it will also illustrate the # of people affected by this disease.

 

Not sure how to do it but we could also create a Morgellons “Meme” that we could push out via FB and twitter.  Basically we take the same image and put different short phrases with it.

For e.g.

Image 1: would be piece of “Morgellons Lint” captioned with

“I LOOK LIKE I’m JUST A HARMLESS PIECE OF LINT BUT I WILL DESTROY YOUR LIFE AS YOU KNOW IT”

 

Image 2: would be piece of “Morgellons Lint” captioned with “PLEASURE TO MEET YOU, WELCOME TO YOUR NIGHTMARE”

I know Nathan Phillips Square well and I can't think of a better location in Toronto than the heart of Yonge Street to draw attention to M.

In New York I think it could be Union Square at 14th Street. 

In London, Trafalgar Square

In France, Eiffel Tower and so on…

I think that we should all adopt a Uniformed Disguise so as not to reveal our identities but at the same amplifying the visual of all these people (hopefully) gathered to raise awareness.  Maybe we print up light weight (bamboo fabric) hoodies not cotton (no way jose) with our designated logo. 

In this day and age of viral content I think we could really make  big impact doing something like this and asking people to (in disguise) gather in high pedestrian traffic areas in major cities and even small ones.

Would love to know your thoughts on this?  I have read on a lot of boards the caution that needs to be adopted when raising awareness of M and we don’t want to be treated as Lepers and I 1,000% don’t want to be an outcast from society.  However this plague needs to be stopped I feel that Mankind is literally at stake here.  Its so sad when you see someone with obvious signs of M and they are completely unaware ( I assume)  of what is happening to their bodies.  All you have to do is look at their skin and hair for the signs, it’s all there.

Well I must go for now, do take care of yourself and hope to be in touch again soon.

Warm wishes,

A Morgellons Grows in Brooklyn

• ▶ Reply

Permalink Reply by BrooklynMorgy on February 9, 2012 at 12:19pm

Hi Pattie do hope your doing OK today.

Have read your response/novel LOL and want to reply in full and will do so later.  Thanks so much for tip on how to make Zapper am definitely going to try that when I have funds.

Right have to go but will back in touch later!

Warmest wishes,

A Morgellons Grows in Brooklyn

Pattie said:

Good Morning, Brooklyn,

I just LOVE reading your messages.  I'm telling you I coulda written them myself.  (except for the cleaning part.  I've been sooo chronically fatigued that most and sometimes all of the cleaning falls on my hubby.  He just vacuumes sometimes - so the fibres have probably been exponentially growing in number for years.  What's really wierd is that one or two times a year, they seem to go into attack mode.  I end up with debris on the floor that's attatched by fibres, and a bunch of morgie "bundles" and black specs.

I just cleaned the bathroom yesterday - LONG overdue - and found tons and tons of little black specs.  I've had this happen before when this crap goes into attack/overdrive mode - but it still amazes me to no end:  I just use my fingertip to pick up the little black specs and I flick them into the toilet... and I'll always get one or two that SWIRL around in a circle for maybe a full minute.  I was SOO close to showing my son this bizarre sight, but then I decided he's probably better off not seeing it.  I'd have shown it to my husband, but with MY luck, it woulda stopped swirling by the time he showed up.  Pathetic - I'm so done even bothering to try to explain this to anyone, even when the signs are EVERYWHERE, b/c they just think I've lost my mind.  I once tried to video the swirlies, but the camera couldn't pick it up. Figures, right? :)

I know all too well about the "cobra" hair.  That "Medusa Effect" is definitely one freaky symptom.  And again, good luck finding someone (except on this site) that believes it's actually happening, and not just the air moving your hair.  Thankfully, I never went drastic on this and shaved my head like soo many others have.  I've had this for so long that mine doesn't do that at all anymore - so that's something to look forward to. :)) (I'm trying to shed some good cheer - LOL).

