Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
I'm a gardener and I noticed weird things happen to my fingers after working in the dirt without my glove. That was 6 months ago and now it is throughout my body. I've been using colidal silver which has helped keep things at bay but think I will try the Nutrasilver next. Has anyone had a good experience with this product? Also I've been using oil of oregano on the fibres coming out of my body and this seems to stop them.
Thanks
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Permalink Reply by Sherry Taylor on December 10, 2011 at 12:55pm Dear Wendy,
Which oil or oregano do you use..because some are quite hot?
My friend Mary got this gardening in California..while they were fighting fungus on their roses.
Check the clostridum post...re bacteria..it is also used in soil remediation..perhaps it isn't being cleaned up after. No because it is so widespread I must conclude the spores are being carried in the air and water.
I'm not terribly far from you..my brother is in Burlington I'm in Windsor right now..down wind from BP refineries....and Detroit industrial pollution....so you can guess I'm not happy about that.
I grew up in Stoney Creek near Hamilton..but have been in BC the last 30 years. They have it there too.
I think body mites can get infected with the bacteria..so it can get passed from person to person..if they are susceptible(no one knows what makes one susceptible.. except if you've had this and got better once..you divinity are).
Keep in touch..I think the "doses" and how and when..frequency you take the silver do matter.
Sherry...nice to hear the Canadians, eh?
We have less to fear I think..but still get treated abominably by the medical establishment.
Then again Americans can be very brave and generous...but the stupid politics and even stupider financial system makes you mad that the world followed this crooked model.
And don't get me started on the corruption of the food system and de- regulation of environmental protection. If you have more money I guess as well as helping more..you can also do more damage.
Oh, well..by the way maybe you don't realize it..but the hydro bills in other parts of Canada like BC aren't nearly as high..Ontario is getting hosed big time..stupid leadership?
I came form here..and am very sad to see this state of affairs. I hear that even if we save power the gov't guaranteed they can raise their rates..so that they can keep making the same amount of money...the poor dears. What the heck? If you don't manage to get off the grid..you will be paying more and more...to compensate for the loss of those that are.
Now that is stupid..in Europe..Germany people are rewarded for generating power..villages work together..what a concept.
Sherry..sorry about the rant.
HI, yes i live close to Toronto, I live in Mississauga, why dont we comunicate by phone ; O.K l
Permalink Reply by Wendy Jones on December 10, 2011 at 7:44pm Hi Sherry,
Thanks for responding to my post and the info about your friend in California. How is she now? The roses I worked on this year where full of fungus and we were trying to treat them. I will look up clostridum post.
The oregano oil I'm using is New Roots. It seem to work well at weakening them and they are easier to pull out. My right hand was badly affected and I've now just had my first lesion in my right wrist. It looks like a slit my wrist but it would take more than Morgellons to do that :). I also ordered the Nutrasilver to see if it is any better than the Colidial silver I bought at my health food store.
How long have you had this? What do you do?
I went to see a dermatologist yesterday and he knew about it. He said he wanted to treat me for Lyme disease as well. My GP took blood tests two weeks ago for this but they take a long time to come back as they are sent out to a special lab. The Dermatologist said we should start treatment on that just in case.
He put me on risperidone and said he doesn't think I'm crazy as he could see the fibres in my lesion but says for some reason it seems to work on these parasites. They think that paralyses them and they can't feed and reproduce. He has treated 30 people with Morgellons and says the ones that took it got rid of them. I'll let you know what happens. He says it takes about 6 weeks.
Do you know if it's contagious? My boyfriend is quite concerned and I don't blame him.
Anyways, this is a weird journey for all of us and I hope you are ok. This would make a hell of a Twilight Zone episode. dodododododo
Thanks again,
Wendy
Sherry Taylor said:
Dear Wendy,
Which oil or oregano do you use..because some are quite hot?
My friend Mary got this gardening in California..while they were fighting fungus on their roses.
Check the clostridum post...re bacteria..it is also used in soil remediation..perhaps it isn't being cleaned up after. No because it is so widespread I must conclude the spores are being carried in the air and water.
I'm not terribly far from you..my brother is in Burlington I'm in Windsor right now..down wind from BP refineries....and Detroit industrial pollution....so you can guess I'm not happy about that.
I grew up in Stoney Creek near Hamilton..but have been in BC the last 30 years. They have it there too.
