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Permalink Reply by Ann Greathouse on September 28, 2009 at 2:44am

What you say makes sense. I can relate to it well. There was a time when I would not even hug my own children or have visitors. I would not wish this disease on anyone.

I have had Morgellons Disease since late 2006. My first Doctor was William T. Harvey the Chair of The Board Of Directors for the Morgellons Research Foundation (MRF).

One of my foremost concerns was contagion and he told me that the disease is a combination of factors.

I do think certain people more sensitive to Morgellons Disease than others. Precautions should be observed. I have not made anyone sick however. Environment in my opinion is a factor.

If this disease was person to person solely then I truly believe that the whole world be sick by now. I think families can get sick because they share the same environment, risk and genetic factors and are exposed to the same things perhaps.

So in my opinion being careful is important but it is good to not isolate oneself entirely. I am glad there are places like this one. There is still so much unknown about this disease.

One thing I do regarding bedding: I wash my laundry in borax and ammonia and this seems to help. Also my clothes. I wash with Palmolive Oxy Plus Dish soap and this too seems to help. Especially before I go out somewhere.

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Permalink Reply by Sherry Taylor on January 5, 2010 at 6:15pm

this is a relly long but important thread. i'd love to go back to swimming but don't want to take a chance on infection anyone even though my daughter says the chlorine will kill anything. My ex roommates and guy friend did not get this. The persono who spred it around in our meditation group says she only had really mild symptoms. 8 people have varying levels of symptoms. 2, me and someone else have it bad. People have various levels of comfort with communicating..read ..some are secretive and very senstive to the stigma. Soooo there is way more out there... like the bottom of an ice burg(I'm Canadian) you could assume at least 10-100 times more than we know about. So lets DO SOMETHING and all players get together to help prevent this from getting any worse. Let's not waste anymore time with the myopic medical system who will catch up eventually..I hope Siincerely, Sherry

Rae said:

My belief is that the disease makes it's own eco system. Many people have similar "creatures" but then other invaders seem to be random. I think the Morgellons pathogen, is the worm and has different appearances with it's 6 or so life cycle forms and their debris and then other infections are of opportunity. For instance, I had a springtail infestation of lesions at one time but now none are present. Look at life cycles of flies and you can see what I mean.

Cipro, taken for 60 days, got rid of the secondary infections I had. Neem oil take internally, dropped in my ears and snorted up my nose for about 3 months, got rid of most symptoms and lesions for approx. 5 months. During the 5 good months, I was still shedding fibers, but none moved or caused sores. Then about 2 weeks ago, I started getting small, shallow sores again. What I have concluded is that the disease has life cycles but can also lie dormant. In my case it seems to be the white tracks and blotches, Before neem, I probably had 200 white areas, after Neem, more like 20. I have noticed a few rising "blotches" that were deeper in my skin, especially in the crooks of my arms and anywhere I have scars including tattoos.

What I am very thankful of is the apparent weakening of the disease with Neem. I am not dealing with the retracting "hairs" like before. I am very happy about this because that symptom alone made me want to set myself a fire in some field.

Another thing I discovered is that apple cider vinegar & white vinegar either/or, applied to lesions or added to bath water brings a lot of relief. I use 2 cups of Epsom salt & 2 or more cups of vinegar in my bath water. The vinegar kills the little bastards pretty quick.

I will also mention that the elevated liver enzymes & the positive inflammatory markers I had lowered or went away after I took Neem. I also no longer felt the biting & crawling that always started a day or two before a full moon.

Needless to say, I am going back on the Neem oil. Man do I NOT want to do that, it's the nastist tasting crap I have ever experienced. If anyone wants, I will post the links on Neem oil.

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Permalink Reply by Sherry Taylor on January 5, 2010 at 6:39pm

Yes please, i haven't been doing the Neem internally but it helps a lot externally. if you have some on your fingers and they touch your mouth by accident it tastes REALLY bitter. But hey if it works...yay A neem source other than the overprice retail health food store(don't get me wrong I'm grateful they have it at all) would be great. it comes from India..is solid and I know Mountain Rose Herbs does carry it. But I'm in Canada and that usually raises the price of everything a lot...so any source helps. Has anyone tried Catnip oil from Alberta? Sincerely, Sherry..PS very excellent post..keep it up