As for shampoo & cream rinse, I read on "The Healing Grapevine" that us Morgies are "Hyper Toxic", and they suggested not using shampoo at all.  They're pretty drastic in their ideas - I wish I had the perserverance to do everything they say! Anyway, they suggest using only Pure Castile Soap.  It was like twelve bucks at a health food store nearby.  I got it with Eucalyptis in it.  I'd been using it just on my body and using Head and Shoulders for my hair - but then I accidentally got some in my hair and found that it is just as "sudsy" as regular shampoo - and doesn't have formaldyhyde and other junk in it.  So... now I use Castille from head to toe.  As for cream rinse, I just started using Neem cr. rinse, but I don't love it. Before then, I'd just use whatever I had.  I'll go back to some cheap stuff when the Neem is done.

Re: Zapping - If you're handy (which I'm NOT), you can make one for fifteen bucks.  It's just a little black box with a strong magnet, some crystals, and a 9 volt battery & two copper disks that you put up against your skin (palms or bottoms of your feet). It gives you a very low-voltage shock - supposedly everything alive has a "frequency" that will kill it.  I got the cheapest one I could find online - Oasis something or another.  I don't know how much it is doing for the M, as since I started doing it my face has broken out quite a bit... but my chronic fatigue is drastically reduced, along with my neck pain & near-daily migraines.  So, I'm sure it's helping in some way.  The problem with my cheapy zapper is that it just emits one frequency (so low you can't even feel it zapping you).  And the more expensive ones allow you to choose the frequency - and you can find lists online of the different frequencies of both M, Lyme and pretty much any parasite.  I guess there must be a debate on whether you'd get the same result with low frequency cheapies or if you have to shell out the big bucks for the programmable ones.  I just went for the cheap one... I don't work, and my hubby hasn't found out yet that I just spent 115 bucks on an electrocution device. (LOL :))  But I'm waiting until he asks about the credit card bill to tell him - and hoping he'll have noticed how much more energy I have since I got it.

I think I've been "Herxing" the last few days - that's when all the crap the zapper kills in your body start exuding toxins from their dying bodies - and it makes you sick.  They say to zap 24/7 for a month - and just muddle through the herxing best you can.  I just zap at night mostly, but I don't mind doing it for a year if that is what it takes.  By no means is it a cure-all for M, but ppl. on the Lyme sites claim that it's the best thing they've tried... so maybe I'll just take some of the symptom-load off via electrocution.

And, AMEN to your comment about wishing to just end it all.  This disease is so totally overwhelming.  Not only are we having to deal with the scariest & most bizarre, rediculous-sounding symptoms - but unlike cancer patients who are respected & treated with kid-gloves b/c of their illness.... we're labeled a bunch of crazies and are forced to play "doctor" with a seriously debilitating disease.  Talk about the definition of "adding insult to injury"!!!  All I can say is Satan is having a heyday with us.  All we can do is pray for the strength to get thru every hour of every day.  And if I didn't believe I'd go straight to hell for ending it all - like I would LOVE to do - I'd have offed myself years ago!  And that, even tho I have two kids who need me.  It's just that they all think I've lost my marbles - so really, I wonder how much good I'm doing for them.  But in reality, I KNOW they need their mommy.  And my husband loves me soo much - it would be plain wrong to take the easy way out.

Reading The Healing Grapevine's site really empowered me and got me off my butt and walking.  It's heartening to hear that some ppl. have gotten M so much under control that they can actually have a life.  I don't believe ANYONE can erradicate this stuff entirely.  That said, every single living thing has parasites - so I'm just looking at this as a raw deal that I happened to be plagued by a particularly miserable one.  And if I can feel normal, I'm to the point where I don't even care what the crap is doing to my body inside.  And if at some point, it takes my life - well... I know from experience that dying is a VERY COMFORTING THING!!! 