I think body mites can get infected with the bacteria..so it can get passed from person to person..if they are susceptible(no one knows what makes one susceptible.. except if you've had this and got better once..you divinity are).
Keep in touch..I think the "doses" and how and when..frequency you take the silver do matter.
Sherry...nice to hear the Canadians, eh?
We have less to fear I think..but still get treated abominably by the medical establishment.
Then again Americans can be very brave and generous...but the stupid politics and even stupider financial system makes you mad that the world followed this crooked model.
And don't get me started on the corruption of the food system and de- regulation of environmental protection. If you have more money I guess as well as helping more..you can also do more damage.
Oh, well..by the way maybe you don't realize it..but the hydro bills in other parts of Canada like BC aren't nearly as high..Ontario is getting hosed big time..stupid leadership?
I came form here..and am very sad to see this state of affairs. I hear that even if we save power the gov't guaranteed they can raise their rates..so that they can keep making the same amount of money...the poor dears. What the heck? If you don't manage to get off the grid..you will be paying more and more...to compensate for the loss of those that are.
Now that is stupid..in Europe..Germany people are rewarded for generating power..villages work together..what a concept.
Sherry..sorry about the rant.
Permalink Reply by Wendy Jones on December 10, 2011 at 7:49pm Hi Kayty,
I would love to talk to you what is your number?
kayty said:
HI, yes i live close to Toronto, I live in Mississauga, why dont we comunicate by phone ; O.K l
Permalink Reply by Sherry Taylor on December 11, 2011 at 1:22am Kayty quite rightly steered me to keeping to the person at hand..sorry about that...way too isolated over here.
It can be contagious if your boyfriend is susceptible..soe people in families never get it.
RE respiratone..you may want to ask your pharmacist for a print out re any side affects.
Great if it works. Glad to hear about that.
People react differently to these medications so I'd research it well if I were you.
I've heard good things..from the net re the silver. And people in Vancouver were using the oregano.
You could skipe call anyone for free on the net.
Sherry
Permalink Reply by Sherry Taylor on December 11, 2011 at 1:49am "M" does make those slits. "M" refers to the whole constellation of things happening I think. You can get burn like blisters too...at least I did.. but I haven't had them for a while though.
I'm still getting infected bites. Iodine helps those slits and bites and infections..a liberal amount of it..often. DMSO gel made a difference on them and silver gel.
For the hands..nitril gloves...other ones are fine..but should be disposable...change often...and wash the hands several times a day.
I use them when doing laundry, and food prep too. Neem and coconut oil,even regular extra virgin olive oil helps nurture the skin.
Hands are very vulnerable to infection..from the computer too.
I've used propolis with some success also..and clay mask stuff. Mike 88 uses manuka honey. Keeping the lesions covered helps..Eileen put tape on hers to suffocate them.
I believe this is a nematode(worm) this a bacteria in it that feeds the fungus. Inside the bacteria is a virus. Filial worms, body mites also eat the bacteria..which likes oil..you need it for how dry your skin gets..add some essential oils..this critter doesn't like them..tea tree , cedar, peppermint.etc..some are very strong and need to be diluted like clove oil. Lavender and eucalyptus smell lovely..I think.
I'm interested in learning more about respiritone..if you know anyone who has taken it. I have heard some older generation anti psychotics were also anti parasitics and did help..but the side affects of those were quite harsh and they aren't prescribed much anymore. There is a study out of U of Oklahoma..re testing psych patients..most of which actually did have parastites. It was a fairly small sample..and I don't believe anything has been followed through on that one. It's pretty easy to become unhinged dealing with the stress of this but that's different than believing in delusions..hearing voices ...type stuff..seeing things that aren't there or thinking random people are against you.
I realize it could sound that way when one starts to investigate what factors could contribute to this. Some may be true some not.
People are that upset..re having this..and I think ...well I understand it.
Sherry...