Sherry Taylor said:

this is a relly long but important thread. i'd love to go back to swimming but don't want to take a chance on infection anyone even though my daughter says the chlorine will kill anything. My ex roommates and guy friend did not get this. The persono who spred it around in our meditation group says she only had really mild symptoms. 8 people have varying levels of symptoms. 2, me and someone else have it bad. People have various levels of comfort with communicating..read ..some are secretive and very senstive to the stigma. Soooo there is way more out there... like the bottom of an ice burg(I'm Canadian) you could assume at least 10-100 times more than we know about. So lets DO SOMETHING and all players get together to help prevent this from getting any worse. Let's not waste anymore time with the myopic medical system who will catch up eventually..I hope Siincerely, Sherry

Rae said:

My belief is that the disease makes it's own eco system. Many people have similar "creatures" but then other invaders seem to be random. I think the Morgellons pathogen, is the worm and has different appearances with it's 6 or so life cycle forms and their debris and then other infections are of opportunity. For instance, I had a springtail infestation of lesions at one time but now none are present. Look at life cycles of flies and you can see what I mean.

Cipro, taken for 60 days, got rid of the secondary infections I had. Neem oil take internally, dropped in my ears and snorted up my nose for about 3 months, got rid of most symptoms and lesions for approx. 5 months. During the 5 good months, I was still shedding fibers, but none moved or caused sores. Then about 2 weeks ago, I started getting small, shallow sores again. What I have concluded is that the disease has life cycles but can also lie dormant. In my case it seems to be the white tracks and blotches, Before neem, I probably had 200 white areas, after Neem, more like 20. I have noticed a few rising "blotches" that were deeper in my skin, especially in the crooks of my arms and anywhere I have scars including tattoos.

What I am very thankful of is the apparent weakening of the disease with Neem. I am not dealing with the retracting "hairs" like before. I am very happy about this because that symptom alone made me want to set myself a fire in some field.

Another thing I discovered is that apple cider vinegar & white vinegar either/or, applied to lesions or added to bath water brings a lot of relief. I use 2 cups of Epsom salt & 2 or more cups of vinegar in my bath water. The vinegar kills the little bastards pretty quick.

I will also mention that the elevated liver enzymes & the positive inflammatory markers I had lowered or went away after I took Neem. I also no longer felt the biting & crawling that always started a day or two before a full moon.

Needless to say, I am going back on the Neem oil. Man do I NOT want to do that, it's the nastist tasting crap I have ever experienced. If anyone wants, I will post the links on Neem oil.

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Permalink Reply by Sherry Taylor on January 5, 2010 at 7:01pm

Yes, there are some very important points and remedies in this section..and my daughter and son in law got this from less than an hour visit from me, the day after their wedding.
But my guy friend and old roommates did not get this.
This, i believe is very significant and should be studied.
To all scientists CDC whoever does this..like the plague..some decendants from a town is England centuries later(who had develped an immunity) who got HIV didn't get Aids..now this is important WHY NOT?
Our countries, the world health, is at stake here, as prevention would be far better than trying to heal this after.
And to the willy nilly polluters and GMO people, SHAME ON YOU.
What is the use of having more cheap food if we are all sick and infested?
That might not be the only factor..but lets get the $ signs out of our eyes and figure this out.
I know people are out of work and broke..me too, so we have time..lets use it. The world depends on... good old American know how, ...and you have an awesome president now.
Don't rely on the Chinese, there is a lack of compassion there..beaten out of people by communism( a good idea, at first, gone terribly wrong)...don't get me wrong it's not just them...sorry about that to my chinese friends.
It's up to us.
Sincerely,
that Canadian from Vancouver,
Sherry

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Permalink Reply by Sherry Taylor on January 6, 2010 at 2:35am

I had those flies too, but not recently. A young man in home depot helping me and this other fellow who had bed bugs said..oh ya, fungal gnats i hate them..first time i encountered anyone who knew what they were.
They were nesting in my ears..especially the left one which was badly infested. I saw them fly out, went to the washroom, and rinsed out my ears with the giant plastic syringe and salt water..and there were 3 in the tub in the wax at different stages.
The insects get infected with the organizm that causes Morgellons like the Lyme ticks get infected with borrelius whatever that name is..any insect can get it. you know I had a scary thought last night what if they interbreed with local insects and create a stronger...oh it is too painful to go there.
Anyway a variety of insects can get infected..including our own mites I bet..I just thought of that..but they go a little cukoo....like they're on steroids..what is that?
Ew black thing on my hand..just disappeared before i could get a kleenex..i hate that..because i don't know where it went. I hope it didn't go back in.
Sorry, so this bacteria that infects the insects has a nasty virus that has been altered to be even nastier stuck in it and it comes to the party with a fungus. That's my understanding. Hi Gordon, how are ya?
Gordon Dye said:

The term "fungal fly" is more generally expressed as "fungus gnat" in published literature. There is a very informative site concerning these critters at http://www.pestproducts.com/fungusgnat.htm. While these are not Morgellons life forms, they may spread Morgellons because they feed on fungi.