I died once after my hysterectomy 8 years ago - but also was about 10 minutes from death when I had an ovarian cyst blow out my ovary and take out an artery.  Since it didn't hurt as much as my migraines, I tried to tough it out - thinking my abdominal pain was food poisoning since we'd just eaten chinese.  I bled internally for 7 hours and finally went to the ER when I couldn't walk anymore.  I had almost no pulse and they rushed me into surgery.  They said i had "a belly full of blood" and that I needed a transfusion.  I refused b/c I didn't want to catch AIDS.  I said I only wanted my Mom's blood.  The doc said 1) My Mom wasn't even at the hospital (which I just assumed she was, as she's always there when I need her! LOL), and 2) even if she WAS there, there was no time - I needed a transfusion immediately.  and 3) If I didn't hurry up and sign the stupid document, then the surgeon was gonna go home and I would be dead inside of ten minutes.  Obviously, I signed the paper. UGH.

Oh, and about us "living" online - all I can say is... if THEY had what WE have - and THEY were forced to play doctor and treat the most bizarre, sci-fi symptoms one could ever imagine - well, I can guarantee that THEY'D live online as well!  I've matured enough to be able to stay married to someone who won't admit I have this lousey disease.  It's taken a LOT for me to get to this point. 

My Mom & Dad think that he MUST realize that I've got a bizarre disease, but since his hands are tied as to finding anything to help me - he just feels helpless.  But I'm not even asking for his help - Id just appreciate some compassion.  But he's short on that - and I've just learned to live with it.  I can guarantee you that he KNOWS that I'm suffering from some wierd thing.  Just like your family - it's not like we even LOOK normal!  It is painfully obvious that there is something very wrong with us!  It definitely hurts the psyche when your loved-ones won't face the facts. 

I guess the smartest way to live with this shit is to get tough and just suck it up around everyone... and let it all out on this site where ppl. KNOW you're not crazy and will give you heaping helpings of compassion and love!

I'm sorry you don't have health insurance - but you wouldn't get any help from anyone anyway.  I am definitely guilty of doctor-bashing, but in reality, I have to wonder if they even know what to do to help us.  I mean, who learns in med school what to do with dancing cobra hair, colored fibres coming out of the skin, worms coming out? 

I don't know if you read "my story" - I used to go by the name "Clara" (my mommy's name) b/c I didn't want my true identity out there.  But I've come to trust this site, so I ditched the alias.  Anyway, in my blog written by Clara - I told of having what looked exactly like an earth worm come out of my urethra while I was in the bath tub.  It was disgustingly lively and I picked it up with my trusty tweezers (which I used to use to pick out floating crap in the bath tub) - and plopped it in a tub of alcohol.  I just had to laugh that even a damned worm didn't want to live in my morgie bod!  That was probably the most revolting moment of my life.  Thankfully my Neurologist gave me some worm-killer meds.  It didn't do anything for the morgs, but I guess it killed the worms as I've never seen another one.

There's one poor woman here who has her entire head filled with worms.  She actually had a white worm squiggle out of her scalp - it was like an inch long - and she said she cut it in half and it didn't have any guts like a normal worm would.  It was just made of the same stuff inside and out.  It's GOT to be some kind of man-made insect vector M.  She's lost her hair and is totally isolated, and said she can feel another big worm under her scalp.  It's stories like hers that make me feel like I'm one of the lucy ones!

Oh, I was so bummed out that Dr. Omar Amin never showed up on CBS last night.  I watched from 10:00 to 11:30 and he was a no-show.  I don't know what happened.  I got the info off of "Morgellons.  A Mundane Approach" - they email me with new info - and that's where I learned of it.  Oh, well.  I already spent over two thousand bucks getting all my fillings replaced with ceramic.  It didn't make me feel better in any way shape or form.  Now, I think they're saying it's the sealants they use that is causing the problems... a little too late for me, tho.  I'm not shelling out another few grand on this M.

Well, I'll let you go.  thanks for the great email!  Oh, my email is Pattieinthesun@gamil.com.  If you ever want to talk - my phone number is 954-327-2869 (H) and 954-232-5254 (cell).

Hope you're having a good day!

Love, Pattie <3

 
BrooklynMorgy said:

Evening Patti,

 

So lovely to hear from you again.

 

Glad you like the CDeCeived moniker lol, it’s true though they are brutal, incompetent deceitful organization.