.I'm staylor08 on skipe..I'm not too good on facebook..but willing to learn..people trying to teach me may want to pull their hair out though..lol
Permalink Reply by Wendy Jones on December 11, 2011 at 9:32am Hi again :)
My mind is still intact and I am remaining calm. LOL
I've been on TEVA-Doxylin 100 mg and resperitone 1 mg a day for 2 weeks and then 2 mg a day for 4 weeks I think. He said it takes about 6 weeks. I am on my 3 day as of today. I feel like the sores in my mouth are easier to pull the fibers out without hurting...it's as if they are giving up. Yesterday wasn't so good but this morning I feel better. When I picked up my prescription at the pharmacy where my dermatologists works he said my doctor was very up to date on new parasites but he had never heard of using risperidone for parasites. He knows a person at the Infectious disease clinic at one of our top hospitals here in Toronto (Sunnybrooke) and was going to ask about using risperidone for this. I will keep you posted on my progress and information. If this works for me I would love to be able to help others with this.
How long have you had it again. Anyone in your family have it? I wonder why some are more receptive to this than others. When I get rid of this in my body and am going to have professional cleaners in to do deep cleaning on everything.
Thanks again Sherry. Are you on Facebook? I could talk you through it if you'd like. I am there under Wendy Jones. If you want to talk there just ask to be my friend. :)
Bye for now.
Sherry Taylor said:
"M" does make those slits. "M" refers to the whole constellation of things happening I think. You can get burn like blisters too...at least I did.. but I haven't had them for a while though.
I'm still getting infected bites. Iodine helps those slits and bites and infections..a liberal amount of it..often. DMSO gel made a difference on them and silver gel.
For the hands..nitril gloves...other ones are fine..but should be disposable...change often...and wash the hands several times a day.
I use them when doing laundry, and food prep too. Neem and coconut oil,even regular extra virgin olive oil helps nurture the skin.
Hands are very vulnerable to infection..from the computer too.
I've used propolis with some success also..and clay mask stuff. Mike 88 uses manuka honey. Keeping the lesions covered helps..Eileen put tape on hers to suffocate them.
I believe this is a nematode(worm) this a bacteria in it that feeds the fungus. Inside the bacteria is a virus. Filial worms, body mites also eat the bacteria..which likes oil..you need it for how dry your skin gets..add some essential oils..this critter doesn't like them..tea tree , cedar, peppermint.etc..some are very strong and need to be diluted like clove oil. Lavender and eucalyptus smell lovely..I think.
I'm interested in learning more about respiritone..if you know anyone who has taken it. I have heard some older generation anti psychotics were also anti parasitics and did help..but the side affects of those were quite harsh and they aren't prescribed much anymore. There is a study out of U of Oklahoma..re testing psych patients..most of which actually did have parastites. It was a fairly small sample..and I don't believe anything has been followed through on that one. It's pretty easy to become unhinged dealing with the stress of this but that's different than believing in delusions..hearing voices ...type stuff..seeing things that aren't there or thinking random people are against you.
I realize it could sound that way when one starts to investigate what factors could contribute to this. Some may be true some not.
People are that upset..re having this..and I think ...well I understand it.
Sherry...
.I'm staylor08 on skipe..I'm not too good on facebook..but willing to learn..people trying to teach me may want to pull their hair out though..lol
Permalink Reply by Sherry Taylor on December 11, 2011 at 2:07pm Hi Wendy,
I'm afraid you may have to teach me facebook..which could be nerve racking.
I was on it once before I got this. 2 years..or is it coming up 3 in the spring...I've had this.
My son in law got it at their wedding..I think..a terrible rash...was in the hospital 5 times, lost his summer job..then my daughter got it..and the baby has rashes..plus a congenital double bowel she just had a re-section for(birth defects are more common with this condition). She's a great little trooper though.
No one else I know got it. i just visited them knowing i would know pretty quickly if they had it..re the environmental stuff...despite the denial on their part.."I'm just paranoid" apparently. Their hair worms are down right scary...and he touches them with his hands...yikes. Way more dust than normal..I was getting bitten near the end of the 10 days..despite cleaning the bathroom and floors every day..with gloves of course.
My luggage was on the floor...big problem..I didn't realize how infested it was when I got home and left it in the living room for several days...major clean up job.
Deep cleaning..unfortunately needs to be done regularly until they are all gone..but you get better at it.
At Gordon's..i finally found where the little black teste like flies were coming from...above his bathroom cabinet..and inch of black goo..that was a lot of work... he was out. All garbage pails must have closed lids and use a good plastic bag inside..take out every day.
