Morgellons Support Network
Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
contagion ethics
Concerning a comment by Mary Jones-
"I talked to another sufferer on this site and she has moved out of the home of her husband and children, this next statement bothers me, she goes to a spa and gets mud baths and natural sulfur spring water baths. Even if the bath content is removed & disposed of then the towels she uses and those that come off of her while there are going to infect others. Is infecting others the only way we are going to get help? That seems so wrong to me but if it's true then I need to get out more. "
If this person is using their own towels (which seems to be unlikely) then I see no problem in infecting the environment because if Morgellons is functional outside the body in the outside environment then it will spread indefinitely anyway. I DO feel it is wrong to willy nilly expose people to this by sleeping in hotels without using our own linens, etc.
Ginger Savely contends that it is not contagious. I personally believe it is, but it is not as easily transferred as I once thought.
"I talked to another sufferer on this site and she has moved out of the home of her husband and children, this next statement bothers me, she goes to a spa and gets mud baths and natural sulfur spring water baths. Even if the bath content is removed & disposed of then the towels she uses and those that come off of her while there are going to infect others. Is infecting others the only way we are going to get help? That seems so wrong to me but if it's true then I need to get out more. "
If this person is using their own towels (which seems to be unlikely) then I see no problem in infecting the environment because if Morgellons is functional outside the body in the outside environment then it will spread indefinitely anyway. I DO feel it is wrong to willy nilly expose people to this by sleeping in hotels without using our own linens, etc.
Ginger Savely contends that it is not contagious. I personally believe it is, but it is not as easily transferred as I once thought.
Views: 98
Replies to This Discussion
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Permalink Reply by Joanne C on -
If it is not contagious why have families got it. I went to sleep at my friends house and the next week she told me that she was seeing black flies around the house and itching.
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Permalink Reply by Gordon Dye on
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Ginger says families get it because of simultaneous exposure to its original source.
Your observation about your sleep over is quite significant. Please let us know if your friend ends up infected.
I had a friend visit for a day and he ended up itching for a couple of days just from sitting in my living room.
It would be good if others would comment on both ethics and contagion experience.
Joanne C said:If it is not contagious why have families got it. I went to sleep at my friends house and the next week she told me that she was seeing black flies around the house and itching.
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Permalink Reply by B.Brown on
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I believe that some people, for whatever reason, are more likely to contact Morgellons than others. In the same family often one or more members will have Morgellons, while other family members do not. Why??? I believe that some people are carriers, they have the parasite but it does not cause the severe lesions and symptoms. Perhaps, some people only have a "light case" of Morgellons while others have a full blown case. The reason some are affected more than others could have many causes, such as general health of the individual, environmental factors, skin types, dietary habits and stress levels. I have found that Morgellons is worse in hot climates, crowded surroundings, when individual is in poor health and also I think stress is a factor. Stress can lower the body's resistance and increase blood pressure, heart rate, among other things. It is a vicious circle, Morgellons=stress, poor health, depression, etc. and these factors make the Morgellons worse. I hope and pray that the medical community will begin to study and take Morgellons patients seriously. Morgellons is spreading rapidly, I believe that the medical community will HAVE to take a second look at Morgellons, or answer the question WHY so many people, unknown to each other, of all ages and locations have the exact same "Delusional Behavior." Keep up your attempts to learn more about Morgellons and Good Luck.
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Permalink Reply by Mary Jones on -
Hello Gordon,
I watched the video with Ginger and she must be 1) one of the lucky ones that doesn't catch it...or 2) they are not effecting her skin and hair...I hope it's #1. She is right about people needing people and to touch other humans (without gloves on) - so - my husband and I drove down to a local lake and strolled around holding hands. As discusting as my body has become from filling up with these things...he still loves me.
I took some really interesting pictures of worms from my chin and out of my nose today, check out my latest blog.
Have a happy,
Mary
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Permalink Reply by B.Brown on
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I found some information on Internet about Myiasis. Some of the symptoms are similar to Morgellons. Could Morgellons possibly be caused by flies? Recent chemicals, overuse of pesticides and alteration of plants is a newly environmental factor. Google in Myiasis and check out the information. I think you will find it interesting. Best Wishes.