Note that fungus is a life form that is more animal like than plant like and therefore may be bred more intelligently. And some people have devoted much time and effort into biological warfare agents (Note http://www.whale.to/m/scott7.html ) Note also that while mycoplasma is taxonomically distinct from fungus, it could appear like fungus. Note that fungus has been associated with cancer at http://www.knowthecause.com/ which corroborates Donald Scott's assertions.

So this disease may spread through a life form that at its base, could be as small as fungus or mycoplasma, and would appear as fungus, but could be something altogether different. Please note also that several people have reported that the best known antidote for fungus in the blood is baking soda.

I can't figure out whether Morgellons uses theses flies or consists of life forms that appear as flying creatures, including small spider like creatures that make random cob webs, but not like conventional spider webs. I think the white flies that Mary describes are different from fungus gnats but both could spread Morgellons.


Jeanne Cromer said:

That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.

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Permalink Reply by Sherry Taylor on January 6, 2010 at 4:10am

i just went to all those links Gordon..totally awesome..some I did know about ..the first one about the Canadian and American govt's experiments..the others were new to me, plus the meaning of mycotoxin. I was getting the hunch there was some kind of fungus involvement..this confirms it so thank you.
What really worries me is fungus known as yellow rain dropped from planes on Korea and Afghanistan and the connection to a Siberian village's grain mold.
I was mortified to find it being used in the agri busness as a substitue for chemicals to control root rot in tomatoes..
Workers have gotten sick at those development labs and oversight seems absent.
I since learned most new antibiotics are made from fungals..yikes
thank you to people like Jeffrey Smith
Thanks again..I appreciate your including the sites Gordon ,
great article,
Sherry

Gordon Dye said:

The term "fungal fly" is more generally expressed as "fungus gnat" in published literature. There is a very informative site concerning these critters at http://www.pestproducts.com/fungusgnat.htm. While these are not Morgellons life forms, they may spread Morgellons because they feed on fungi.

Note that fungus is a life form that is more animal like than plant like and therefore may be bred more intelligently. And some people have devoted much time and effort into biological warfare agents (Note http://www.whale.to/m/scott7.html ) Note also that while mycoplasma is taxonomically distinct from fungus, it could appear like fungus. Note that fungus has been associated with cancer at http://www.knowthecause.com/ which corroborates Donald Scott's assertions.

So this disease may spread through a life form that at its base, could be as small as fungus or mycoplasma, and would appear as fungus, but could be something altogether different. Please note also that several people have reported that the best known antidote for fungus in the blood is baking soda.

I can't figure out whether Morgellons uses theses flies or consists of life forms that appear as flying creatures, including small spider like creatures that make random cob webs, but not like conventional spider webs. I think the white flies that Mary describes are different from fungus gnats but both could spread Morgellons.


Jeanne Cromer said:

That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.

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Permalink Reply by Sherry Taylor on January 6, 2010 at 4:20am

It is contagious..just not to everyone. Problem is you don't know who it is contagious for.
Some say it is contagious to those who have agrobacterium infections in their gut. How do you know... you ate some GMO food that had it or perhaps got it from water, air or soil?
But it is evident now that it can be passed from person to person..a big problem, as some people don't get it that bad and don't realize they are contagious.
Let's solve this mystery.
Sincerely,
Sherry

Joanne C said:

If it is not contagious why have families got it. I went to sleep at my friends house and the next week she told me that she was seeing black flies around the house and itching.

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Permalink Reply by Bugged N. Moore on May 2, 2010 at 6:23pm

I am working very hard to connect all the confusing pieces to this puzzle. I have seen the flies every time I felt biting. There is also this waxy substance around that I have studied under the microscope. Sometime I see flies in them. There are scale insects that the male is a fly. I will post pics of the fly I captured it looks like the "morg" bug and can not be identified by Texas A & M university (the nation's leading institution for entomology research).

Gordon Dye said:

The term "fungal fly" is more generally expressed as "fungus gnat" in published literature. There is a very informative site concerning these critters at http://www.pestproducts.com/fungusgnat.htm. While these are not Morgellons life forms, they may spread Morgellons because they feed on fungi.

Note that fungus is a life form that is more animal like than plant like and therefore may be bred more intelligently. And some people have devoted much time and effort into biological warfare agents (Note http://www.whale.to/m/scott7.html ) Note also that while mycoplasma is taxonomically distinct from fungus, it could appear like fungus. Note that fungus has been associated with cancer at http://www.knowthecause.com/ which corroborates Donald Scott's assertions.