Wash the can regularly inside and out..the tub with a sprayer from the shower is the easiest way..and a brush. Use bleach or other strong cleaners. Dry everything..this critter likes moisture. Pour ammonia, bleach..not together..whatever ..down the drains and keep the plugs in when not in use.
I do hope this works..re the med's..hey a doctor who knows about "M"...things are looking up.
The problem with these organisms is that there are genetically modified parts of their genes DNA..and it's not all on the radar of the tests..say for example..you can take part of an e-bola genes or HIV gene insert it..and it won't be enough to come upon a test..in fact you can alter one part of the ebola gene to make the organism air-born(courtesy of am radio..I'm going nooo don't broadcast this stuff... to myself). Honestly I didn't really want to know this much about this but these "burn"..chemical..symptoms were so similar to yellow rain...from a mycotoxin(excrement/enzyme from a grain fungus found in Siberia) made in Russia..and sprayed on Cambodia from planes..that it got me investigating more. Scientists said there is no way that grew there.
Turns out the army only has what we have...baking soda etc... bummer.
Not to get too conspirator theoryish..but my fiend's boyfriend from Iran got this twice cleaning up bomb sites(chemical warefare) and the shells said "made in Canada" on them.
Now that is depressing..he thought that was just a sticker..and doubted it was really true.
These things are supposed to be "secret"..they have been going on since war began.
That's not to say that is what we have..
but I was researching agri-business..and whoa and behold..this woman from California(former Monsanto employee)..says yes we are rushing to develop biological methods for pest control..I've just traveled to Siberia, and Central america (home of the fungus killing the little froggies)..a version of which when it moves to colder climates becomes more virulent. They take parts of these and use them..for things like tomato root rot. And a flounder gene to make the tomatoes last longer in cooler weather.
It's worse..the soil gene..b. therma..it's on Wikipedia used to ferry this stuff into the plant is compatible with the gut e-coli of humans...and it can switch in...also while the temperature outside is too cold for propagation the temperature inside the gut is just right.
You may learn may more than you wish you knew..loss of innocence..but it is important.
There are random genetic mutations that happen too...climate change?
The potato famine in Europe was started by a shipload of potatoes from the new world that had a fungus in them..mind boggling eh?(St. Patrick's day special on the CBC)
Anyhow crittiers can be vectors of nasty stuff...too they give the bacteria to you when they bite you.
There is the nano..stuff too and NASA's development of self replicating cells mimicking human cells....they can multiply in you and live off your energy..blood everything....this would explain the plastic -like strands(fibers)...I should stop..lots to investigate.
WE must never give up.
Some people have had this for several to 20(Joni Mitchel) years...some life..so that's kind of frightening. Some have gotten rid of the symptoms.
The real tragedy is that the system has the resources but not the will to track this down.
Maybe that is changing..I hope so.
There is much to discover on the web..but some things disappear fast..so save very interesting things..they may not be there when you go to look it up again.
It's understandable people are afraid..but having said that..being positive does help.
Reducing possessions helps,
Other parts of the world deal with pests on a daily basis..it costs our economy big time in loss of productivity.
Why the insanity theory? Who would want to be part of a world where this is happening... my ex said. so we shall just say..it isn't and all of you people are crazy..because we can't handle that this can be happening. That won't help will it?
Courage is our best ally here.
Sherry
Wendy Jones said:
Hi again :)
My mind is still intact and I am remaining calm. LOL
I've been on TEVA-Doxylin 100 mg and resperitone 1 mg a day for 2 weeks and then 2 mg a day for 4 weeks I think. He said it takes about 6 weeks. I am on my 3 day as of today. I feel like the sores in my mouth are easier to pull the fibers out without hurting...it's as if they are giving up. Yesterday wasn't so good but this morning I feel better. When I picked up my prescription at the pharmacy where my dermatologists works he said my doctor was very up to date on new parasites but he had never heard of using risperidone for parasites. He knows a person at the Infectious disease clinic at one of our top hospitals here in Toronto (Sunnybrooke) and was going to ask about using risperidone for this. I will keep you posted on my progress and information. If this works for me I would love to be able to help others with this.
How long have you had it again. Anyone in your family have it? I wonder why some are more receptive to this than others. When I get rid of this in my body and am going to have professional cleaners in to do deep cleaning on everything.