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Permalink Reply by Jordan Dennis on
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I got this from a boyfriend in the mosquito abatement industry. He sells supplies to all the districts. He goes to Florida and all over California and other states.
He has the bumps and sores but not as bad as I . Also, he seems to think its just bed bugs from hotel rooms. I ve been diagnosed with scabies several times and called delusional. It is contagious.
B.Brown said:I found some information on Internet about Myiasis. Some of the symptoms are similar to Morgellons. Could Morgellons possibly be caused by flies? Recent chemicals, overuse of pesticides and alteration of plants is a newly environmental factor. Google in Myiasis and check out the information. I think you will find it interesting. Best Wishes.
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Permalink Reply by Jeanne Cromer on
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I know this doesn't sound very nice, but I know of a few Doctors that I wish would get it. Maybe then they will stop calling me delusional. If bleach or amonia is used in the wash, the towels and sheets should not have any live parasites.
Hello Sufferers,
It is my hopes that we can help each other deal with this dreadful disease and soon get the medical world to take us seriously. I contacted symtoms last summer IJune 2008). I was outside enjoying my yard work and cut a couple of branches from
my neighbors trees that were hanging in my yard. While pulling the limb down, a cloud of dust, debris, or whatever, landed on me. I shook myself off and didn't think anymore about it. I was so tired that I took a brief nap on the sofa. When I woke, my face was covered with sores that looked like instant acne. They took several weeks to heal. Ever since, I have been breaking out with unexplained sores that never heal or heal slowly. I believe the scabs are not scabs at all, but that the parasites reproduce their. I have had them in my ears, eyes, nose, and almost everywhere on my body. In the beginning I would get urinary tract infections and take the over the counter red pills. You wouldn't believe the debris that would be in my urine. I also have seen them in my stools. My finger nail and toe nails won't grow and are easy to get a nail fungus. My blood seems thick, and if I allow some to dry on a piece of paper you will see unknown particles and black specks. I have been to numerous Doctors. Including dermatologist and infectious disease Doctors. They patronize me and consider me to be dilusional. I have fibromyalgia and chronic fatigue symdrome and they tell me it's the pain medicine that I am taking. I have 2 cats and feel as if they too are infected with the parasites. I have taken them to the vet, but she says that they don't have worms or parasites even though their fur is covered with white flakes. The last Dr. I visited, did an immune system test on my blood and the test came back ok except for the fact that my blood has high protein antibodies.
The Dr. didn't seem to be concerned, but info on the internet informed me that it is sign that I have been fighting an infection that my immune system has not been able to fight, so my body has been building up protein antibodies. According to the Mayo Clinic, that could mean a severe infection, blood cancer or bone cancer, but none of my Dr.'s seem concerned. I feel like I am dying a very slow, lonely death. Someone has to listen to us! Jeanne
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Permalink Reply by Jeanne Cromer on
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That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.
Jordan Dennis said:I got this from a boyfriend in the mosquito abatement industry. He sells supplies to all the districts. He goes to Florida and all over California and other states.
He has the bumps and sores but not as bad as I . Also, he seems to think its just bed bugs from hotel rooms. I ve been diagnosed with scabies several times and called delusional. It is contagious.
B.Brown said:I found some information on Internet about Myiasis. Some of the symptoms are similar to Morgellons. Could Morgellons possibly be caused by flies? Recent chemicals, overuse of pesticides and alteration of plants is a newly environmental factor. Google in Myiasis and check out the information. I think you will find it interesting. Best Wishes.
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I Googled Myiasis and I don't believe it is related to Morgellons except that both are parasite based. Morgellons seems to be much more alien in nature with a myriad of life forms that don't look like conventional insects. You know they are alive because they create pain when they try to enter your body and because they hop in an intelligent manner when prodded. I was scraping a small clump of something off my flip flop when it hopped up and over the nail file I was using going about an inch or so uphill to stay on my flip flop. These creatures regularly occur in a many of unrecognizable forms on my flip flops. I have also seen intelligent fuzz balls that hop and filaments that 'look' at you as you move your finger around them at a distance that exceeds possible electrostatic attraction. This is nothing like Myiasis.