 

It’s a huge blow to your psyche when your loved ones look at you with that pitiful smirk that thinly disguises what they are really thinking that you are “crazy”.  I sat across from my loved ones recently in the midst of an outbreak (they insisted on coming to see me so we met in a public place and I refused to touch them). 

My face was covered in pimples and a few lesions, after a lifetime of luckily being blessed to be “blemish free” anyone who can see me see’s something is up with my skin.  But no they (family) claimed they couldn’t see a thing and blamed it on aging, the cheek of it! I’m 43 but have really looked after myself up until M took me down and the fact that they could say that with a straight face and that they claimed they could see nothing, astonished me.

 

I know I sound crazy as I list my symptoms but I’m not, none of us are.  Nobody can tell me that is normal for my hair to stand on end with a little hooked end ducking and diving and surveying the landscape of my scalp.  Nobody can me tell it is normal to pluck a hair from your body (any part of your body) and see it writhe around and respond to your finger when you hold it close or if it is dropped into a surface see it knot up and curl into a circle. To tell you the truth of all the myriad of symptoms this is the one that freaks me out the most the hair moving. I feel like I’m a walking medusa with a head full of worms and body for that much.

 

Have never tried the salt soaks Patti, but have read about them while doing my research on how to battle this. I like the sound of the economical pool salt treatment,  I saw Sun Oxi detergent today but was unable to buy it but when I get some cash will definitely go and pick that up too.

 

I like the sound of your soak recipe

 

 “I soaked this morning with 1 cup pool salt & 1 cup lavender Epsom Salt along with maybe 1/2 cup of 20 Mule Team Borax”.

 

I sometimes do Peppermint Soap Borax Soaks too. Knowing that we have to constantly switch up on these things with our treatments,  I’ve just started using Neem Protect Flea & Tick Pet Shampoo with a handful of baking soda to shower and really felt “clean” for the first time in ages.

Have to say that before I got this I was a certified Germaphobe, one might even have called me extreme, didn’t like to wear outdoor clothes on my furniture that sort of stuff… little did I know that my fears would come to bear and I would come down with this – who knew.  My best friend says that me of all people who is so careful when I travel, where I eat publically and so it is cruel that I should have come down with Morgellons but it’s cruel that anyone of us has come down with this.  I hate being a “guinea pig” in this evil “Matrix” like scenario.  I have adopted the stance like all of you that I’m going to do my best to live as best I can, share with others also suffering and protect my friends and loved ones as best I can from getting this.

 

I’ve had Morgellons I believe for at least 10 yrs because I had various symptoms throughout the years that were explained away as other ailments, but it didn’t really go into overdrive until the end of August 2012 when I started experiencing the glitter and black specks for the first time.

 

Your theory about it living “deep inside” us totally resonates with me, I literally feel it in my lungs, reproductive organs, liver throughout my entire being.  I have stuff coming off but its not an overwhelming amount, it’s mainly when I apply things like the DE, Benzonite Clay and Baking Soda that I see things appear out of nowhere.

 

“I started zapping after reading a lot of good feedback from morgies and Lymies.”

 

Patti when you say “zapping” do you mean an Far InfraRed Zapper?  Also which aloe vera gel do you use?  My latest concoction for moisturizing is to mix organic coconut oil, benzonite clay and vicks vapor rub in a jar and apply that liberally after I shower.

 

Have not tried colloidal silver as of yet due to finances but would love to try it.  I am willing to try anything and everything (as long as it’s not toxic) to battle this evil thing.

 

Thanks for sharing that “Dr. Omar Amin” is gonna be on at 10:00 on CBS tonight (Tuesday the 7th)” I’m definitely going to tune in.

 

I also read about "The hairbrush test" and tried it, I have shaved all of my hair off except for a little bit on  top (I call it my Friar Tuck combover) which is awfully dreaded and knotted everytime I wash it and I have to use lots of conditioner to untangle.  Actually do you have any recommendations on shampoo or conditioners to use please.