Thanks again Sherry. Are you on Facebook? I could talk you through it if you'd like. I am there under Wendy Jones. If you want to talk there just ask to be my friend. :)
Bye for now.
Sherry Taylor said:"M" does make those slits. "M" refers to the whole constellation of things happening I think. You can get burn like blisters too...at least I did.. but I haven't had them for a while though.
I'm still getting infected bites. Iodine helps those slits and bites and infections..a liberal amount of it..often. DMSO gel made a difference on them and silver gel.
For the hands..nitril gloves...other ones are fine..but should be disposable...change often...and wash the hands several times a day.
I use them when doing laundry, and food prep too. Neem and coconut oil,even regular extra virgin olive oil helps nurture the skin.
Hands are very vulnerable to infection..from the computer too.
I've used propolis with some success also..and clay mask stuff. Mike 88 uses manuka honey. Keeping the lesions covered helps..Eileen put tape on hers to suffocate them.
I believe this is a nematode(worm) this a bacteria in it that feeds the fungus. Inside the bacteria is a virus. Filial worms, body mites also eat the bacteria..which likes oil..you need it for how dry your skin gets..add some essential oils..this critter doesn't like them..tea tree , cedar, peppermint.etc..some are very strong and need to be diluted like clove oil. Lavender and eucalyptus smell lovely..I think.
I'm interested in learning more about respiritone..if you know anyone who has taken it. I have heard some older generation anti psychotics were also anti parasitics and did help..but the side affects of those were quite harsh and they aren't prescribed much anymore. There is a study out of U of Oklahoma..re testing psych patients..most of which actually did have parastites. It was a fairly small sample..and I don't believe anything has been followed through on that one. It's pretty easy to become unhinged dealing with the stress of this but that's different than believing in delusions..hearing voices ...type stuff..seeing things that aren't there or thinking random people are against you.
I realize it could sound that way when one starts to investigate what factors could contribute to this. Some may be true some not.
People are that upset..re having this..and I think ...well I understand it.
Sherry...
.I'm staylor08 on skipe..I'm not too good on facebook..but willing to learn..people trying to teach me may want to pull their hair out though..lol
Permalink Reply by Wendy Jones on December 11, 2011 at 8:50pm Hi Sherry,
I'm just home from work and was happy to see your reply. You seem very balanced with this and knowledgeable about this which seem to be rare.
Sorry to here about your family but I am beginning to feel hopeful. I'm feeling better tonight then I did this morning. More and more are releasing gently as I pull them out of my lips. They are like ribbons and my cheek is hurting less.
Are you sure the baby has morgellons? My youngest son had so many skin problems as a baby which seems to run in my family. No one in my family has this yet and I do see them a lot.
Has your family tried Colidial silver. Probably because you are so up to date with all this stuff. My son has acne scars which I think I will give him colidial silver for.
My sister found an article about anti psychotic drugs used for this and once I read it I will cut and paste it to this forum. It's a little early to be optomistic about this treatment but I have to say I am feeling hopeful.
Thanks again for you time and knowlege.
Wendy
Permalink Reply by Ruth on December 14, 2011 at 8:03pm I live in Toronto and have this. Mine came from a dog who had fleas who left mites and the dog and women only stayed in my house for 2 months. Her bed was covered in black specks when she left and then the black specks which I took to pest control and they look under a microscope and said a few fleas and fiber, they eventually were everywhere in my home. The black specs seem like mold. I have had this for 5 months. I have not worked since this started. I can't afford my home anymore and have to move. People have visited me and do not get it. I think it starts with a low immune system a bite and then something to do with cotton. Ruth
Permalink Reply by Wendy Jones on December 14, 2011 at 10:35pm Hi Ruth,
Where in Toronto are you? It's such a strange disease isn't it. My doctor of 35 years is doubting me when I talk about the fibers. It's very discouraging. Hope you are ok.
Wendy
Ruth said:
I live in Toronto and have this. Mine came from a dog who had fleas who left mites and the dog and women only stayed in my house for 2 months. Her bed was covered in black specks when she left and then the black specks which I took to pest control and they look under a microscope and said a few fleas and fiber, they eventually were everywhere in my home. The black specs seem like mold. I have had this for 5 months. I have not worked since this started. I can't afford my home anymore and have to move. People have visited me and do not get it. I think it starts with a low immune system a bite and then something to do with cotton. Ruth
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