Compassionate Networking for Morgellons Syndrome and Skin Parasite Sufferers
Just passing this along...
from the Charles E. Holman Foundation http://www.thecehf.org/
2011 Morgellons Medical Conference in Austin, Texas, Offers
Hope to Thousands Affected by Morgellons in the U.S. & Abroad
Two-Day Conference Explores New Findings From Medical Experts Sharing
Concerns About Baffling "Fiber" Disease Spreading All Over the World
AUSTIN, Texas (March 12, 2011) ~ The Charles E. Holman Foundation
Morgellons is an unexplained illness characterized by unusual fibers found under the skin, slow-healing skin lesions, overwhelming fatigue, and an array of neurological deficits affecting people of all ages and ethnic groups. Some sufferers, it’s been discovered, also exhibit symptoms similar to those of Lyme Disease. Tens of thousands of cases have been reported worldwide (in every nation but Iceland), with most of those affected living in the United States. For the past few years, news organizations from around the globe have filed stories about this mysterious, debilitating disease without a cure. The Center for Disease Control (CDC) recently investigated Morgellons but has yet to release its findings to the public.
The main conference is scheduled for Saturday, April 2, from 8:30 a.m. to 5 p.m. A reception follows at Tres Amigos Mexican Restaurant from 6:30 to 10 p.m. A brainstorming and networking session will be held Sunday, April 3, from 12 noon to 3 p.m.; venue TBA.
While the event is geared towards the medical community, the conference is open to the public. (Many Morgellons patients, families, and supporters will be attending). A tax deductible contribution of $25 per person --$30 after March 25--is requested to help cover costs but is not required.
"This year’s conference includes a packed agenda with many of our favorite past speakers as well as two new presenters we are very excited about," says CEHF Director
Molecular biologist and biophysicist
Conference sponsor CEHF is a non-profit organization dedicated to the promotion of scientific research and medical education about Morgellons, raising public awareness, and offering hope to the tens of thousands of individuals and their families around the world suffering from this debilitating disease.
(CEHF) announces its fourth annual medical conference on Morgellons disease will be held April 2 & 3, 2011, at the Westoak Woods Baptist Church Conference Center (2900 Slaughter Lane) in Austin, Texas. The two-day event, entitled "Searching for the Uncommon Thread," features leading Morgellons research scientists and physicians from across the United States and Europe who will present the latest scientific and clinical aspects of Morgellons. Online registration is now available at CHEF’s website: www.thecehf.org. Event proceeds will be used to further education and research. Cindy Casey. "We are honored to have Carsten Nicolaus, MD, PhD, from Augsburg, Germany, who will provide insight into the impact of Morgellons outside the U.S." Attendees also will be introduced to Emily A. VanDegrift, M.S.F.S., a forensic scientist whose work takes advantage of the extensive advancements in DNA technology to further the research of Morgellons Disease. This past January Ms. VanDegrift joined the OSU-CHS Center for the Investigation of Morgellons Disease (CIMD) located in Tulsa, Oklahoma. Randy Wymore, PhD, is Director of Research for the OSU-CHS CIMD. Dr. Wymore will give a preliminary report on the most recent fiber analyses, his team’s attempt at "shotgun cloning/sequencing," and a summary of ongoing and planned research projects. Ginger Savely, FNP, DNP, a recognized authority in treating Morgellons Disease, will be conducting a live microscope demonstration. "She will be using a patient-participant to show physicians and researchers how to visualize the mysterious Morgellons fibers within the skin," explains Casey.