 

“ Dang, I just hate to even THINK of the havoc this crap is wreaking where we can't see it!  UGH!”

Patti I think this has totally invaded every part of our being’s, I’m just glad that I’m able to recognize (after self-educating via the net) all the little everyday items that others overlook as being the vicious little critters that they are.

 

“Of course, it's just another thought based on nothing - the story of my life!  I caught this b/c of a compromised immune system after a surgery where I died.  I'm suspicious that I've had this WAY longer than when the lesions kicked in.  WHY?  B/c after I died (I hemmorhaged to death & was resuscitated with 8 units of blood and 6 of platelets)”

 

Wow Patti, your story is amazing, that you went through and survived all of that, you truly are a walking miracle.

 

That is an alarmingly high infection rate betwee Lymies and Morgies.  I have never been tested for Lymes but would love to just to see if that is also on my list of chronic illnesses. I think when I have money I will try and get those tests done by IGENIX thanks so much for that information.

 

As I said before CDeCeived Patti, the powers that be know about this but are choosing to stick their heads in the sand because of the fear of the large corporations who can wield their PR machines and distort the truth about their products.  The CDC is beholden to all of these interests, when really they should be beholden to the American taxpayers and their needs.  The whole thing just makes me sick to the stomach, as it’s been stated before only when someone extremely high profile comes down with this will there be any race to find a cure.

 

“ Interestingly, the head of Education at NASA claims that some 95% of morgies also have Lyme.  I find that interesting b/c the CDC & their minions claim that there IS no M.  What an utterly rediculous attempt at a cover-up. Right?”

 

I no longer have health insurance so have not been able to see a Dr. and discuss M, after reading about the treatment of morgellon’s victims by the medical establishment I’m glad I at least have not spent 1,000’s on uninterested, inadequately trained physicians.

 

Sorry to hear that your arms are in such bad shape Patti, I really do hope that you can find at least some comfort at night when you lay your head down.

 

Patty I have had a number of what I call Brooklyn Bridge moments when I really don’t’ feel like I want to live this “death sentence” but then I think about my darling little Mother  (RIP) and know she would be so upset with me if I were to do something stupid like that.  For the record, before the onset of this I have never considered such a drastic thing as taking my life – but Morgellons has literally driven me to “jump”.  Enough of being a DebbieDowner  I’m here now and it just feels so beautiful to be able to freely express myself and not be judged. I’m really glad I took the plunge and joined MSN.

 

“I know this is depressing and totally overwhelming, but with the help and support of friends on this site, and my steadfast belief that I'm in God's very good hands - I've managed to break out of my funk.  It's so wierd not to feel wierd! YAY!”

 

As for the cleaning I’m a beast (when I have the energy) I have drastically reduced my belongings so that makes it so much easier to do a thorough clean everyday.  I’m a big fan of DE, Orange TKO, BacOut, Baking Soda and Bonners peppermint soap for cleaning around the house.  The one thing I have not been able to combat is the flying fibers which seem to multiply by the day. You are lucky that you don’t see it all over your home,  for me it’s everywhere including the freezer. When I get some money I am going to order some MoldStat as I’ve read of several Morgy’s having success with the flying mold/fibers using that.  Will also try the DE in the car as that’s a big problem area for me, although after today (breaking down) I’m seriously considering just dumping it.

 

Funny that you mention your husband laughs at you for being on the computer so does my BF.  He thinks it’s “funny” that I spend hours researching Morgellon’s and combing for information.  I think he’s a twat…sorry for that outburst.

 

I too am so happy to be your friend and look forward to our “socializing”, I too wish I could find someone close I know there are thousands with this in Brooklyn alone.  As you said though, “I wouldn't want to give another strain to anyone who's already suffering with M.”

 

You are an inspiration Patty and I am the privileged one to be given such a warm welcome from you, it is sad that we had to make acquaintance under such circumstances but I’m happy to have found an “allay” in you.

 

Do take care and hope to be in touch again soon.

 

Warm wishes and hugs,

 

A Morgellons Grows in Brooklyn

xxxx


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