B.Brown said:I found some information on Internet about Myiasis. Some of the symptoms are similar to Morgellons. Could Morgellons possibly be caused by flies? Recent chemicals, overuse of pesticides and alteration of plants is a newly environmental factor. Google in Myiasis and check out the information. I think you will find it interesting. Best Wishes.
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The term "fungal fly" is more generally expressed as "fungus gnat" in published literature. There is a very informative site concerning these critters at http://www.pestproducts.com/fungusgnat.htm. While these are not Morgellons life forms, they may spread Morgellons because they feed on fungi.
Note that fungus is a life form that is more animal like than plant like and therefore may be bred more intelligently. And some people have devoted much time and effort into biological warfare agents (Note http://www.whale.to/m/scott7.html ) Note also that while mycoplasma is taxonomically distinct from fungus, it could appear like fungus. Note that fungus has been associated with cancer at http://www.knowthecause.com/ which corroborates Donald Scott's assertions.
So this disease may spread through a life form that at its base, could be as small as fungus or mycoplasma, and would appear as fungus, but could be something altogether different. Please note also that several people have reported that the best known antidote for fungus in the blood is baking soda.
I can't figure out whether Morgellons uses theses flies or consists of life forms that appear as flying creatures, including small spider like creatures that make random cob webs, but not like conventional spider webs. I think the white flies that Mary describes are different from fungus gnats but both could spread Morgellons.
Jeanne Cromer said:That's a good question. I have thought that my condition might be caused by the fungal fly. They live in moist houseplant soil, kitchen sink drains, garbage cans, and rotting plants outside from too much moisture. The flies I see are pale brown, but my place of work has an infestation of little black flies that look like fruit flies.
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Permalink Reply by Rae on
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My belief is that the disease makes it's own eco system. Many people have similar "creatures" but then other invaders seem to be random. I think the Morgellons pathogen, is the worm and has different appearances with it's 6 or so life cycle forms and their debris and then other infections are of opportunity. For instance, I had a springtail infestation of lesions at one time but now none are present. Look at life cycles of flies and you can see what I mean.
Cipro, taken for 60 days, got rid of the secondary infections I had. Neem oil take internally, dropped in my ears and snorted up my nose for about 3 months, got rid of most symptoms and lesions for approx. 5 months. During the 5 good months, I was still shedding fibers, but none moved or caused sores. Then about 2 weeks ago, I started getting small, shallow sores again. What I have concluded is that the disease has life cycles but can also lie dormant. In my case it seems to be the white tracks and blotches, Before neem, I probably had 200 white areas, after Neem, more like 20. I have noticed a few rising "blotches" that were deeper in my skin, especially in the crooks of my arms and anywhere I have scars including tattoos.
What I am very thankful of is the apparent weakening of the disease with Neem. I am not dealing with the retracting "hairs" like before. I am very happy about this because that symptom alone made me want to set myself a fire in some field.
Another thing I discovered is that apple cider vinegar & white vinegar either/or, applied to lesions or added to bath water brings a lot of relief. I use 2 cups of Epsom salt & 2 or more cups of vinegar in my bath water. The vinegar kills the little bastards pretty quick.
I will also mention that the elevated liver enzymes & the positive inflammatory markers I had lowered or went away after I took Neem. I also no longer felt the biting & crawling that always started a day or two before a full moon.
Needless to say, I am going back on the Neem oil. Man do I NOT want to do that, it's the nastist tasting crap I have ever experienced. If anyone wants, I will post the links on Neem oil.
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Permalink Reply by Rae on
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I believe that the secondary infestations can be transmitted but the Morgellons itself is a bit tougher to transmit.
Gordon Dye said:Ginger says families get it because of simultaneous exposure to its original source.
Your observation about your sleep over is quite significant. Please let us know if your friend ends up infected.
I had a friend visit for a day and he ended up itching for a couple of days just from sitting in my living room.
It would be good if others would comment on both ethics and contagion experience.
Joanne C said:If it is not contagious why have families got it. I went to sleep at my friends house and the next week she told me that she was seeing black flies around the house and itching.
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