So this disease may spread through a life form that at its base, could be as small as fungus or mycoplasma, and would appear as fungus, but could be something altogether different. Please note also that several people have reported that the best known antidote for fungus in the blood is baking soda.

I can't figure out whether Morgellons uses theses flies or consists of life forms that appear as flying creatures, including small spider like creatures that make random cob webs, but not like conventional spider webs. I think the white flies that Mary describes are different from fungus gnats but both could spread Morgellons.


Jeanne Cromer said:

That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.

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Permalink Reply by suzy on May 2, 2010 at 6:57pm

living organisms that like to live in moist conditions love a chemical called toulene which is created in our bodies with morgellons. I think that might be what you're referring to. Our bodies create the perfect environment for their living.

Bugged N. Moore said:

I am working very hard to connect all the confusing pieces to this puzzle. I have seen the flies every time I felt biting. There is also this waxy substance around that I have studied under the microscope. Sometime I see flies in them. There are scale insects that the male is a fly. I will post pics of the fly I captured it looks like the "morg" bug and can not be identified by Texas A & M university (the nation's leading institution for entomology research).

Gordon Dye said:

The term "fungal fly" is more generally expressed as "fungus gnat" in published literature. There is a very informative site concerning these critters at http://www.pestproducts.com/fungusgnat.htm. While these are not Morgellons life forms, they may spread Morgellons because they feed on fungi.

Note that fungus is a life form that is more animal like than plant like and therefore may be bred more intelligently. And some people have devoted much time and effort into biological warfare agents (Note http://www.whale.to/m/scott7.html ) Note also that while mycoplasma is taxonomically distinct from fungus, it could appear like fungus. Note that fungus has been associated with cancer at http://www.knowthecause.com/ which corroborates Donald Scott's assertions.

So this disease may spread through a life form that at its base, could be as small as fungus or mycoplasma, and would appear as fungus, but could be something altogether different. Please note also that several people have reported that the best known antidote for fungus in the blood is baking soda.

I can't figure out whether Morgellons uses theses flies or consists of life forms that appear as flying creatures, including small spider like creatures that make random cob webs, but not like conventional spider webs. I think the white flies that Mary describes are different from fungus gnats but both could spread Morgellons.


Jeanne Cromer said:

That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.

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Permalink Reply by Eileen Matichuk on May 3, 2010 at 12:23am

Gordon, I am beginning to feel that it only comes on people whose immunity is somehow lower than the normal person and it could be lowed by something such as exposure to something or a lack of something. I am not sure but I think mine was exposure to a mold situation in our cabin. It was very bad and had to be destroyed. I was the only one who worked in that very bad, moldy situation in our family and I was the only one who got it. My husband and I used the same towels, bedding etc. He did not get anything. Our son lived with us and did not get any symptoms at all. Our children and their spouses and our grandchildren came over a lot and we all used the same dish towels. Not one person of the 25 in our immediate family has had any symptoms. I know of another person in the city I live in who has it and no one else in his family has contacted it.

But I do agree with you that people need to be careful. I have no doubt that there are families where more than one get it. Probably if other members of my family had gone in to help me with the mold situation they would have also compromised their health and could have become prone to getting symptoms also.

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Permalink Reply by janedoeBEATTHEBUGS on May 10, 2010 at 4:39pm

it has to be contageous to a certain extent, i got it! my dad does not, but different people im around cough more or less, depending on if they have a strong immune system, im assuming. i always thought my immune system is strong, well, i still think it is, im not dead yet..

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Permalink Reply by Lucie E. on September 13, 2011 at 11:21am

Hi Gordon,

   I think it can be contagious but from the little experience of this I have so far everyone around me seems unaffected, even people whom I was in fairly close contact with before I even suspected what this was. I think we whom are affected have a suceptibility to it. I was in very poor shape at the time I got this, depressed, sleeping 2 hours a night often, working alot, not eating well and of course then was exposed to those critters, whatever thay are. I feel much better now that I started sleeping and changed my diet, though I doubt this will ever leave me completely. I think I closed the barn door too late. I now carry my enzyme spray everywhere when I visit, and only visit when I don't feel symptomatic. I confess to making some mistakes before I really understood this thing or knew what it was. Fortunately no one around me seem to have it, but I am now much more careful, maybe a little obsessively so. It would seem that there needs to be certain factors or circumstances in place for contagion to happen. I pray I never infect anyone and it haunts me sometimes that maybe I unknowingly have by going to public places, regardless of being careful.

 

L.

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